Talk

Advanced search

Reflux!!! Mummy on the edge! Help!

(20 Posts)
Lizzy86 Thu 18-Jun-15 16:49:02

I've tried everything!

Baby boy is now 10wks and we've tried-
Gaviscon
Ranitidine
Domperidon

Tried anti reflux cow & gate, this seemed to help but give him terrible constipation to the point of blood in his stools so had to stop even after using laxative from doctors, still no good
Now the health visitor has said try him back on first milk but try something other than aptimil (what he was on before anti reflux milk) he's been on Hipp organic first milk for 2 days and I'll the usual grunts, sick and uncomfortable sounds are back sad

I really really really need some help. Mums please let me know what else I can do for my poor baby boy. I do all the tricks of keeping him upright after feeds etc.

Any milk recommendations

justjuanmorebeer Thu 18-Jun-15 16:51:48

Hello. You poor thing. I have been there it is awful. Reflux is always caused by something. Has anyone talked to you about food intolerances yet specifically cows milk?

Lizzy86 Thu 18-Jun-15 17:35:46

No hmm I've been to and from the doctors and paediatricians but they keep saying it's reflux and signing us off as a thriving baby and that he is fine.

When did your little one start getting better? Age etc? What did you do in the end? I feel like I'm really really losing my mind with stress

justjuanmorebeer Thu 18-Jun-15 17:58:26

We ended up hospitalised at 8 weeks as she would not stop throwing up ever. Ever. Never slept, just screamed 24/7 and was rigid.
Turns out she has a bad cows milk intolerance (was an allergy at the time now lessened she is approaching 4)
I was breastfeeding but me having dairy myself was enough to affect her.
It was a very very long process to get listened to as she was always gaining weight they were not interested. My phone bat about to die but I'll be coming back.
In the mean time do an advance search on here on health and allergies boards to look at CMPI to see if it sounds like it might be worth investigating.
The thing you said about blood in stools could be indeed relevant as it may not have been the medication (although gaviscon always causes constipation)
If you can there is a book called the sensational baby sleep plan (or something like this anyway) by Alison someone ( you should find it on amazon with these linited details)
book largely useless APART FROM a detailed chapter on reflux, it said everything I was experiencing! Doenst talk about allergies though. Telling you this as youll be tearing your hair out. Read this chapter, buy it and get delivered tomorrow if you can purely because it will make you feel like you are not alone! you are not.

TroelsNextCampaignManager Thu 18-Jun-15 18:03:17

Lizzy we went through similar although I had bf and so this was essentially follow-on milk/ cooking milk.

The bad news is most doctors, dieticians etc - even paediatric specialists - don't actually know what it's like to live with a baby with reflux. You need to tell them that he is in fairly constant discomfort and that is as important as progress on the growth charts.

Be aware that some babies are both dairy and soya intolerant so you might want to try a completely non-allergenic formula like nutramigen - available on prescription (if it is still available).

We were lucky in that our specialist moved jobs so we had a new doctor to tackle. I said we had done everything but something was still wrong, and that I had read research from the US which suggested links between continued reflux and allergy. The new doctor basically said "we can try a completely non-allergenic formula but I don't think it'll make any difference". Well, it did! So we continued with that formula until ds was ready to move on to alternative milks - calcium-fortified rice milk (but not really recommended now for young children due to health concerns), almond and oat milk.

See if you can find some research online (in my case it was a LONG time ago so I assume lots of new research is available), maybe take a record of when you feed your DS and when you see the symptoms and then go to the next doctors appointment armed with this and ask "isn't it worth trying this to see if it makes a difference to his level of pain and discomfort"? If you don't get a reasonable response maybe you need to ask to see a different doctor to get a second opinion.

Good luck. And take heart from the fact there are many survivors who've been where you are now!!

Lizzy86 Thu 18-Jun-15 21:53:51

Thank you

I just feel helpless! Watching my baby so distressed.

BeansInBoots Thu 18-Jun-15 21:56:37

Find a sympathetic doctor, and try nutramigen. It took me 3 months, several hospital visits and coming very close to a mental breakdown to get a Dr to prescribe nutramigen, but he's so much happier, and rarely sick!

If the symptoms read right to you, then push.
If not, then keep pushing for different med combos..

Accept any and all help particularly with washing and drying clothes..

TroelsNextCampaignManager Thu 18-Jun-15 22:20:23

Be gentle with yourself. Having a refluxy baby is incredibly tough, physically and emotionally.

I once met a paediatrician who found herself with a refluxy baby. She admitted that after years of giving parents completely logical medical advice and thinking they were all drama llamas, she was utterly floored with the reality of dealing with it herself.

Lizzy86 Fri 19-Jun-15 16:33:40

I've been given prescribed milk called aptimil pepti 1 for him to try

Any ideas on this? Any success stories?

justjuanmorebeer Sat 20-Jun-15 01:11:40

Aptimil pepti is hydrolysed so the milk proteins are broken down smaller so supposedly easier to tolerate. Many babies with mild intolerances thrive on this and it lessens symptoms.
Others who are more sensitive need specific allergy formulas like neutramigen aa or neocate (what we had) which are not made of cows milk at all.
If you have been prescribed pepti that is great as it is the start of figuring out a hypoallergenic milk that could work. If that is the problem of course.
Is his vomiting projectile? pyloric stenosis is another thing to look up, but that can be very serious so chances are it would have been picked up but you never know.
Can you say anything about his nappies. Consistency, any specific smells would you say? Was the blood in stools a one off?

justjuanmorebeer Sat 20-Jun-15 01:12:44

Aptimil pepti is hydrolysed so the milk proteins are broken down smaller so supposedly easier to tolerate. Many babies with mild intolerances thrive on this and it lessens symptoms.
Others who are more sensitive need specific allergy formulas like neutramigen aa or neocate (what we had) which are not made of cows milk at all.
If you have been prescribed pepti that is great as it is the start of figuring out a hypoallergenic milk that could work. If that is the problem of course.
Is his vomiting projectile? pyloric stenosis is another thing to look up, but that can be very serious so chances are it would have been picked up but you never know.
Can you say anything about his nappies. Consistency, any specific smells would you say? Was the blood in stools a one off?

FermatCode Sat 20-Jun-15 02:38:40

Message withdrawn at poster's request.

justjuanmorebeer Sat 20-Jun-15 08:27:00

I have some practical advice for dealing with reflux day to day which may or may not help you.

I found that if I ever put my dd lying flat on her back she would scream and scream as acid would come up so I had to avoid doing this as much as possible.

Nappy changes were probably the only time I did so and even then I tried to keep her on a tilt with head up. I used one of those wedge pillows previously mentioned.

For her moses and carry cot on pushachair what I did was propped the head of it up using rolled up blankets or even books at home under the mattress at around a 45 degree incline.

She never slept until we had sorted the dairy elimination and meds (the same ones as you have domp and ranitidine) and the only way she did sleep was on her front as it took the pressure off her gut. Obviously front sleeping is not recommended by health professionals now due to SIDS however this was a decision based on zero sleep or she would get a few hours so a no brainer for us really.

You could try it for a nap and watch him to see how you get on.

Waterproof sheets on your mattresses are your friend, I also layered up sheets and muslin clothes alternated in the cot bit when we went out to mean that if she vomited on her sheets I only had to peel off the first layer and there were other sheets underneath still dry.

Make sure you go back and get him weighed every 7 to 10 days regarding his dosage of meds. They grow out of their dosage so quickly at that age so you need to keep on top of it.

For bathing, I found this miraculous thing called a tummy tub which is a smooth bucket and meant she was standing up to be bathed.

I carried her around a lot in a moby wrap sling forward to my chest with legs out. If I walked briskly the motion of this often sent her to sleep.

When she was frantic screaming in pain I often blasted out white noise, loudly and this calmed her.
There are videos on youtube of the audio.

I will add anything else I think of x

Halleberry Sat 20-Jun-15 14:52:55

My baby girl (5weeks) has silent reflux and a possible milk allergy. She was just put in nutramigen and I can already see a massive difference in only 4 days. However, she has stopped taking as much in her feeds and she spits up now (something she never done before hence it being silent reflux). I don't know if it's to watery for her but I can't sleep now for fear she will choke. She is much more settled and the sick doesn't bither her but it scares me sad

Lizzy86 Sun 21-Jun-15 18:25:27

Thanks so so much for the advice

He's been on aptimil pepti now for a couple days and so far so good. Still occasional vomit and slight projectile vomit but he is gaining weight and I'm feeling a lot more positive

grin

justjuanmorebeer Sun 21-Jun-15 22:26:23

That's great news

FermatCode Mon 22-Jun-15 13:01:14

Message withdrawn at poster's request.

catnip85 Wed 24-Jun-15 12:57:44

Sorry to hijack but wanted to ask as my DD has just been prescribed nutrimigen- did your babies take to it quite quickly? Mine isn't keen at all.

Hope things are improving for you OP. I'm also feeling at the end of my tether so can sympathise flowers

FermatCode Wed 24-Jun-15 14:57:57

Message withdrawn at poster's request.

Becauseicannes Fri 26-Jun-15 03:22:21

sounds like it is working. Good luck op, reflux is so stressful and very difficult to cope with.

Join the discussion

Join the discussion

Registering is free, easy, and means you can join in the discussion, get discounts, win prizes and lots more.

Register now