Baby is on infatrini peptisorb. please help, stressed out!

[EJF14]

Hi everyone.
Looked through a few of these threads and hoping for some support. My baby will be 12 weeks old on news years day. Since birth she has t put on a lot of weight and it's been very gradual. She was 9lbs 15 born a very big baby but not only weighs 11lbs 2. She did lose quite a bit when she was born. We have been in hospital with her when she was 6 weeks as she developed a rare liver condition where her bile was too thick and blocked up in the bile ducts. Fortunately meds have cleared it without having an op. We have been home for about 3 weeks now and her feeding hasn't been great. She takes on average 60ml per bottle bad refuses to finish it. I try to feed her 3-4 hours. She will quite happily sleep through the night now but iv been waking her for a feed, I don't know whether that's the best thing to do? She doesn't always take the feed as she wants to sleep. I'm just constantly worrying that she's not having enough in the day. The new formula which she is on is a higher calorie feed maybe it's too filling? My HV isn't much help. I say to her that it's a higher calorie milk and maybe she doesnt need it. She just told me to make sure I get the right amount down her. She taking on a good day 500ml when she should be taking 700ml. Should I be this worried? Shes a happy baby and sleeps really well. I'm not going to get her weighed until this week. Shes on Dr brown bottles teat size 2. She's had reflux but on renitidine for that 3x a day which does help. Does get cic sometimes but not as bad as it was. Please help anyone??

[EJF14]

Colic I meant

[tiktok]

Sounds stressful :(

She must be under a dietitian or paediatrician or clinic, I would think. Can you call them and ask your questions? Let them know you are concerned about the volume she is taking. Hope you find good support soon.

[LatinForTelly]

I agree with tiktok. Definitely contact your DD's paediatrician or clinic. (I was so nervous in the beginning about contacting the hospital - like they were Not To Be Disturbed; but they are there to help your daughter, who has (had) a medical condition. Now I'm not so timid )

A dietitian should be able to give you guidelines on the amount of that specific formula your daughter should be taking, how often to feed through the night etc, with knowledge of her medical history, and taking into account any ongoing issues.

I'm sorry you've had so much to deal with, and hope things settle down for your DD and you soon.

[MissRatty]

If on Infatrini Peptisorb, I assume that there is suspected cow's milk protein intolerance? It could be that the formula is not broken down enough perhaps, and a more hydrolysed high calorie formula is required? I agree though that you should be under a paed and dietician and contact them for further assistance. Do you offer more frequently as well? My LO needed small feeds often due to the reflux. Hope you get the help you need x x

[YourTipsyTealSeal]

Hi everyone my baby was born 29 weeks he has chronic lung disease been in hospital more than 4months finally home on oxygen and ng .he does not take his bottles jst drink half of his feed which is about less than two ounces through the night he is tubefed now he is on Nutricia Infatrini peptiosorb coz he is not gaining enought weight like he gains about 90grams a week i get worried alot .
Can any one give me some advice on how does it get better like how long does the baby take to get off the ng anybody has any experience?babies on ng how are they with taking solids any advice on bottles i m using mam bottles we r seeing salt bt to be honest i m not satisfied like they don't giv any suggestions

[LatinForTelly]

Hi @YourTipsyTealSeal , this popped back up on my 'threads I'm on'. I'm sorry I'm probaby not going to be much help but didn't want to leave your post unanswered. I'm so sorry for everything you're going through with your baby. That sounds very worrying and tough.

My baby wasn't given the ng tube until he was around 6 months so a bit different from your experience. In the end he had it for around 8 months then a gastrostomy for 8 years, but he had a condition where we knew long-term tube feeding might be needed. The gastrostomy was much easier than the ng as no pulling it out and replacing it etc. And his little cheeks healed up!

We used MAM bottles too! But I used NUK with a later baby.

My baby did take some solids with the ng but his whole condition involved very poor appetite and feeding so there wasn't that much incentive for him! He was sort of ok with the very smooth stuff then hated the lumpy stuff so we gave up 'baby food' a bit and let him just nibble at finger food (those healthy wotsit things, things which could melt in his mouth) whilst he got most of his nutrition from the milk. But his condition had very different eating/appetite/digestive issues, so your baby might be different.

It might be worth starting a new thread of your own in infant feeding and people might respond. Take care x

ps have you applied for DLA because you would absolutely qualify for it and probably the higher rate?

[YourTipsyTealSeal]

Thankyou very much for replying really appreciate it yes i hav applied for dla recently but haven't heard anything from them yet can you say in detail like wherecto post again plz

[LatinForTelly]

If you go to the top of this thread, @YourTipsyTealSeal and just above and to the right of the first post is a blue button which says "start new thread". If you click that, you will start your own thread in this topic. It just might get a bit more interest than this older one.

Also, go over to Children's health ( by clicking on the "talk" bit where it says:
talk > infant feeding,
then down to the "health" topic, and under that there are different subjects, so click on "children's health" then again, to the right hand of the screen, there is a button which says "start new thread". That'll start a thread in the Children's health section.

It may be worth trying Children's health first as this thread will already be near the top of the infant feeding page as we're posting on it!