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4 week old showing symptoms of cmpi and reflux

(31 Posts)
sheeplikessleep Mon 23-Sep-13 19:30:10

Ds3 has, in the last week or so started to show a lot of the symptoms ...

Runny, snotty nose
Crying after feeds
Windy, humongous burps
Sick after feeds ... Mucousy rather than milky (DH thinks its the mucous that is making ds3 gag)
Rash on his face ... Small pinprick rash with white 'centres'
Gagging, as though he is choking ... Not when feeding, but in between feeds. This really upsets me, it's as though he holds his breath and about to be sick, it nothing comes up.

Ds1 was on gaviscon when he was a baby, but I've forgotten what I did and in what order. Feel a bit lost and bewildered, with where to start and what to do. I just remember cutting out all of the foods I love and it not really being obvious what the problem really was. I want to try to be a bit more definitive this time.

Any advice or thoughts really appreciated. How do I work out if its reflux or cmpi? Tempted to book dr apptmt, though we Have our six week check in 2 weeks.

Feel v grumpy I can't eat bar of choc with my name on it!!

TheScience Wed 28-May-14 16:02:23

My DS2 has a lot of the same "symptoms" - he's mucusy with a snotty nose, he's very windy/burpy/sicky and he also does the retching/gagging thing. He 12 weeks now and seems to have mostly grown out of the retching, I think a lot of babies are a bit refluxy like that.

He also had awful baby acne from maybe 2-6 weeks but clear skin now.

ShineSmile Wed 28-May-14 15:00:25

Also from what you have described, especially the rash, it definitely looks like a food allergy (the allergy could be causing the reflux too).

If I were you I would go on a dairy, egg and soya free strict diet for three weeks and see if it makes a difference. If it has made a difference, then re-introduce egg, see what happens, and then soya last.

ShineSmile Wed 28-May-14 14:57:54

The problem is that most GPs don't understand CMPI, and actually even some pediatricians don't. Don't be surprised if they tell you it's fine for you to eat dairy, even if baby has CMPA.

What I would do is go to the GP and tell them you are going on a dairy free diet to see if it makes a difference to baby, and would therefore like a calcium supplement. I would at the same time ask for a referral to a pediatrician and/or a pediatric dietician. At the same time, get your vitamin D tested too, incase of deficiency and give your baby vitamin drops too daily.

MissRatty Wed 28-May-14 14:40:28

Ella, you should not start a dairy free diet without consulting your GP. If you suspect cow's milk protein intolerance (different to cow's milk protein allergy) you should also see your GP to get advice and support. It is probably a good idea to start another thread with your situation and others can comment. Some babies can tolerate the protein in their mother's milk, others (more rarely) can' takes about two weeks for the proteins to leave the system in mother and baby (again, do not stop dairy without speaking to your GP as you will likely need to be supplemented) and the length of time taken to notice improvements varies.

ellamaisietom Mon 26-May-14 12:51:13

Hi,my son is experiencing the same :-(
I have started a dairy free diet.....what has happened since?

sheeplikessleep Tue 24-Sep-13 15:38:37

He is sleeping on me, as he isn't a good sleeper

JiltedJohnsJulie Tue 24-Sep-13 14:53:58

Have you propped up his Moses basket at the head end?

sheeplikessleep Tue 24-Sep-13 12:06:22

The gagging isn't whilst he is feeding, it's more when he is relaxed, sometimes when he is asleep. He wakes up, starts chewing and gagging, whilst holding his breath. It looks like he is choking or something stuck in his throat and then he brings up mucousy thick sick.

I will book a dr appointment. Thanks for info everyone.

SpecialJK Tue 24-Sep-13 11:45:16

I totally agree on the forceful letdown. I had that and it caused DS to gag and cry and have wind. I think DS had mild reflux when he was young, we ended up on low dose ranitidine, but before that I tried colief which did help. Colief helps break down the lactase and can be taken from birth. Might be worth trying before doing a dairy free diet? The mucous might be a cold, there's loads of them going about at the moment.

DS's signs of reflux were hiccuping, not liking lying flat, we had to tilt him or put him on his side. He also didn't like being held towards someone, as it pressed his tummy, he liked being held outwards.

noblegiraffe Tue 24-Sep-13 10:21:58

Don't cut out dairy until you have seen the doctor. If the doc wants you to cut out dairy he can ask you to do it then you can make another appointment later.

Do you think you might have forceful letdown or oversupply? That can cause problems with babies, including being gassy and being sick.

sheeplikessleep Tue 24-Sep-13 10:12:21

It's so confusing!

duende Tue 24-Sep-13 10:11:25

Xpost with bakingtins who is far more knowledgable smile

duende Tue 24-Sep-13 10:09:55

jilted the problem is there is no reliable test that would confirm or rule out cow milk protein intolerance, so for both ff and bf babies the recommendation is elimination trial.

sheeplikessleep Tue 24-Sep-13 10:08:03

Thanks all for posting

Bakingtins Tue 24-Sep-13 10:07:43

Totally disagree - most babies for whom CMP is an issue have a non-IgE reaction and will be negative on allergy tests. CMPI affects 2-3% of all babies and 0.5% of breastfed babies (i.e. the others are ok on breastmilk and only become symptomatic when given formula or dairy based solids) so whilst it's not a huge proportion it's not rare either. If you do an elimination diet and think you see improvement then you should challenge (be eating the suspect food again) to see if you get any relapse, before considering continuing the diet longer term. That is the gold standard way of diagnosing food intolerances.
allergy UK advice on delayed food reactions and link to the NICE guidelines
I have found Little Refluxers website and this book massively helpful.
See the doctor sooner rather than later and be prepared to be very assertive, get a clear plan in place for what happens if treatment plan A doesn't work in a specified timescale.

sheeplikessleep Tue 24-Sep-13 10:06:32

Yes, that allergy information is useful, thankyou

sheeplikessleep Tue 24-Sep-13 10:05:33

Oops cross-posted again.
I will book dr appointment and see how we get on.

The gagging is the most distressing, it's like he can't breathe and looks like he is choking and he always follows through, in the end, with mucousy sick.

Agh, wish babies could talk smile

JiltedJohnsJulie Tue 24-Sep-13 10:04:58

Does the allergy uk info have a bit on how to talk to the GP? When I went for testing I just told him what I'd read on allergy uk, he googled it, talked to me about why I thought it was an issue and referred me. Really can't see why you need to eliminate things first, especially when you are a bfing mum and need all the nutrition you can get.

sheeplikessleep Tue 24-Sep-13 10:01:23

It could be reflux, that's what I am trying to work out or cmpi or something else. I just don't know how seriously a dr will take it, without having tried dairy free first. I would love to get him allergy tested definitively.

Ds1 was on gaviscon and ranitidine for 6 months as a baby. They seemed to help a bit, but I also cut back on dairy too. I think a dr will just dish out gaviscon. I don't want to go down medication route for reflux if it is cmpi.

JiltedJohnsJulie Tue 24-Sep-13 09:55:40

Totally agree with noble. Allergy uk recommend getting the tests done before you start eliminating. Keelymom has some useful info too smile

I'd book the doctors appointment first, push for allergy testing and see a BFC or lactation consultant, they should be able to check if the tt is still there and to observe a complete feed.

noblegiraffe Tue 24-Sep-13 09:49:40

Thing is, babies change a lot when they are little so he might improve and you think it's because you eliminated dairy, when actually he was going to improve anyway. Then you're stuck on a dairy free diet for no reason because you think it was that that sorted the problem.

Also, a baby being so intolerant to dairy that they are affected by the tiny amounts in breastmilk is really rare. So best investigate the more common causes first (reflux, tongue tie, baby just being a baby)

sheeplikessleep Tue 24-Sep-13 09:45:17

Oops, cross posted jilted!
It is such a faff (particularly as I am craving biscuits and cakes constantly since starting bf'ing!), but I just want him to be a bit more content. I'm not sure i will get him referred, without trying dairy free first?

sheeplikessleep Tue 24-Sep-13 09:42:11

Thanks duende. I've started dairy free now, I'm going to the supermarket later to stock up on dairy free foods.

I am going to book a dr appointment too. Thanks

JiltedJohnsJulie Tue 24-Sep-13 09:41:59

Personally I wouldn't start eliminating things from my diet until Lo had been properly allergy tested. I suspected CMPI intolerance and reflux with my DS but it was tt and upper lip tie. Eliminating dairy and soy from your diet is such a faff and its best that you know for sure anyway smile

duende Tue 24-Sep-13 09:36:20

I think the only way to tell if he has cmpi is to eliminate all diary from your diet (I'm sorry!) and ideally soya too, and give it two weeks. My DD improved a lot about 16 days after I did that, I believe it takes 2-3 weeks for the dairy to leave your system and then some time for the baby's gut to heal.
The gagging does sound like reflux, I'd look at a list of infant reflux symptoms, print it, highlight the relevant and go to see your gp.

They will usually start with infant gaviscon (not that many babies respond to it and can cause constipation)
Then ranitidine (from low to high dose)
Then omeprazole

My DD is on omeprazole and it made a massive difference.
It could also be that your baby will not need medication once you've eliminated dairy.

Good luck, I wouldn't wait for the 6 week check.

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