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mild tongue tie/ upper lip tie but no nipple pain?

(113 Posts)
Clarella Sun 17-Mar-13 02:41:50

this has been suggested and I'm asking for a referral but I've never really had any pain except a mildly cracked nipple. lo has all the associated issues though and we're looking into reflux at the mo. he certainly has a top lip tie and seems to have limited tongue motility. (according to an lll leader though only at mo through images I sent to her)

I have a top lip tie I realise and a gap in front teeth.

he's 14 weeks old and breast feeding can be distressing for both of us. he's exclusively breast fed.

Clarella Mon 18-Mar-13 11:48:11

he was born off the scale but quickly put on weight to the 9th and it looked like he was heading to the 25th. but stuck to 9th but we don't think he's put any on in last two weeks. have often though he could be fatter but dint. think that's anything to worry about. however, I spend my whole day attempting to feed him and we seem to have got into this way of lying down. I think when he's tired it's the easiest way for him. it sounds like you have more symptoms than me. I'm asking for a referral to rule it out here (tho definite lip tie) and I need some serious looking at positions. he has a hissy fit when I try anything else at mo.

TooManyDicksOnTheDancefloor Mon 18-Mar-13 14:05:59

I've found a place that lasers tongue and lip ties in Huddersfield, i think I'm going to by-pass the NHS and take her straight there.

It's a private dental practice called Cote Royd 01484 514451

I live in Leeds so it's not very far from me.

Clarella Mon 18-Mar-13 16:53:49

great toomany smile

my Dr just confirmed it - her daughter had it. we've been referred to Dr Lawson at the rvi in newcastle. it's mild though so not sure if will snip but at least I know how to deal with feeds latch etc. the only other thing you could try is contact the local lll leader and see who knows about it/ best route etc. the woman I've been speaking to in lll is qualified to spot tt and is in sunderland.

I've been given a prescription of omperozol (sp?) so it's not so painful when he's burping etc. Dr did even suggest trying dairy free to lower symptoms. I'm just going to have to be super careful about his latch. and go with the lying down thing for a while!

Clarella Mon 18-Mar-13 16:55:27

Mrs Lawson that is. there's a list on the unicef tongue tie web page of consultants who do it in uk - apparently at this age they try yo see you quickly

SolomanDaisy Mon 18-Mar-13 17:09:36

My DS had a tongue tie and I had no pain. He had it snipped at 4 weeks and it made no difference to feeding - my fast let down and oversupply were issues though. he had green poo, but that's not a problem in a healthy baby. Block feeding and him getting bigger were all we needed in the end.

TooManyDicksOnTheDancefloor Mon 18-Mar-13 21:21:16

Glad you got it diagnosed clarella, what did the doctor say about the lip tie? I'm going to book a doctors appointment tomorrow.

Clarella Tue 19-Mar-13 03:52:48

I've been lucky though, her daughter had it so she knew the score. I was told by the la leche league leader it's unusual for gps to spot. i made appt with the practice's child doc plus a woman so at least she knew how hard bf can be.

this page has a list of consultants

I'd ask for urgent faxed referral and maybe call hv to double check route of referral. I'd definitely find your local la leche league group on face book and post a question about what others experiences have been.

she didn't mention lip tie but I think each case is dealt with as a unique case dependant on the specific difficulties.

all the best tomorrow !

Clarella Tue 19-Mar-13 03:55:08 oops

Clarella Tue 19-Mar-13 03:58:30

I've done block feeding Solomon and my supply is balanced now but he's still having issues. it may not help but worth seeing what consultant thinks I feel. our green poos were horrendous, he had burns on his bottom and spent all night writhing and groaning. they stank and had mucous in them. he stopped smiling for several days. colief helped a lot at that point.

SolomanDaisy Tue 19-Mar-13 07:42:41

Oh, sorry, didn't mean to suggest you shouldn't get it checked out! For lots of people it makes a huge difference, it just didn't for us. Poor boy, the green poo sounds really nasty for him. I hope you manage to get it sorted.

TooManyDicksOnTheDancefloor Tue 19-Mar-13 09:43:11

I started block feeding Bronwen at around 6 weeks because she was constantly sick due to my over supply and fast letdown. My supply was sorted out when she started producing green poos full of mucus, the problem was getting her to stay on the breast long enough to get to the fatty hind milk. She would pull of due to gulping air, get upset then wouldn't go back on so was only getting the thinner milk. I've gone back to feeding both sides but feeding more often, so less thin milk has built up in the breast. I was also doing EASY every 3 hours, she now feeds every 2-3 hours. Her bum has just about healed, it was also burnt last week hmm

I'm going to baby cafe today so will ask the BF support worker to have a look. I'm concerned that her lip tie is the main problem but the NHS won't snip lips. This is why I think I might just go private. I've joined a Facebook group called tongue tie babies, people travel from all over to visit this doctor in Huddersfield. I'm going to search for my local LLL group no also.

TooManyDicksOnTheDancefloor Tue 19-Mar-13 16:55:41

We've been referred to the specialist by the health visitor grin. She watched me feed today and agreed that it wasn't normal, she'd never heard of a lip-tie though.

Clarella Tue 19-Mar-13 17:49:41


apparently they can go together. I've been told unlikely to do lip tie - but see what happens. I have a lip tie that must have stretched.

I'm so glad for you! if it doesn't get resolved at least you can understand it and hopefully get help. make sure you see the actual consultant and not a registra or anyone.
bizzarely the hv watched me feed g in my lap today as he just woke up - latched on quite well as was sleepy. not done that well for ages. however had a big carry on earlier after his mouth clicked loudly and so we're on the bed again.

too many you describe our situation so much. we've had yellow poos for a few weeks though but I'm thinking due to my lying down with him. can't remember when I started it!

good to get advice from the fb group smile

no problem Solomon! good to hear other experiences so I'm prepared in case it's not snipped/ doesn't work.

we have our appointment tomorrow at 2:30!!!!

Clarella Tue 19-Mar-13 18:58:50

I've tried to do the EASY method since you mentioned it toomany on the Nov thread! it's really worked to get burps up and I now realise tongue tied babies feed better when still a bit sleepy which means we've actually inadvertently been helping them smile

TooManyDicksOnTheDancefloor Tue 19-Mar-13 21:32:27

If they won't do the lip tie it migh be worth a trip to Huddersfield as lip ties cause more problems in the future. They cause tooth decay and a gap between the front teeth.

Do you find the last feed before bed to be the worst? I fed at 7.30 and she cried, latched, came off and cried, latched, coughed, spluttered etc. it was such a battle to get her to feed. I think she's over tired by this point, she's much better at feeding straight after a nap.

Clarella Wed 20-Mar-13 03:35:51

I have a gap smile

find the mornings hardest as he doesn't sleep well due to all the wind which gets worse the morning then he seems congested and can't seem to organise himself. I wonder if acid builds up too over night so it's more painful if he burps. some afternoons can 've bad too when he's over tired. best feeds are jjust as he wakes from a nap. he knows he has a bath, book, bed with me feeding him so has always been more relaxed plus the position must be better. which is why started doing it in bed during day.

I'm going to see the lll leader on thurs so see what she advises re lip but thanks for advice.

we'll get there!! thanks

Clarella Wed 20-Mar-13 03:38:19

I now remember more about catching the skin on my teeth and pain under my tongue. I must have had it.

teeth ok though strangely, still no fillings at 36! (touch wood)

Twattybollocks Wed 20-Mar-13 06:54:46

Dd has lip tie and a possible ptt, (several opinions, some say yes some say no) we have lots of problems with reflux and wind. Something I have found really really helpful with the clicking and losing her latch is to shape the breast vertically rather than horizontally when latching her on, so the longest part is nose to chin rather than from lip corner to lip corner. Also found that if I hold the breast and press The breast to her mouth either side of her lip corners she doesn't click or slurp nearly as badly and the wind isn't as bad afterwards

Clarella Wed 20-Mar-13 09:13:35

thanks twatty - my mum said she did this. did you find it 'flared' frown time ti time? some weeks seem much harder for him than others. I've been shocked that he has cluster fed before 9 this morning. not that happy afterwards when burping but bit done that for weeks or months

Twattybollocks Wed 20-Mar-13 09:30:19

Yes, she has good weeks and bad weeks, possibly to do with her growing, tbh I'm just making it up as i go along and trying to get to 6 months, or at least to 20 weeks before I start weaning her onto solids/formula, but at the moment it's painful, she isn't happy with the reflux/wind thing and it's a battle.only consolation is that she is gaining weight well, which I wasn't expecting, so I'm releived about that at least.

TooManyDicksOnTheDancefloor Wed 20-Mar-13 10:47:30

I do something like that too twatty. LO has never liked feeding off the left breast but I tried her laid belly down with me reclined yesterday and she fed for ages. I kind of had her diagonally across my stomach so she was face down on the breast. She has also cluster fed this morning for about an hour and has done a bright yellow poonami, result!

Clarella Wed 20-Mar-13 11:01:42

great toomany! as I say I suspect we found our 'way' thru lying down.

sounds similar twatty. growth spurts seem to be bad

TooManyDicksOnTheDancefloor Wed 20-Mar-13 11:18:52

I've mentioned the lip tie on the November thread and everyone who is having major feeding problems has checked and guess what? They've all got lip ties too, about four others so far. Why aren't they checked for in the hospital? how many people must give up breast feeding because of this? Unbelievable.

Clarella Wed 20-Mar-13 11:30:02

wow - I suppose it depends if they experience an issue or not? I bet many give up. I think hv focus on the is there pain thing, yet on tongue tie net it says not always. if this were baby # 2 he'd have lost weight

Clarella Wed 20-Mar-13 11:30:29

or I'd have given up

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