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Tongue tie

(25 Posts)
Lucylockett106 Tue 24-Jul-12 00:32:47

My ds had a posterior tongue tie when born which was clipped at 15 weeks. It has now re attached and I'm starting to get really sore again. Anyone had a tt cut at this age? Ive been told they may not clip at this age sad

JiltedJohnsJulie Tue 24-Jul-12 06:54:22

Lucy haven't got any experience of tt sorry but didn't want you to go unanswered.

Hopefully someone will be along soon smile.

Lucylockett106 Tue 24-Jul-12 07:41:27

Ah thank you!!! I'm also wandering if ts why he still doesn't sleep more than 3 hrs t night!! Thank u smile

crikeybadger Tue 24-Jul-12 08:47:59

How old is he now Lucy?

I think most places will snip until the age of about 6 months. Have heard that laser treatment is also being used for some older to children, but I don't know much about that.

Happygirl77 Tue 24-Jul-12 09:29:18

My dc3 had his cut as a newborn and I was advised it could reattach and may need snipping again.

A friend's ds (aged 2.5) has just had his done this week so I can't see why - especially if it's affecting his feeding - your son couldn't have his done again.

mawbroon Tue 24-Jul-12 09:44:46

You need this guy

here

he uses lasers and trained with Kotlow

TT revision alone is normally not enough. You need to do stretches and massages after the revision to prevent it reattaching. Also, you need some sort of bodyworker like a cranial osteopath to work on the tension created by the tt.

My son had undiagnosed tt. He is now 6 and you would not believe the problems that he has had, all of them related to his tongue tie. Act now!!

And come and join the facebook tongue tie babies support group.

mawbroon Tue 24-Jul-12 09:49:20

Sorry, that link doesn't work. Google Dr Kotlow and tongue tie

nextphase Tue 24-Jul-12 10:04:15

How old is he?
Round here, they won't clip after 12 weeks, so you obviously have different guidelines near you.
I understood there was a period when they were tiny when the tie was so thin they would do it without any anaesthetic, and then it needed analgesia, so they delayed til they were bigger.
Although if it a regrowth, it might be thinner? can you ring the surgery who did it first time round and talk to them?

mawbroon Tue 24-Jul-12 12:04:06

TT is linked to poor sleeping, yes

Lucylockett106 Tue 24-Jul-12 18:34:28

He is 28 weeks 6 months on 11 July. Ivebeen told conflicting info think it depends on the hospital u go to! I'm keen together it sorted to his sake and for the sake of my poor cracked nipples haha!!
I will look for dr. Kotlow now thank you.
Didn't know it was linked but had thought it my be. He's cat napping in the day and usually 3 ish hrs at night. I'm knackered!!!!
Thanks advice I will speak to specialist who cut it last time next week, she's away this week!!!

Suckeddry Tue 24-Jul-12 19:06:43

In what way are tongue tie & sleeping linked? confused

DS TT grew back three times, despite massage. Did t have the heart to get it do e again.

mawbroon Tue 24-Jul-12 20:08:03

I think (I may be wrong) but it is to do with the tongue position threatening the airways. Breathing is top priority so the baby wakes.

Here is one story of how successful tt revision changed sleep for this baby

Lucylockett106 Tue 24-Jul-12 20:42:38

Funny you should you say that about breathing he has become really snuffly when lying down at night but not when he's in car seat or pram. I've thought this for about a month and once he's up in the morning it's gone! Wonder if it's linked!!

mawbroon Tue 24-Jul-12 21:20:36

Yes, there is something to do with breathing being more difficult for them lying down, but I can't remember the exact details.

Please ask to join the fb group. It is a mine of information.

MigGril Tue 24-Jul-12 21:31:20

The tounge is a big muscle, it helps shape the rough of the mouth and the breathing air way at the back of the thruout. babies who have TT, means the tounge is not in the right place to help these features form correctly. So they can have a high a
arch plate and in some case suffer sleep apeinea to.
It's interesting how the anatomy is all linked.

Lucylockett106 Tue 24-Jul-12 21:56:38

I've looked on Facebook but can't find which one it is!!

It is amazing. Why are they not routinely checked for when they can cause such problems ?!

mawbroon Tue 24-Jul-12 22:06:12

Good question Lucylocket106.

Sadly, there are many people in the medical profession who think that the most serious consequence of tongue tie is not being able to lick an ice cream cone. FFS.

There is a lot of education needs to be done. But actually, the research needs to be done first to prove a lot of it. It just isn't there yet.

Look for tongue tied babies support group on FB. It's a closed group, but ask to join.

My ds1 is 6yo and I didn't know he was tongue tied until last year. He has a list of complaints as long as your arm, all of which are related directly or indirectly to his tongue tie and high palate. It is going to take a lot of orthodontic work to reshape his palate the way that his tongue should have done it.

Please take the tongue tie issue very seriously.

Arseface Tue 24-Jul-12 22:48:56

Hi mawbroon,
DS1 is 11 and had surgery for his undiagnosed TT 18 months ago. His speech was less clear than it ought to have been and he had decay on his lower front molars - which puzzled the dentist as the rest of his mouth was very healthy.
Speech therapy has cleared up the first problem and his adult molars show no signs of decay.
Am wondering from your post if there are other issues I'm completely ignorant of which may need addressing?

Already feel dreadful that his TT was unnoticed for so long, hope I'm not missing more I should be doing!

MigGril Wed 25-Jul-12 06:48:23

You van have a read hear for info on more problems it mite cause as an adult milkmatters.org.uk/2011/04/15/hidden-cause-of-feeding-problems-however-you-feed-your-baby/

Still wishing we'd had DS mine tire cut even though it didn't impact on feeding much and has now stretched. I'm slightly more worried about his lip tire tough as I think it's impacting on his teeth.
I think this is another problem formula companies have created as originally they would snip and every midwife new how to do it. But as mums spotted breastfeeding they stopped doing it as didn't see the need.

Lucylockett106 Wed 25-Jul-12 08:32:14

That's a very interesting read thanks miggirl x

mawbroon Wed 25-Jul-12 16:50:22

Well, where do I start. He has a high palate which restricts his nose breathing, so he breathes through his mouth. This is starting to have an effect on his bottom jaw, so the palate needs expanding and he needs trained to breathe through his nose.

His ears are congested and he has slight hearing loss again because the palate encroaches on the space needed for the tubes to drain.

He had really bad reflux and aerophagia which is now almost resolved since he had his tt done in January. He suffered from loads of stomach upsets when he was younger

In the past, he has suffered snoring and sleep apnoea. This stopped last year after his mouth grew a bit, but it's not to say that it won't come back.

His adult teeth are already lining up to come in crooked (he had a dental xray last week) and he already needs braces to sort it.

There seems to be a link with tongue tie and allergies and intolerances, many tongue tied kids are also allergic or intolerant. DS1 outgrew an egg allergy aged 4 and had a nasty milk intolerance until recently.

Um, I'm sure there's more, but these are the main things off the top of my head.

Arseface Wed 25-Jul-12 22:18:11

Goodness me! Your poor DS. I understand how upsetting it is - I also felt a bit betrayed that DS1 had gone undiagnosed for so long.
Was only picked up when I had enormous problems BFing DD1 and thought to check him too.
So far, none of the issues you've mentioned seem to have affected DS but I think I will get his palate looked at next time he has a dental check.
Will also do a bit more research and make sure I'm not missing anything else.
Thank you so much for alerting me to the ramifications though.
The midwife who picked up DDs tongue tie told me that the famous sharpened fingernail cultivated by midwives a long time ago was used to divide tongue ties in newborns!

mawbroon Thu 26-Jul-12 15:08:53

I asked our NHS dentist about his palate and he said, oh it's not a problem. My arse it's not a problem, so we went to somebody who knows about tongue tie and all this stuff.

Sorry to highjack OP, but I feel people need to know that tongue tie should be taken seriously.

Lucylockett106 Thu 26-Jul-12 20:15:11

No that's cool. It's good info to have! Carry on!! smile

AndyJohnsonCreek Sun 19-Feb-17 19:16:22

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

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