Advanced search

Please don't promote blogs that aren't in the Mumsnet Bloggers Network. Join the network

Teengirl's been diagnosed with genetic disorder

(2 Posts)
borninastorm Fri 30-Jan-15 21:52:26

Have you heard of Ehlers-danlos syndrome? No neither had I until a few months ago until teengirl was diagnosed with it.

It's been a helluva ride, and one that's only just started so I've been blogging up a storm with 3 blogs all about our journey to EDS.


Fitting the puzzles pieces together

The final puzzle piece

nether Sat 31-Jan-15 20:16:39

i've heard of it. This thread's gone quiet, but whether you have it yourself, or are parenting DC with it, there are MNetters who helpful, kind and experienced.

Join the discussion

Registering is free, easy, and means you can join in the discussion, watch threads, get discounts, win prizes and lots more.

Register now »

Already registered? Log in with: