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Teengirl's been diagnosed with genetic disorder

(2 Posts)
borninastorm Fri 30-Jan-15 21:52:26

Have you heard of Ehlers-danlos syndrome? No neither had I until a few months ago until teengirl was diagnosed with it.

It's been a helluva ride, and one that's only just started so I've been blogging up a storm with 3 blogs all about our journey to EDS.

9/9/99

Fitting the puzzles pieces together

The final puzzle piece

nether Sat 31-Jan-15 20:16:39

i've heard of it.

www.mumsnet.com/Talk/special_needs/1493160-EDS-Hypermobility-3 This thread's gone quiet, but whether you have it yourself, or are parenting DC with it, there are MNetters who helpful, kind and experienced.

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