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Find bereavement help and support from other Mumsnetters.

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Find bereavement help and support from other Mumsnetters.

Bereavement

JBADGIRL (from Postnatal oct 04 thread) son had died is getting BURIED today xxxx

44 replies

biglips · 10/09/2007 08:52

Thinking of you Jbadgirl. Hope it will be a lovely day for you to remember xxxxxxx

RIP Toby xxxx

this is the last post from Jbadgirl from the other thread

Hello, thought I would fill you in on our trip to southampton to see neurologist. Funnily enough our neuro knows the neuro pathologist in great ormond street and has found a diagnosis for Toby, which is also his cause of death. He had Aicardi-Goutieres syndrome which is a progrssive brain disorder. If you search it on the web there is more info on it. It is very rare (about 50 cases worldwide) everything about it relates to Toby and is so interesting. It is genetic so we will have to have genetic councilling and to find out the chances of future children having it. They think its a 1 in 4 chance each pregnancy. Our neuro has only seen one case before when she worked in great ormond street in 1990. We know this info before the coroner so still have to wait for him to get back to us about death certificate etc.

OP posts:

Report

MamaG · 10/09/2007 08:54

compo · 10/09/2007 08:54

Thinking of you on this difficult day xxxx

saggarmakersbottomknocker · 10/09/2007 08:55

Thinking of you today. Sending you strength.

beansprout · 10/09/2007 08:55

Best wishes to you and your family xxx

BecauseImWorthIt · 10/09/2007 08:56

Thinking of you.

muppetgirl · 10/09/2007 08:57

My thoughts are with you today
x

biglips · 10/09/2007 12:00

xx

OP posts:

maisiemog · 10/09/2007 12:08

I hope you day went as well as can be hoped, and that Toby has had the send-off that you planned and wanted for him.
Toby is with his granny now and his journey has ended. Your journey continues with Toby in your heart, be brave and remember his strength and his courage.
Don't forget we are here for you on the October '04 thread.
Big hugs to you and your DH on this day.

Dinosaur · 10/09/2007 12:09

I am so sorry, Jbadgirl.

Rest in peace, little Toby.

bagpuss · 10/09/2007 12:11

Thinking of you.

biglips · 10/09/2007 16:45

xx

OP posts:

SleeplessInTheStaceym11House · 10/09/2007 16:55

thinking of you today. xx

cornsilk · 10/09/2007 16:56

KD73 · 10/09/2007 16:57

Love and hugs to you and your family at this time xx

RGPargy · 10/09/2007 16:58

Thinking of you. Hope everything went ok. x

chonky · 10/09/2007 17:11

I'm so sorry too jbadgirl - thinking of you and your family.

Rest in peace Toby.

biglips · 10/09/2007 19:30

Hope her and her DP had a lovely day today x

OP posts:

ScoobyDooooo · 10/09/2007 19:36

Thinking of you all today

Califrau · 10/09/2007 19:38

This reply has been deleted

Message withdrawn at poster's request.

missyhols · 10/09/2007 19:40

rest in peace little angel.

pyjamagirl · 10/09/2007 19:41

thinking of you

nell12 · 10/09/2007 19:43

Thinking of you and your family and of course darling Toby x

Wisteria · 10/09/2007 19:43

hope it was a beautiful day and you can find some peace in your hearts, now Toby is at rest xx

morningpaper · 10/09/2007 19:44

God bless Toby x

Tamum · 10/09/2007 19:45

I am so sorry.
xxxx

Flip

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