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My Beautiful girl

(118 Posts)
WatcherOfTheNight Sun 12-Nov-17 14:11:04

Hi everyone,I haven't been around for a bit but I just want to share this & hopefully prevent other family's suffering as we are.

On the morning of 1st September this year,I found my beautiful 22 year old daughter who was home from uni,on the floor in her bedroom.
She was already beyond help.
It's been horrendous,no answers or support from anywhere for many weeks.
We were only able to finally lay her to rest on Friday
2 weeks ago we found out she died from Sudden Arrythmogenic Death Syndrome.

Every week 12 Children or young Adults die from SADS.
That's 120 more sudden,preventable deaths of young people since my beautiful daughter Ashlee left us.

CRY (cardiac risk in the young ) hold screening clinics for all 14-35 year olds.
The NHS WONT test our children unless one has already died from the condition.

Too little,too late for us,but maybe not other family's.


ImListening Sun 12-Nov-17 14:15:21

flowers deep condolences to you.

DramaAlpaca Sun 12-Nov-17 14:16:51

I am so very sorry for your loss flowers

Lily2007 Sun 12-Nov-17 14:20:29

So sorry to hear about the loss of your lovely daughter Ashlee.

DartmoorDoughnut Sun 12-Nov-17 14:20:49

Oh god how utterly horrendous sad I’m so sorry for your loss flowers

LemonysSnicket Sun 12-Nov-17 14:22:04

Wow the same age as your daughter so this hits very close to home for me. I will certainly share it with my friends and family.
I'm so so sorry for your loss, it is heartbreaking.

mrsreynolds Sun 12-Nov-17 14:22:32

So very sorry x

HolgerDanske Sun 12-Nov-17 14:24:11

Oh god how absolutely horrendous and heartbreaking this must be for you. sad

flowers flowers I'm so sorry.

Would you like to tell us a little bit about your beautiful daughter?

MayFayner Sun 12-Nov-17 14:26:19

I'm so very sorry for your loss flowers

Thank you for posting.

JennyOnAPlate Sun 12-Nov-17 14:28:07

I’m so very sorry for your loss flowers

BulletFox Sun 12-Nov-17 14:28:21

I'm so sorry. That happened to my older brother.

Can you talk about her here?

Hope you're being well looked after

MiddleAgedMinger Sun 12-Nov-17 14:28:51

I am so sorry. I hope you are able to access support for yourself for what will have been a deeply traumatic experience flowers.

I have a 20 year old Uni student daughter. I cannot imagine what you've been through.

I will keep an eye out for screening in my area.

Much love xx

FellOutOfBed2wice Sun 12-Nov-17 14:29:53

I’m so sorry for your loss. A school friend of mine lost her husband to this, was shocking and terrible and she is terrified her three children may have inherited the condition. They are regularly checked through NHS screening but it’s good to know there’s a service for those without a possible genetic link.

Wilburissomepig Sun 12-Nov-17 14:31:08

I'm so, so sorry. flowers

TheApprentice Sun 12-Nov-17 14:31:20

So so sorry. How tragic. And thank you for raising awareness.

Crunchymum Sun 12-Nov-17 14:31:27

OP, I cannot even begin to imagine how awful the last few months have been for you.

I have the utmost respect and admiration for you for choosing to do something positive (spread awareness) at this horrendous time.

Memories last forever OP, your beautiful girl will always be with you.

Note3 Sun 12-Nov-17 14:34:29

My deepest sympathies to you and your loved ones. Thank you for sharing this as I am going to bear the screening in mind for my children. I'm so sorry you have lost Ashlee flowers

furlinedsheepskinjacket Sun 12-Nov-17 14:35:27

oh that is so sad xx

thank you for the info

may your girl rest in peace xx

deblet Sun 12-Nov-17 14:36:54

Op I can empathise. My 29 year old son of cardiac arrest out of nowhere and we are still trying to come to terms with this and it has been three and a half years.There is nothing more I can say except I am so sorry for your loss and send as much love as I can to you and your family xx

ludothedog Sun 12-Nov-17 14:37:34

thank you for sharing your story.

My condolences to you and your family. flowers

CiderwithBuda Sun 12-Nov-17 14:39:43

I am so sorry for the loss of your daughter.

I had heard of CRY and DS is booked into a screening that they are doing at his school early next year.

You can ask to be put on their email list and they will let you know when there is a screening in your area.

WatcherOfTheNight Sun 12-Nov-17 14:40:05

Thank you for your condolences,we are still in shock & utterly heartbroken.
Our son is seeing the paediatric cardiologist tomorrow morning,we have appointments Wednesday.

All I want to do is talk about her but it's so hard right now.
She was so beautiful inside & out,insecure but starting to blossom & believe in herself.
She was my best friend xx

Bluetrews25 Sun 12-Nov-17 14:40:26

So very sorry for your loss. Life can be very cruel.

blueshoes Sun 12-Nov-17 14:44:51

Watcher, my deepest sympathies for the loss of your daughter and best friend flowers

Athome77 Sun 12-Nov-17 14:45:29

💐so sorry

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