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Edwards syndrome (Trisomy 18 (T18) or Trisomy E)

(4 Posts)
Hippee Wed 07-Nov-12 22:58:05

Friends have created a website as a tribute to their lovely daughter, who was diagnosed with Edwards syndrome shortly after birth. It also has links to information that they found useful. They hope that it will help other parents facing this devastating diagnosis. See

flubba Thu 08-Nov-12 07:27:03

Oh God. what a sad, sad story.

janey68 Fri 09-Nov-12 18:19:34

Hippee- it's such a sad story but uplifting too. What amazing friends you have, and I'm sure this will be so helpful to other parents who find themselves unexpectedly receiving bad news .

. I feel as though i know so much about little Cerys- I love the bit about the foods she liked and the ones she wasn't sure about!I hope your friends find happiness and peace.

elliejjtiny Tue 20-Nov-12 13:19:27

When DS2 was at preschool there was a little girl there who had edwards syndrome. Last I heard she was 4 and about to start school, I knew edwards syndrome was life limiting but I didn't realise it is rare for a child to live that long with the condition.

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