Are there any good websites about Global Development Delay(19 Posts)
My friend has a 17 month ds and believes he has global development delay. He doesn't babble, cruise, feed himself etc.
Does anyone know of any good websites for this condition,
Hi charellie, your friends DS sounds a lot like my DS at that age. A poster on the sn board pointed out this website for me. Sorry I can't do links.
It's not so much a "condition" as in a medical condition. It's just development that's slower than usual, so there's not much devoted to it, I'm afraid, other than pinpointing whereabouts the child is in terms of age equivalent and looking where they should go next.
I found this book useful but a lot of it is about activities to help your child. It depends if your friend is ready to start thinking about doing stuff or is just coming to terms with the problems in the first place.
Sorry thinking about it some more, when you say she "believes" he has global dev delay, has she been told that or is it just her own opinion? If he hasn't been seen by any professionals she ought to get into the system ASAP.
Thanks for your responses.
Her ds has already been referred in the past as he seemed delayed in a lot of things. However, my friend hasn't pushed very much as she didn't want to believe there was anything wrong and also she moved a couple of months ago so is now under a different health authority. As her ds is getting older it is becoming more obvious.
She's also a single mum and is finding things quite tough and is quite a distance from me so I thought some good websites on the subject might help.
It would still be a good idea for her to get into the system and on waiting lists for speech therapy etc. She might also get financial support like DLA (if she can face filling in the forms) and moral support from special needs groups, portage etc. It is really hard to accept there is something wrong with your child and obviously you as her friend will have to decide how much she is able to take on at the moment.
I'm seeing my friend on Friday so will have a better idea of how her ds is doing bbbbbmuch she can take in then. She has Home Start in her area so hopefully they will also be a support to her.
That book seems really good so I will buy that for her as well.
My 3.5 ds has just been diagnosed with global development delay, and I have to say that finding information about this condition is very tricky. I really agree with everyone that your friend should alert someone where she is now- in my case it was my health visitor, so that her ds can get into the system now and start the process of getting support from different experts.
The thing with global development delay is that you really need the child to be fully assessed by a doctor/specialist, because it may be that he has different levels of delay in different areas, and the doctor can help put together the most appropriate plan of action- whether he needs speech therapy or occupational therapy etc.
In my son's case it meant numerous tests conducted in our house by different people- speech therapist, occupational therapist, physiotherapist and the team specialist, but at the end of it we all had a meeting and have now got a plan in motion to help and support him. It also means that you have someone in the profession to discuss your concerns with.
I don't know if it helps, but I have been referred to the ICAN website, (www.ican.org.uk) and also the afasic Website (www.afasic.org.uk) which deal with communication issues in young children. Apart from that I don't know of any other sites that target global development delay explicitly.
I really do understand how your friend feels -I had so many people (including family) telling me that my son would catch up, and that boys are always slower etc, but it can really break your heart when you know that your child is not the same as other children, and part of moving forward is admitting that you need to get help and support for both mum and child because it can be very wearing dealing with it every day. I hope she is able to get the help she needs, and please reassure her that she is not the only mum going through this!
by the way, charellie, I think you are a lovely friend to your friend
I don't know if my little bit of info will be any use to you, but here goes anyway!
My DD is 3.7 and has Downs Syndrome. Her last paediatric report shows her as having glovbal development delay especially in motor skills and speech & language.
I am saying this because DS is quite well researched and there are a few sites that cover various issues of the developement in a child with DS. Therapies, activities used with DS can be very basic but effective.
Also contact Portage. I found the activities and "checklist" we worked to gave me a good basis to work with. Taking small steps to achieve a goal etc.
Try looking Downs Ed Trust loads of literature all in individual booklet form.
Also have a look at The Downs Syndrome association the have some literature you can down load FOC too.
Sorry if you feel this not relevant but DS covers so many issues that I thought it might be of some use!
What is Portage? I've not heard of it before.
my daughter has global development delay and tbh it is like having a child with DS or a child with a learning disability( which often as time goes on if the child hasnt caught up it can be classed as LD instead of GDD depending on which specialist you see). it just means usually that they follow the normal development path but at a slower pace to their peers (I say 'usually' loosly)
That website seems really interesting. I'm speaking to my friend tonight so will show her all the websites then. I will also forward this thread as hopefully it will help her to realise she isn't alone. Maybe she will decide to post herself.
I always wondered about what to call global delay when they are not going to catch up!! I was going to post it on the SN, thanks Fio2!!
I always say DD has GB but she is v unlikely to ever catch up, the internet mentioned the word retardation, UGGGHHHH hate that word
So learning difficulties it is!!
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