Infantile spasms or over anxious FTM?

[Eggcellent29]

Hi all

I’m worrying myself into a state over DS and was hoping someone could help.

In the mornings, he often lifts or kicks his legs suddenly and turns his head to the side. He often will repeat this motion a few times, but sometimes it’s just once. Sometimes he passes wind, sometimes he doesn’t. Sometimes it stops if I pop his dummy back in, sometimes it doesn’t.

He always has his eyes shuts and appears asleep. He doesn’t wake up immediately after but it tends to be in the hour or so before he wakes properly. I’ve tried to film him but the camera on my phone is crap and if I turn the light on he wakes up and stops.

His arms never move when he’s doing it and he doesn’t appear distressed. He doesn’t wake up and doesn’t do it in the day when waking from naps.

My question is - should I be worried about infantile spasms or is it more likely that he just has gas from sleeping all night?

[NewMum293]

If he only does it when he’s sleeping, it sounds like he’s just a twitchy sleeper as he’s coming to the end of his sleep. Infantile spasms I think would happen randomly during his waking hours (my daughter was tested for epilepsy and infantile spasms a few months back as she was making involuntary jerk-y movements during the day but was ruled out)

If you’re worried, I’d give the doctor a call but doesn’t sound concerning to me x

[Eggcellent29]

Thank you for replying :)

He is a very active sleeper! He throws himself about like nobody’s business. He never does this action when he’s awake so I’m inclined to agree with you

I also watched him carefully this morning and the motion isn’t always the same. I think you’re right.

That must have been so scary for you, I hope LO is okay now?

[NewMum293]

Yes, she is fine - the doctors thought it was either developmental or the result of an illness (there was a proper word for it but basically an infection irritating her brain causing small movements, which I think is right as it only happened when she was ill).

I’m glad you are feeling reassured. If he does do any movements in the day, do try to record them as having videos of my daughters movements really helped me be taken seriously by the doctors. That said, I hope he doesn’t and you don’t need to! x