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Autoimmune disease

Lupus rash

6 replies

IamEarthymama · 11/03/2021 19:04

I wonder if anyone has experience of the Lupus "Butterfly" Face Rash?

I have been aware of red patches on my cheeks and across my nose for several years. They match the butterfly shape.

I have lots of arthritis symptoms, have psoriasis and have been suffering from fatigue for years.
I have only recently came across Lupus and that telltale rash.

The red patches on my face aren't raised though but they are notable, I use a green tinted CC cream to try to make it less notable.

If it was Lupus would the skin be broken or raised?

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MindYourLanguage · 11/03/2021 19:07

Mine is red, hot and slightly scaly (sounds lovely!). Mine also is classic in that it does not touch the sides of my nose - just the bridge and my cheeks. My rash flares when I am tired, unwell or as warning that I am going to flare.

You really need at least an ANA test to diagnose along the rash, and I had a couple of tissue biopsies.

Best get it checked out by a rheumatologist who will be able to tell the difference between a malar rash and other forms of rashes.

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lolbrador · 11/03/2021 19:11

Mines is red, burny hot and scaly and appears between my eye brows. Mines was not diagnosed until I was under my rheumatologist. Good luck

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Justonedayatatime11 · 14/03/2021 21:05

Mine is red, lumpy, hot and scaly. Classic 'butterfly' and also on my forehead. Particularly bad if I so much as look at the sun Sad.

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IWishTheBishopWell · 15/03/2021 11:57

Rosacea can cause a similar rash to the malar rash. Given your joint issues I would advise that you see a Rheumatologist. I was first referred to Rheumatology at 21 when I went to my GP complaining of joint pains and with my rosacea rash visible. If you tell your GP your symptoms they should refer you.

I have seen a few Rheumatologists over the years and my rosacea means they always test for ANA as a precaution.

My rosacea is flat and affects my cheeks more than my nose but I do get it on the bridge of my nose. I've had it since I was 15 and it comes and goes. It sometimes feels hot, like when you feel yourself blush or a bit like mild sunburn. Green primer is a god send when it flares up. Vichy dermablend foundation is also good at hiding it IME.

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VerityWibbleWobble · 15/03/2021 12:00

The fact that you have psoriasis means your Gp should refer you to a rheumatologist with your symptoms because psoriatic arthritis is a very real possibility.

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Duchess379 · 29/05/2021 23:30

My rash is like 'prickle heat', it goes all up my neck & lower face. Raised bumps that itch like hell. And because I have oily skin, they look like spots. As a young teenager I was diagnosed with acne before the rheumatologist realised what was going on. I'm on hydroxychloroquine which manages the symptoms a lot better.

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