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Autoimmune disease

Tsh 15

4 replies

forgotMyusernameAgain · 29/11/2019 12:10

Just been to the docs for a regular meds review. Mentioned i have been feeling exhausted and getting migraines etc. She told me my "thyroid levels are all over the place" and my tsh is 15. I am so shocked, its never been this high. Why would it change so significantly. I take my meds religiously and it was fine last blood tests a year ago. I dont understand what happens. I have been diagnosed with an underactive thyroid for 15 years, this is the first time i have got scared.

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Barracker · 29/11/2019 17:28

I have no useful advice, sorry, but I hope you don't mind my camping out on your thread because my TSH is suddenly 83. I'm going to be watching your replies!

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ivykaty44 · 10/12/2019 07:46

How are you getting on? What has your gp increased your thyroxine dose to? Have the given any type of explanation

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Barracker · 12/12/2019 00:01

I'm still on 50mcg, will be upping to 75 when the prescription is sorted but the endocrinologist thinks I had an episode of hashitoxicosis in the summer. I went suddenly very hyPER at 75mcg and after stopping the levo and waiting for the hyper to resolve, my thyroid is now completely depleted. So instead of returning to my previous subclinical levels of TSH, my thyroid is knackered entirely.

Sometimes as your antithyroid antibodies attack your thyroid it dumps a reservoir of thyroxine into your blood, known as thyrotoxicosis, and you end up hyper. As you excrete the excess, your poor thyroid is left with no hormone reserve and you end up very depleted and very hypo.
My Ft4 is at 4 right now.

It's possible you may have had a similar swing as your thyroid is damaged from the antibodies, albeit perhaps not so obvious as mine - I was definitely hyper, both bloods and unpleasant symptoms.
Are you aware at any point of such a swing yourself?

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forgotmyusernameagain · 12/12/2019 03:43

I went for a review at the docs last week after they took more bloods and she saw an improvement in my tsh which she wasnt expecting so quickly so a "dump" may be an explanation.

I have been increased from 175mcg to 200mcg T4 daily

I have also been diagnosed as diabetic which doesnt surprise me but now means when I feel like rubbish i can't immediately determine the cause as the symptoms i would normally associate with my thyroid function playing up could also be caused by my blood glucose levels.

More bloods in a month and review a week after that.

Bright side, been T4 200mcg since I posted this message and on metformin for less than a week and I can't remember the last time I felt this well.