I am in endoscopic remission on Entyvio infusions every 4 weeks. The relief is amazing.
Despite this, I am continuing to battle fatigue. The kind where you just want to lie down. It is making life hard. I feel unmotivated to do things as the fatigue makes activity feel like a battle.
I also still have joint and muscle pain. Right now I have epicondylitis (tennis elbow), knee pain and pain in my hands. This too makes me avoid activity. My muscles ache for days after a strenuous day activity wise.
I know I should try to get fitter now that my guts are behaving so well, but it feels like an insurmountable barrier. I am unfit and overweight, in large part because of all the prednisone I used to take. Even off it the weight is not shifting. I hate how I look.
Anyone else still have fatigue and joint pain on Entyvio? Any tips on getting moving? I know what to do, I just can't seem to do it. It is very hard to want to walk when it feels like a struggle after only a block.
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Autoimmune disease
Ulcerative colitis fatigue and joint pain.
2 replies
tryingtobebetterallthetime · 08/09/2019 17:56
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