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(17 Posts)
OverInfestedBadger Thu 25-Jul-19 21:56:39

Can anyone help me work our what’s going on? I had been referred to the endocrinologist but the appointment has been cancelled and sent back to the gp.
In early June I had lowish free T4 (11.2) and normal range TSH (0.73).
We retested early July and free T4 is now 10.2 and TSH 0.96.
I will obviously speak to the GP again but she seemed a bit unsure hence the referral.
I have strange weight gain, tiredness, poor memory, anxiety, heavy sometime irregular periods, dry skin and hair etc.

OverInfestedBadger Fri 26-Jul-19 07:34:28

Sorry the reference ranges are for TSH 0.3-4.2 and T4 12-22

ditavonteesed Fri 26-Jul-19 08:00:35

The t4 is very low but your Tsh is not high, I am very new to this (only diagnosed 6 weeks ago with hypothyroid). Quick google gave me this. Sounds like your symptomatic of hypothyroid. Have they suggested starting any medication?

OverInfestedBadger Fri 26-Jul-19 08:44:04

The doctor just referred straight to specialist. But now it has been referred back who knows? I am calling them today

LadyGAgain Fri 26-Jul-19 12:02:37

Definitely sounds hypo (takes one to know one!) and I'd be asking about T3 as well as T4 replacements.

OverInfestedBadger Fri 26-Jul-19 13:24:53

Thanks Lady (and dita). Do GPs diagnose and medicate or will I have to see a specialist?

ditavonteesed Fri 26-Jul-19 15:44:41

My gp diagnosed, I started thyroxine 6 weeks ago and it has been life changing, I'm back to the person I was probably 15 years ago. I hadn't realised quite how awful I felt. Good luck

OverInfestedBadger Sun 28-Jul-19 14:35:14

Thanks Dita, I am keen to get started on treatment if needed. I was hoping for a dr callback on Friday but didn’t get one. Fingers crossed for this week

GlamGiraffe Sun 28-Jul-19 14:39:21

Many gps woll do a trial on levothyroxine and retest as it's the same as the specialist does. As your apt has been cancelled you could return to gp and ask about this.

OverInfestedBadger Fri 02-Aug-19 22:05:12

Pushed gp and have got 50mcg to start tomorrow morning. Fingers crossed!

Teddybear45 Fri 02-Aug-19 22:11:10

Your T4 is low but your TSH is normal. This suggests secondary hypothyroidism due to a pituary cause / tumour rather than anything to do with your thyroid. Most pituary tumours are benign but perhaps your appointment has been cancelled to investigate this as a possible cause. Suggest calling the hospital / consultant back asp as taking thyroxine can sometimes make things worse.

OverInfestedBadger Fri 02-Aug-19 22:57:35

This is worrying, the gp has been a bit clueless, but she said that it had been cancelled in error and it has been re-referred and I have an appt mid-October.

LittleCandle Fri 02-Aug-19 23:09:38

GPs are totally clueless about the thyroid and in my very limited experience of endocrinologists (only seen 2 in 23 years!) they are very little better. Bugger what your symptoms say - there's always another reason for your symptoms. I am in my 50s and now everything is down to the menopause. Pester, pester, pester is the only way to get results.

Miggs2019 Sat 03-Aug-19 23:31:16

Hi I have had Hashimotos for 8 years now and I can not recommend joining HealthUnlocked enough. There is a particular group for people with thyroid issues. It sounds like you have a T4 to T3 conversion problem but people in that group will be more precise than me. There are many knowledgeable people on there. Good luck!

LadyGAgain Fri 09-Aug-19 23:01:15

Hi @Miggs2019 - what is health unlocked and how do I join? Thanks!

Miggs2019 Fri 09-Aug-19 23:23:38

Hiya, it's platform for various forums for different heath conditions. You just find yours from the long list.
you can get an app which is easier to use. Good luck!

LadyGAgain Sat 10-Aug-19 07:11:15


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