Hello, I am hoping for some advice please.
For the second time, I have received zero points for PIP. I honestly cannot believe it as I am in constant widespread pain every day and am in agony frequently.
I have had anxiety and depression for about 25 years on and off. About 5 years ago I was diagnosed with rheumatoid arthritis and I am affected from my jaw to my toes. I have had various medications for this over the years and am currently on the highest level of methotrexate alongside a high dose of sulfasalazine. I take folic acid 6 days per week.
The RA is not fully controlled and I regularly have flares - these are treated my steroid injections or steroid tablets and co-codomol. I avoid taking Naproxen and ibuprofen following a gastric ulcer. I may be moving shortly into biologicals.
I have hidradenitis supprativa - this is also very painful and causes me embarrassment.
I also have Reynauds although this is worse when it’s cold/in winter.
I may also have fibromyalgia - the rheumatologist mentioned this at the last appointment as my pain is affecting other areas/following different patterns.
I also have anaphylaxis - my allergies have a substantial impact on my day to day life.
My depression and anxiety had escalated due to the pain I’m in. I am under the care of a psychiatrist. I take the max dose of Sertraline alongside another anti depressant as I’m not improving.
Im still working full time and I think this is heavily going against me. I have explained the daily struggles I have and the extreme fatigue I suffer. I basically get up - when I can eventually get out of bed (usually with help) go to work and sleep. I have no social life as I cannot face it and am also too worn out to do anything.
I explained every aspect of what I struggle with on a daily basis, inc dressing, preparing food etc. I explained that on a good day I still struggle with most areas and on a bad day I can’t do much at all. I went into detail giving examples of everything after getting zero points first time. I literally went through each point with the assessor after going through the NRAS guidance in detail.
I have obtained a copy of the report and it does not reflect what I said or even my mood. I cried during the assessment yet apparently I was in a good mood and sounded as fit as a fiddle.
I’ve been having physiotherapy and am about to try acupuncture. I have been referred for hydrotherapy. The assessor said I have no restricted movements and this is simply untrue.
How do I prepare for mandatory reconsideration? Will my consultants and gp prepare reports if I ask them or will they only do this if the DWP requests them? They haven’t written to them for any further evidence just relied on my hospital letters.
How long does MR take?
I am only just about managing to stay employed and that’s because my boss is supportive. I have a reduced workload and flexible hours. I use flexi and annual leave to mask sick leave and make up time over weekends. I need to reduce my hours but was hoping to find a treatment that worked well enough for me to stay full time.
I apologise for this extremely long post but would be most grateful for any advice at all.
Please or to access all these features
Please
or
to access all these features
Mumsnet doesn't verify the qualifications of users. If you have medical concerns, please consult a healthcare professional.
Autoimmune disease
Pip Dismay
2 replies
Pipdismay · 18/07/2019 19:50
OP posts:
Please create an account
To comment on this thread you need to create a Mumsnet account.