Possible MS

[ShineBright09]

Hi it’s my first time posting here but I’m in need of support. My partners not at all supportive and I don’t want to worry my parents as they have enough health issues to worry about themselves.

I have been experiencing numbness in my hip which extends to under my rib on one side and difficulty walking for a few weeks, hoping it would go away on its own I ignored it for as long as I could. I went to the GP yesterday and she was concerned due to my age (30) and symptoms I was displaying signs of MS so I have an emergency appointment with a neurologist next week.

I am terrified to be honest and looking for support, and people who have been in the same situation.

Also, can MS only affect the lower body? It also seems to be in my hip where I used to carry my baby daughter. I have stopped carrying her like this now but symptoms have not eased.

[redyawn]

Very sorry to hear this OP. I'm not surprised you're worried.

I note you mention about carrying your baby on your hip. You can end up with a pinched nerve doing this because you are standing for hours with incorrect posture and then various muscles tighten and others loosen, pulling your skeleton and soft tissues out of alignment.

Has your GP looked into this? A sports massage or two would likely sort this out.

[Fightthebear]

Sorry to hear this, it must be very worrying.

No experience of your symptoms but I have a close friend with MS and she has lived with it, worked, and brought up children for over 20 years with very little deterioration in her health over that time.

There are effective medications out there to manage MS these days and it’s not the disasterous diagnosis it was a generation ago.

And it may well be something else anyway. Very best of luck to you.

[ShineBright09]

Thank you for the words of reassurance. I had my initial appointment with my neurologist today. I will be having an MRI and bloods and he will make his diagnosis. Was fairly sure it was 1 of 3 possible outcomes. He seemed to be leaning towards MS. He was very positive and said they can almost stop it in its tracks these days.

[whatisforteamum]

Can I join in please.Ive been recovered too as eye problems are being looked into possibly eye or brain on right side.I was unaware of a problem except vertigo and dizziness two years ago and a bit of balance issues.😕 I googled had I know.My friend has M S.Diagnosed years ago via she test.I am worried.Everything crazy seed for you OP.

[whatisforteamum]

Everything crossed for you OP.Blooming tablet!

[ShineBright09]

So I have just received the diagnosis of Ms. It’s not sunk in properly yet but the doctor was pretty positive, I have relapsing MS and the drugs that they have nowadays are very good. I was very lucky to be seen by my neurologist and diagnosed so quickly.

I have had dizziness for a few years. Doc is unsure if It’s related as I didn’t have any legions on brain, just spine.

[whatisforteamum]

That was quick.I wish you well and hope they get the right balance of treatment for you Shine bright.x

[ChristineBaskets]

Sorry to hear of your diagnosis ShineBright. I've had MS for 15 years and for several years after my first relapse I had no symptoms at all. I'm secondary progressive now but still mobile with a walker and very contented with my life, it's really not a death sentence. I found it easier when I eventually accepted my illness and stopped thinking of the future, or worrying what people thought of me when I started using walking aids. It's just a part of me now and I concentrate on how I feel today.

Important to remember is that everyone's MS is different, don't worry about the inevitable horror stories 'friends' will tell you about 'someone I know with MS'. It's irrelevant to you; your lifestyle, genes etc are different to them and your progress will be unique to you. Think of MS not as one disease but as lots of them. Also please take any stories in the press about 'miracle cures' with a huge pinch of salt. They almost never come to anything.

Having said that about 'miracle cures' however there are several things I would do straight away if I was just diagnosed and which I wish I had known about then as I firmly believe I would be less affected now if I had done. The first being reading The Wahls Protocol (written by a dr who drastically reversed her MS) and following the diet and lifestyle changes as much as you can. I improved massively when I started doing this and so have a great many others. Also look at the MS Gym for increasing neuron plasticity and improving mobility. Daily exercise is so important. Lastly get yourself a high strength vitamin d3 supplement - I take 4000iu daily.

I can't personally attest that treatments in the form of drugs are effective or helpful as I have tried several without success and now only take ropinerole for restless legs, but there is much you can do to alter the course of your disease. 'Let food be thy medicine' and good luck

[dysongirl]

Sorry to hear of your diagnosis
You must have a ton of questions
Ask me if you like
I have it 15years but can trace it back to my teens
Still mobile and alive

[Toddlerteaplease]

I've got MS. It's really not the end of the world. I've had Tyssbri and then Alemtuzemab and it does seem to have stopped it for now. The current thinking is to hit it hard Early. Rather than wait for the damage to be done.

[Yogagirl123]

I also have RRMS, getting a quick diagnosis is a blessing to be quite honest. I know it’s an awful shock. But the sooner you can get on a disease modifying drug the better. I have had Rebif initially, now I am on Tecfidera.

Most people’s path to diagnosis is very long. I was initially diagnosed withTransverse Myelitis in 2012, even though I was told at the same time by my Neurologist that he thought it was MS, but needed to see another relapse to confirm. That relapse happened in 2014.

I have had to make many adjustments due to MS, I would agree with other posters it’s not all doom and gloom. You can still have a good life.

Good luck OP.

[dysongirl]

Hope you get on a med that suits you
There is so many new medications out now
When I was diagnosed in 2003 I was put straight onto Rebif 44
This worked great for me for 9 years until I became immune to all the interferons
My 1st m.r.i. showed multiple lesions on my brain
Try and get started on a drug soon xx