Hi everyone
My son has the symptoms of Crohn’s disease (we are told) but recently had a test and this showed negative. He is now getting so thin and weak - he has severe gastritis. He is not growing either and is extremely small for his age. We see a specialist but every six months.
We have spent five years hoping the next tablet or approach would help him but it hasn’t. I feel that we get little support as a family and although we are a strong unit the pressure is starting to show. It affects every day life because he gets too cold to swim, mealtimes are a strain because he can’t eat enough to help himself get strong, etc..
He has seen dieticians but can’t follow their advice as often the food supplements make him vomit.
He will start secondary school in September and I am worried about this.
I have looked for any organisation that would be able to provide support to our family but cannot find any. Because he is not yet diagnosed we seem to be in a limbo land.
I’m not sure anyone would be able to offer us any advice of where to turn but thought I would post on the off chance.
Thank you for reading.
Please or to access all these features
Please
or
to access all these features
Mumsnet doesn't verify the qualifications of users. If you have medical concerns, please consult a healthcare professional.
Autoimmune disease
Help and advice (Crohn’s / gastritis / failure to thrive)
8 replies
T123bram · 13/01/2019 01:40
OP posts:
Please create an account
To comment on this thread you need to create a Mumsnet account.