I've had alopecia for decades, on and off. Recently my alopecia has become much more aggressive, evolving from the patchy sort to universalis.
I've had steroid injections in the past, and I am just beginning diphencyprone treatment - a fun therapy in which the scalp is painted with a highly allergenic substance in order to persuade the wayward mercenaries of my immune system to call off their attack on the hair follicles and beat up the diphencyprone instead, causing blisters and redness in the process. The success rate is pretty low, but I decided to give it a go.
I just wondered if there was anyone around who wanted to have a moan-in about this condition.
In particular I am finding it harder than I expected to cope with the loss of eyebrows and eyelashes. The cosmetic aspect of that loss is pretty awful. I feel like a space alien. But it is also very uncomfortable: my eyes are so exposed to dust, wind, sweat.
I've just ordered some specialised sunglasses, that have padding around the lenses to keep out grot and wind. Pretty sure they will make me look freakier than ever. Ah well.
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Autoimmune disease
Any alopecia people out there?
47 replies
AlphaNumericalSequence · 25/10/2018 07:30
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