I've been having bowel symptoms with mucous, urgency, sometimes just mucous, sometimes orange, sometimes green, sometimes white, sometimes blood tinged, sometimes diarrhoea, sometimes constipated.
My doctor ran a FC test and referred me under the 2 week wait for a colonoscopy. The FC has come back as 'unrecordably high' (>6000). The GP said he imagines they'll find some sort of colitis during the colonoscopy. Does anybody have any experience of this?
I have had my appointment letter and I'm booked for a flexible sigmoidoscopy. I understand the difference between the two procedures, as I'm a nurse, but is a flexi-sig enough to make the diagnosis? I presume it would be, or they'd go straight for a colonoscopy.
Crohns can be found anywhere in the large colon - and beyond actually! It's worth a full colonoscopy for Crohns. Colitis is generally in the lower part of the bowel. I would call the hospital as they book your procedure (sigmoidscopy vs colonoscopy) based on the referring letter details. As you've since had a change in presenting information with the high FC result I would call their bookings department or ask to speak with the secretary of the consultant you're under/IBD nurse and ask if they would rather do a colonoscopy instead of the siggy.
I forgot to say that I did phone the booking secretary, and she said that everyone gets flexi-sig. Because I'm an ICU nurse, I tend to try to manage everyone/everything, so I said ok, and let it drop.
Today, I had my enema and went to clinic. The Dr said 'with your fecal Calprotectin result being so high, we have no choice but to do a full colonoscopy. I'd be saying that even if you weren't here. I can Flexi-sig you as well, if you want, as you're here and ready, but as colonoscopy views the same area, you may want to just wait for colonoscopy. The choice is yours.' It is an utter waste of resources to use his time, a Flexi-sig, reporting time, sterilisation time, etc., when I know he'll view the same portion of bowel with better prep using Picolax or Klean-prep.
So I'll get an urgent appointment (2-3 weeks) through the post for a colonoscopy at some point. It just would have been better if the booking secretary had been aware of the threshold for flexi-sig Vs colonoscopy. But it won't be her fault at all.
I know, it does. He said he has to view the whole bowel, right up to the terminal ileum. Totally understandable, but just a shame that they wasted a £160 appointment, when they could have used it for someone else.
Hope it's ok to add on to this. I went to the doctor a month or so ago with similar symptoms. I had to wait a couple of weeks to get blood taken and gave a sample at the same time. Results came back from the stool sample and I am waiting for a phone consultation in ten days to find out what they are. In the meantime, I have had a referral to gastroenterology letter. I've booked the first appointment - for the end of June.
I'm just quite concerned about the time this is all taking. I'm assuming calprotectin level must have been high if I have a gastroenterology referral - and I am also assuming that as I clearly don't have an urgent referral they can't be thinking it is anything very serious. But then... nhs and all that - I am possibly being naively optimistic. ..? I could try and get an urgent appointment with gp but would basically have to take a day off work. Which seems daft. But maybe I should.
Morning Op is the telephone consultation with the GP? ten days does seem a long time to wait, it's hard to say what your results may be due to the wait, can I ask what your symptoms are? My DH waited about 6 weeks to see the hospital and he was really unwell.
If it was me I would push the GP to give the results quicker and if they are high the GP can make the referral urgent. Did the GP say what they thought might be wrong?
Thanks for the reply. It will have been nearly three weeks since the results came in - that was the first appointment! The doctors in our city have all recently merged and the new booking system is great if it's really urgent but not so good for anything else.
Symptoms have reduced in the last week - I have mainly been eating porridge and toast for two months. Blood, gas, needing to go a dozen times a day, and then lots of mucous and not much else. And sore sections of abdomen. I've always had a lot of mouth ulcers but now have a fantastic crop. As the stool sample clearly triggered the referral, my money's on ulcerative colitis. But I'm still hoping vaguely it's something temporary.
So I guess diagnosis is not urgent... it would be nice to get some treatment but I can live with it - particularly don't want to do the wrong thing.
Lougle hi , I have just had the exact same result as you and have the same symptoms just wondered what happened with you, did you get a diagnosis? Would really appreciate being able to talk to someone who is going through the same thing as me