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Faecal Calprotectin >6000 (unrecordable)

(10 Posts)
lougle Mon 05-Mar-18 13:30:50

I've been having bowel symptoms with mucous, urgency, sometimes just mucous, sometimes orange, sometimes green, sometimes white, sometimes blood tinged, sometimes diarrhoea, sometimes constipated.

My doctor ran a FC test and referred me under the 2 week wait for a colonoscopy. The FC has come back as 'unrecordably high' (>6000). The GP said he imagines they'll find some sort of colitis during the colonoscopy. Does anybody have any experience of this?

Ottiva Wed 07-Mar-18 09:21:32

I didn't want to leave your post with no reply. I have Crohn's disease with high FC - I can't remember the result but not as high as yours.

It is good that you only have a short wait for the colonoscopy as it will likely give you answers / diagnosis

Best of luck. I was diagnosed last summer and being in limbo waiting for test results was horrible

lougle Wed 07-Mar-18 17:01:28

I have had my appointment letter and I'm booked for a flexible sigmoidoscopy. I understand the difference between the two procedures, as I'm a nurse, but is a flexi-sig enough to make the diagnosis? I presume it would be, or they'd go straight for a colonoscopy.

curragh Wed 07-Mar-18 18:47:59

Depends on where the inflammation is? At the time of my dx I had ileoceacal inflammation detected which would not have been seen in a flex-sig

If the flex-sig is clear will they proceed to a full colonoscopy, MRE or other tests?

StealingYourWiFi Wed 07-Mar-18 18:52:36

Crohns can be found anywhere in the large colon - and beyond actually! It's worth a full colonoscopy for Crohns. Colitis is generally in the lower part of the bowel. I would call the hospital as they book your procedure (sigmoidscopy vs colonoscopy) based on the referring letter details. As you've since had a change in presenting information with the high FC result I would call their bookings department or ask to speak with the secretary of the consultant you're under/IBD nurse and ask if they would rather do a colonoscopy instead of the siggy.

Hope all goes well smile

MollyHuaCha Thu 08-Mar-18 13:34:43

Good advice from Stealing.

Hope you feel better soon.

lougle Tue 13-Mar-18 12:51:45

I forgot to say that I did phone the booking secretary, and she said that everyone gets flexi-sig. Because I'm an ICU nurse, I tend to try to manage everyone/everything, so I said ok, and let it drop.

Today, I had my enema and went to clinic. The Dr said 'with your fecal Calprotectin result being so high, we have no choice but to do a full colonoscopy. I'd be saying that even if you weren't here. I can Flexi-sig you as well, if you want, as you're here and ready, but as colonoscopy views the same area, you may want to just wait for colonoscopy. The choice is yours.' It is an utter waste of resources to use his time, a Flexi-sig, reporting time, sterilisation time, etc., when I know he'll view the same portion of bowel with better prep using Picolax or Klean-prep.

So I'll get an urgent appointment (2-3 weeks) through the post for a colonoscopy at some point. It just would have been better if the booking secretary had been aware of the threshold for flexi-sig Vs colonoscopy. But it won't be her fault at all.

lougle Tue 13-Mar-18 12:52:17

Thanks for replying smile

Ottiva Tue 13-Mar-18 13:58:55

That seems crazy (waste of everyone's time & a precious appointment) but at least a colonoscopy will be more definitive and hopefully you won't have to wait long

lougle Tue 13-Mar-18 14:04:43

I know, it does. He said he has to view the whole bowel, right up to the terminal ileum. Totally understandable, but just a shame that they wasted a £160 appointment, when they could have used it for someone else.

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