My feed
Premium

Please
or
to access all these features

Mumsnet doesn't verify the qualifications of users. If you have medical concerns, please consult a healthcare professional.

Autoimmune disease

If you have an autoimmune condition, have you gone on to develop any others?

23 replies

HouseOfMinnie · 28/11/2017 16:40

Today, the GP told me that people who have an autoimmune condition often go on to develop other autoimmune conditions. Has anyone here experienced that?

My health recently has been poor. I’ve been suffering from CSU (chronic spontaneous urticaria) for a very long time but they’re testing for other things now and I suppose I’m just feeling scared and worried about my future if I’m to develop more conditions? Life at the moment is a bit of a battle. Constantly swelling up and being covered in hives is draining and it’s getting me down. I’m just wondering what other people with autoimmune conditions have experienced and if you have developed others? Thank you.

OP posts:
Report
MissConductUS · 28/11/2017 16:45

What the doc told you is true, but it's also true that people often don't go on to develop other immune system conditions. I've had one (ulcerative colitis) for 14 years and never developed another.

Report
MollyHuaCha · 28/11/2017 16:57

Sadly it's true for me. I started with one in my teens. Now I have a small (growing) collection.

On the plus side. Sometimes the medication to treat one of the conditions also helps the others.

That's a sort of plus, right? Hmm

Report
hevonbu · 29/11/2017 05:29

Yes.

Have you looked over your food intake (type of food)? I'm doing it now. Here's someone's blog, scroll down, there's a good picture a bit down on the page, under the heading "In summary, the rules of what to eat are:" (www.thepaleomom.com/start-here/the-autoimmune-protocol/)

Report
hevonbu · 29/11/2017 05:42

As a side note back in 2003 or thereabouts I suddenly found myself covered in hives from head to toe. I was stressing out over a planned trip to London and suddenly was covered in hives to the point I had to go to the hospital (instead of London), got an antihistamine injection, the trip was abruptly cancelled naturally - and the hives have so far never returned. I read an article about "Chronic idiopathic urticaria and post-traumatic stress disorder (PTSD): an under-recognized comorbidity." - and think that's what happened or something along those lines anyway, it was clearly stress-related and as soon as the stressor (the trip) was removed, so were the urticaria.

Report
Bostin · 29/11/2017 05:46

I have 2 but they came together and I think there is some debate about whether they are part of the same condition or separate.

I worry like you but hope I am one of the lucky ones. I also hope good diet and exercise will help.

Report
Bostin · 29/11/2017 05:46

And stress is definitely to be avoided!

Report
Bellamuerte · 01/12/2017 10:11

I started with coeliac disease and subsequently developed psoriasis, which has got worse as the years have passed. Basically a faulty immune system can result in a number of autoimmune disorders which emerge and worsen as time passes. But nobody can tell you what will happen in your specific case.

Report
Kentnurse2015 · 01/12/2017 10:18

Blimey! I have been struggling with urticaria for a good couple of months now and didn't even realise this was a thing! I have Lupus and have developed hypothyroidism so I guess I am susceptible to autoimmune issues!

Report
misshannah · 14/12/2017 10:06

I have had psoriasis since I was 11 (hereditary) and was recently diagnosed with M.E./CFS. I was told unless I watch what i am doing i will develop Fibromyalgia and possibly others autoimmune conditions.

Report
SweetieBaby · 15/12/2017 08:44

I have crohns disease and have now developed enteropathic arthritis.

Report
Babyisinthecorner · 22/12/2017 22:06

Iritis

Plantaar Fasciitis

Asthma

Condochronitis (genuinely feels like how I expect a heart attack to be)

Joint Impingement

Enthesitis

Restricted limb movements



Sacroillitis


Psoriasis

Eczema

IBS

It's crap Sad No pun intended.

Report
Ollivander84 · 27/12/2017 23:46

Yes. I've asked for a referral to an immunologist

Started with
Cholinergic urticaria (age 12)
Hidradenitis supprativa (age 12)
Vitiligo (age 31)
Autoimmune neutropenia (diagnosed age 31 but they reckon I've had it since about 23)

Report
mumof06darlings · 30/12/2017 15:16

I have hypothyroidism and seem to be developing psoriasis

Report
mumof06darlings · 30/12/2017 15:17

And I'm been watched for haemocrotasis

Report
ArkAtEee · 31/12/2017 17:02

Yep. Developed Crohn's disease at 16-17 and type 1 diabetes at 31. And various other minor things. I'm on immunosuppressants for the Crohn's now so am hoping I won't develop any more!

Report
HippieGoth91 · 31/12/2017 17:48

Yes. Autoimmune arthritis diagnosed at 23, secondary autoimmune lung disease diagnosed at 25. Now have suspected IBD.

Report
MsHomeSlice · 31/12/2017 17:57

Gestational diabetes, Hashimoto's, random hives so far!

Report
RueDeWakening · 31/12/2017 18:50

Yes.

Type 1 diabetes age 9.
Psoriasis age 14.
MS age 33.

That's it so far (I think!) but my mum and sister both have hypothyroidism so I suspect that might be in my future at some point.

Report
mullmepopcorn · 31/12/2017 19:13

Yes, but you may not get anything seriously. I've mild asthma, eczema, ibs, hypothyroidism but none of them cause many problems. They tend to flare up one at a time.

Report
Bouncygirl · 07/01/2018 12:34

Oh yes. Started with Bile Acid Malabsorption syndrome in 2005, then developed Sjogrens syndrome and Lupus in 2012 and was then diagnosed with Crohn's disease in 2016. Have now been told I also have vasculitis.

Report
RaindropsAndSparkles · 07/01/2018 12:39

Good news. Hyperthyroid then Hypothyroid since 1990. Nothing else for almost 30 years. Hope i haven't jinxed it.

Ooh, i once had a massive hive outbreak in the 80s, started the night i moved house and lasted for three days. Awful. Didn't occur to me to go to the dr though.

Report
picklemepopcorn · 07/01/2018 13:40

I used to get hilarious hives. My driv8ng examiner was extraordinarily nice to me after my exam- really over the top nice. When I looked in the mirror, I realised why- red and white lumps and blotches all over my face and neck.

Report

Don’t want to miss threads like this?

Weekly

Sign up to our weekly round up and get all the best threads sent straight to your inbox!

Log in to update your newsletter preferences.

You've subscribed!

raspberrysuicide · 16/01/2018 19:39

Transverse Myelitis in 2010 and Alopecia Universalis in 2014 both autoimmune

Report
Please create an account

To comment on this thread you need to create a Mumsnet account.