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Inflammatory Arthritis help

(7 Posts)
Tippytappytoes Thu 02-Nov-17 14:21:14

Since July I have had severe joint pain. After a number of tests it looks likely that I have inflammatory arthritis linked to my UC even though my large bowel has been removed.

Here's the kicker... I'm not seeing the rheumatologist again until mid December which is when treatment will be sorted.

I have joint pain in nearly all joints and if I am immobile for a while at any point during the day the joints in my hands, feet and knees freeze and its very painful to move them. My shoulders have started to freeze at night time now too. At the moment I am on Tramadol (1 in the am, lunch & pm and the 2 at night to go to sleep) and wear compression gloves and socks. The Tramadol only takes the edge off of the constant ache but not the physical movement pain. I'm reluctant to up my dose (I can take 8 a day) as it leaves me nowhere to go.

Now finally to my questions

Is it worth speaking to my IBD specialist nurse and see if they can take over the treatment from rheumatology?

Does anyone have any advice on how I can reduce my pain? Exercises, diets, spells? I'll try anything as I'm so down.

MollyHuaCha Sat 04-Nov-17 16:06:29

No real advice, but lots of sympathy. flowers

I have inflammatory arthritis too. I have had a lot of relief from immune depressing medicines and from regular chiropractic visits. In between sessions I do the exercises my chiropractor has taught me. They really do help me.

Hope you feel better soon.

Tippytappytoes Sat 11-Nov-17 16:20:08

Thanks Molly

spiney Sat 11-Nov-17 16:33:09

OP I had a bout of immune system related athralgia. With terrible aching joints. Although not as bad as yours sounds it was unbearable.

Somewhere I heard about drinking kefir which is a fermented probiotic goats milk. I ordered a batch from Chuckling Goat in Wales and after six weeks or so ( I had finished the 30 days of kefir) I remember one day thinking ‘ I feel great’. At the very worst it did me no harm.

I hope you find something to help.

Tippytappytoes Mon 13-Nov-17 22:01:08

spiney I've been drinking kefir, but its the cows milk one - maybe I should try goats...

Thank you.

notapizzaeater Mon 13-Nov-17 22:09:19

Do you drink coke or any fizzy drinks, stopping them has really helped dh pain levels,

Madcatter Mon 13-Nov-17 22:16:47

Diet wise, I find sugar, nightshade veg and some cheeses can make it worse so you might want to cut down on these if you eat them (food aggravators vary for different people though).

I don't know much about UC or IBD but if say you should definitely be treated by rheumatology, at least at first. They'll be the best people to get you on a good medication. The right drug really can work wonders. Good luck! flowers

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