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Autoimmune disease

Facebook or mumsnet support group?

3 replies

HCantThinkOfAUsername · 11/09/2017 20:44

It's very lonely in this autoimmune world. Was thinking of starting a support thread maybe a Facebook group if enough interest after a while?
I posted a thread in AIBU the other day about autoimmune and non understanding so thought I'd come over to this side :)

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FuzzyOwl · 11/09/2017 20:48

There are some very good Facebook support groups depending what your autoimmune condition is but I agree things can be very lonely.

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HCantThinkOfAUsername · 11/09/2017 20:55

I'm on a few but there are so many on it :(. Sorry would have helped if I put what! I have SLE, hypermobility, endometriosis and suspected MS/betchets.

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FuzzyOwl · 11/09/2017 22:04

Yes, they are generally very big. Lots of sympathy on the SLE and endometriosis and I have a friend with betchets, so have some understanding of how horrible that can be as well.

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