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Autoimmune disease

Thyroid. TSH 5 - what should I be asking

8 replies

notapizzaeater · 10/09/2017 22:34

I was put in thyroid meds last year for under active thyroid. I'm on 75mg a day.

I've been getting more and more 'tired' having afternoon naps and generally being shattered. Be trying to loose weight but nothing is shifting it.

I wasn't due a review till Jan but requested a retest from the receptionist (lovely village surgery) and I've been asked to come and see the doctor based on my result. When I phoned up and asked she told me my TSH was 5. Does this mean my meds should be increased ? I've. A new GP and I'm still wary of him (based on what he's told my hubby - but that's a whole other story) so before I go in I'd like to know what I'm asking for !

Should I have my dose increased at 5 or is this still 'OK'

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johendy · 10/09/2017 22:40

Read up on the NICE guidelines. They say that once you're on medication - "Aim (in most people) to reach a stable TSH level in the lower half of the reference range (0.4–2.5 mU/L)."
So that along with your symptoms would suggest you need a higher dose.

cks.nice.org.uk/hypothyroidism#!scenario:1

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notapizzaeater · 10/09/2017 22:47

Thank you - will print it out and have it in my bag :-)

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timeistight · 11/09/2017 13:22

It certainly looks like you're due an increase. Good luck!

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Looksprettybad · 16/09/2017 22:49

You really need to kniw your ft4 and ft3 levels. Plus iron, vit d and b vits which are often low if you have thyroid probs. Ask for ylur antibodies to be checked for hashimotos too.

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notapizzaeater · 16/09/2017 23:27

He increased it to 100 mg and retest in 10 weeks.

Funnily I am always anaemia and take Industrial strength pills every day - if I don't I can tell after a day :-(.

Think I might get referred to a specialist as we ave private health cover and get a full check

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Looksprettybad · 17/09/2017 06:54

A private endrocrinologist would be a good idea. Also make sure you don't take iron within 4 hours of thyroid meds as it reduces absorption of the thyroxine.

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notapizzaeater · 17/09/2017 11:06

I don't 😀

I take iron at bedtime

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Bamboogie86 · 25/09/2017 13:40

Hiya. Yes 5 means you need a slight increase in your meds. Btw my tsh has been 5 before and I felt AWFUL, I've also had a tsh of 60! So I know how you feel. You will be zonked. After 3-4 weeks of increase in your levothyroxine you'll notice a huge difference. X

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