Just that really. I've only had ulcerative colitis for just under 2 years, diagnosed for one year.
The first 6 months I put my symptoms down to stress/IBS. When I started bleeding I finally went to my GP. GP diagnosed stress/IBS even though I was bleeding and had no piles. Blood tests all came back normal, but I pushed for a fecal calprotectin and it was through the roof. I was so ill at this point but it was a 3 month wait to see a consultant, so I borrowed off family to go private.
Diagnosis was fairly swift from that point onwards, colonoscopy showed moderately severe pan-colitis.
My problem now is that my UC is out of control. I've been on steroids for a year, asacol and mesalazine enemas have done nothing. Azathioprine landed me in hospital for a week with liver problems. Been on golimumab injections since December but they've done nothing either. Recently started 6-MP, my nurse called yesterday to say my white blood count is too low and I'll have to come off it if it doesn't improve.
Consultant has said they have run out of options and I'm booked in to see a surgeon at the end of the month .
So that's my novella of pain and misery, I'd love to hear yours!
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Autoimmune disease
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18 replies
GohomeRoger · 03/06/2017 17:14
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