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Nice to see this here

(119 Posts)
scaryteacher Wed 26-Apr-17 17:47:28

Great to see that there is a section for those with auto immune disease; it feels quite lonely having one sometimes.

Rhubardandcustard Wed 26-Apr-17 18:01:19

Hello. Yes lonely and awkward explaining it to others, who just don't understand.

scaryteacher Wed 26-Apr-17 18:03:22

Especially if there is no visible evidence that you have an auto immune disease!

standingonlego Wed 26-Apr-17 18:33:32

Thank you for setting up smile Now we need to get some threads running for each topic area smile

Anyone going to put their hand up to be the OP champion for your particular area of specialism?

I have DH with UC, so not quite the right person to start!

scaryteacher Wed 26-Apr-17 18:39:25

I'm willing to take on ITP, as I've had it for 21+ years now.

AuldHeathen Wed 26-Apr-17 19:27:33

Maybe we should have a paragraph explaining what AI disease is. I was gobsmacked when a close friend, over 10 years after my diagnosis - and despite various conversations on the subject - with some such conditions, told me she didn't know what autoimmune meant. I suspect my husband doesn't have a clue either. shock

1nsanityscatching Wed 26-Apr-17 20:05:22

Hello,have posted asking a question. I don't have an autoimmune disease but have a daughter who is currently ravaged by Ankylosing Spondylitis, a son being investigated for Sarcoidosis and a sister with MS which makes me concerned as to who is next tbh.

pimmsy Wed 26-Apr-17 20:16:27

J'y, just quickly because I've got to run ... but great to see this here .. I'm an angioedema sufferer

Ollivander84 Wed 26-Apr-17 20:24:38

Autoimmune neutropenia here. And hidradenitis Supprativa

Rollerbird Wed 26-Apr-17 20:41:40

Ive got a daughter with a rare autoimmune encephalitis. Epilepsy and diabetes.

exWifebeginsat40 Wed 26-Apr-17 20:43:50

psoriatic arthritis here. also had a weird 2 years of chronic neutropenia which eventually just resolved itself.

fizzingwhizbee Wed 26-Apr-17 20:48:15

MSer here!

Rhubardandcustard Wed 26-Apr-17 21:32:31

In my family we have lots of autoimmune but we all have something different. Between us we have RA, IBD, Diabetes, CD, Sarcordocis, Chron's.

SnipSnipMrBurgess Wed 26-Apr-17 21:35:24

Hello, this is nice and new! I have RA and PsA , the Rheumatoid arthritis since I was 4 so a long time now.

I volunteer with young kids and others who have various forms of auto immune conditions.

It's a bit shit at the moment really,I feel like an old lady as I'm in the middle of a flare. I'm 36 and feeling well sorry for myself today

anonymice Wed 26-Apr-17 21:35:46

MS here. My DSis also has it. Hello all.

EsmesBees Wed 26-Apr-17 21:40:22

Hello all. RA and iritis here.

ChishandFips33 Wed 26-Apr-17 21:52:19

Hi RA here - it's nice to be among people who understand

exWifebeginsat40 Wed 26-Apr-17 22:54:36

i'm 44 and only just had my psoriatic arthritis diagnosed. starting methotrexate soon - anyone got any cheering tales about it?

Eragonsegg Wed 26-Apr-17 23:34:28

I have Graves......I feel a bit like the poor relation all your disease names seem much more dramatic!

TheDrsDocMartens Thu 27-Apr-17 09:27:51

Dh has AS & Iritis. I'm not quite in this bracket but have EDS-HMS & Fibromyaligia.

redannie118 Thu 27-Apr-17 09:30:58

Hello ! Scleroderma and Sjorgrens disease, hello everyone!!

Shosha1 Thu 27-Apr-17 09:45:54

Lupus and Fibromyalgia here, diagnosed 20 years ago with Lupus. Only a few years ago with Fibromyalgia.

Resulting with severe Costochonderitis for the last 3 years.

Lonecatwithkitten Thu 27-Apr-17 13:21:34

Vitelligo, mixed connective tissue disease, pernicious anaemia and coeliac. My Rheumy says I only just miss out on meeting the fibromyalgia criteria, but he no longer cares about diagnoses only treatment - I love him.

shadowfax07 Thu 27-Apr-17 13:25:08

Crohnie here, with Chronic Regional Pain Syndrome, an inflamed hip joint, endometriosis, costochondritis, tinnitus and a breast cancer survivor. I keep thinking I ought to leave my body to medical science. grin

My sister has RA, and DP has psoriasis and psoriatic arthritis.

Exwife the methotrexate has really helped DP, one of his finger joints was double the size it should have been, and it is slowly reducing in size.

shadowfax07 Thu 27-Apr-17 13:27:59

Oops, forgot to mention the vitamin B12 deficiency as well. blush

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