Hi all,
This is the first time I've had the courage to post on a forum like this as I've found myself in a very stressful time.
This is my first pregnancy, I'm 24 and never had any health problems. I conceived after 2 months of coming off my implant and the baby was very welcome and positive news for us.
During my dating scan, we opted in for the combined screening test with not much thought, we just accepted it as routine and didn't think the results would come back with anything negative. Sadly, we received a 1 in 3 for T18 and very low PAPP-A of 0.08 which prompted a quick decision for a Harmony test at Portland Hospital.
Once again, the tests have come back with a 99/100 result for T18 and we are now awaiting a referral for amnio at King's Hospital through the NHS. We chose amnio to give us the most accurate result, as through reading various articles, CVS could be done quicker but could potentially not give us a clear picture if in the smallest chance it could be my placenta that's giving off this result.
Both ultrasounds through NHS and private didn't show anything of concern. It was just the blood tests that showed a high risk.
I have reached out to ARC who are the lovliest people I have spoken to so far but as professionals, they can't give me anything hopeful to go by.
This is why I'm reaching out to you, with a couple of questions which may help me understand what's happening in this tough time.
Firstly, has anybody experienced the referral process for amnio to Kings? I asked for the referral a week ago (I'm 15+2 right now) and still haven't heard back with a date for the test. How long do people in this situation wait?
Secondly, has anybody experienced a false positive NIPT, or carried on regardless of the result and seen a baby be born with minor health problems, or is T18 always a very harsh sentence for the child?
Thank you in advance for this, I appreciate it's a very long post.
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3 replies
Cucumb3r · 30/09/2019 12:57
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