My feed
Premium

Please
or
to access all these features

Get updates on how your baby develops, your body changes, and what you can expect during each week of your pregnancy by signing up to the Mumsnet Pregnancy Newsletters.

Antenatal tests

Cystic hygroma

3 replies

loutyre · 20/06/2019 20:02

10+3 weeks pregnant. Scan yesterday showed fluid on the back of babies neck. I need to hear any and all stories you ladies have please. I have been sent away with little information and google is not my friend

OP posts:
Report
loutyre · 21/06/2019 16:20

Please

OP posts:
Report
Seahawk80 · 21/06/2019 20:55

Hi, my sister has a cystic hygroma. I'll be honest I don't know the hugest amount about it as it's one of those things where I just grew up with it but she has a good life, lots of friends and is married with 3 children. She had a very severe case and wasn't diagnosed until birth, she had surgery when she was a few weeks old and had to have a tracheotomy afterwards. Feel free to DM me if you want to chat, I'd have to ask her but I'm sure I could put you in touch x

Report
BlessedMamma · 24/06/2019 21:29

I went through the same thing and was lucky enough to have a positive outcome. All I seemed to find were stories with sad outcomes so I hope this helps to reassure you a little bit. During my pregnancy I was told the baby had a lot of NT fluid which was terrifying. It measured 6.8! I opted to have an amino but ended up having a CVS because of the lack of amniotic fluid. The results came back clear and the same for the micro array. I also had a heart scan that came back fine. I now have a very healthy, happy 7 month old. She has a slightly chunky neck at the back but it's barely noticeable. We've had check up appointments with the paediatrician and cardiologist but they can't seem to find a reason her having such a large nuchal fold. Apparently there's a chance she may have a rare genetic disorder but for now there's no reason to carry out anymore tests. I hope it all works out for you.

Report
Please create an account

To comment on this thread you need to create a Mumsnet account.