Get updates on how your baby develops, your body changes, and what you can expect during each week of your pregnancy by signing up to the Mumsnet Pregnancy Newsletters.
This is a Premium feature
Cystic hygroma(4 Posts)
10+3 weeks pregnant. Scan yesterday showed fluid on the back of babies neck. I need to hear any and all stories you ladies have please. I have been sent away with little information and google is not my friend
Hi, my sister has a cystic hygroma. I'll be honest I don't know the hugest amount about it as it's one of those things where I just grew up with it but she has a good life, lots of friends and is married with 3 children. She had a very severe case and wasn't diagnosed until birth, she had surgery when she was a few weeks old and had to have a tracheotomy afterwards. Feel free to DM me if you want to chat, I'd have to ask her but I'm sure I could put you in touch x
I went through the same thing and was lucky enough to have a positive outcome. All I seemed to find were stories with sad outcomes so I hope this helps to reassure you a little bit. During my pregnancy I was told the baby had a lot of NT fluid which was terrifying. It measured 6.8! I opted to have an amino but ended up having a CVS because of the lack of amniotic fluid. The results came back clear and the same for the micro array. I also had a heart scan that came back fine. I now have a very healthy, happy 7 month old. She has a slightly chunky neck at the back but it's barely noticeable. We've had check up appointments with the paediatrician and cardiologist but they can't seem to find a reason her having such a large nuchal fold. Apparently there's a chance she may have a rare genetic disorder but for now there's no reason to carry out anymore tests. I hope it all works out for you.
Please login first.