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Waiting for amniocentesis results - terrified

(16 Posts)
NK7995a1caX11eb0ed0bae Mon 23-May-16 18:48:02

I was given a 1/45 risk of down syndrome so opted to have the amniocentesis. That was done last Wednesday and I was told the rapid results would be back by today (Monday) but I haven't had a call. I tried to call them but there was no answer so presumably the results didn't arrive and they've now left for the day.

It's been such a stressful wait! My partner is currently deployed so I'm here on my own. I've spent the weekend madly googling and came across a suggestion that if the rapid results are positive they need to be retested which could delay the phonecall. Has anyone heard of this? Is it true??

I'm desperately trying to stop myself from panicking but I'm struggling. Has anyone else had delayed results? What was the outcome

DartmoorDoughnut Mon 23-May-16 18:52:28

That's so not on of them to call you! Have you checked email just in case? I doubt they would've but you never know flowers

Not something I've had to wait for but didn't want to read and run. How long is left of the deployment? Is your partner aware or not in contact?

Jodie242 Mon 23-May-16 19:01:21

I know how horrible that wait is sad I had mine done on a Thursday and got the 'rapid' results back the following Wednesday. My consultant did warn me that sometimes they're not able to produce the rapid results and in those cases then you have to wait for the full karyotype to be completed but he also assured me that this is no indication of a bad result. I hope you get your results tomorrow, best of luck xx

NK7995a1caX11eb0ed0bae Mon 23-May-16 19:02:47

He's away until September but thankfully I'm able to speak to him most days. He knows about the risk/test but I'm careful not to show how worried I am because he'd only worry about me even more. He has a really stressful job and I don't want to make it harder than it already is.

I've obsessively checked email/messages/call log all day but nothing. I'm driving myself crazy!

NK7995a1caX11eb0ed0bae Mon 23-May-16 19:06:44

Thanks Jodie, that's good to hear. They didn't say anything at all like that to me, just that I'd have a call on Monday. As 5pm rolled around and I couldn't get hold of them my calm evaporated!

DartmoorDoughnut Mon 23-May-16 19:14:40

Jodie's experience, whilst equally wrong, at least sounds reassuring flowers

Deployments suck, glad he's in contact though

YorkieDorkie Mon 23-May-16 20:01:25

I wasn't quite in the same boat but I had the CVS last year. I remember the anxious wait like it was yesterday and I don't envy you. Please try not to worry - 1:45 is still pretty low even though it's "high risk". I was also in this category and Doctor Google is not your friend. Let us know flowers.

PeppasNanna Mon 23-May-16 20:03:58

flowers for you Op. X x x

NK7995a1caX11eb0ed0bae Mon 23-May-16 20:52:47

Thank you all for the good wishes, it's so much appreciated.

Dartmoor, are you speaking from experience?! Yep, deployments are rubbish. This is our first pregnant one and I can't say I'm loving it. Homecomings are bloody wonderful though!

I know statistically we have a much greater chance of everything being ok than not, I just can't seem to keep a lid on the building worry. It seems 5 days is my limit! I shall be up bright and early and straight on the phone to the hospital. I'll update too.

Thanks again, it's been lovely just to blurt the worry out.

KittyandTeal Mon 23-May-16 21:28:45

Sorry you're having such a stressful time.

Quite often the wknd can hold rapid results up. It is true though that results are delayed because a positive result needs to be double checked. It was the reason our results for dd2 were delayed. However, it doesn't mean that all delayed results are positive as in; all positive screens will be delayed but not all delayed screens will be positive iyswim.

In some cases they will pick up a mosaicism or can't get a quick screen so they will need full karyotype. It usually happens if there is blood mixed in the fluid in cases of an amnio so they can usually give you a bit of warning.

Give them a call first thing tmrw lovely, if for no other reason than to take a bit of control back, the waiting and lack of control is horrendous

DartmoorDoughnut Mon 23-May-16 21:35:22

I am, although he's out now the old duffer grin plus he's shocking at staying in contact, regularly 2/3 weeks between calls on the last tour!

Chin up and wine wine of the virtual sort!

NK7995a1caX11eb0ed0bae Tue 24-May-16 10:58:12

I called this morning and the initial results are clear!!! Lovely feeling of relief but obviously we've still got the wait for the full screen results. I'm sticking with the positives for today though!

Kitty thank you for both the information and the reassurance. I'm sorry your knowledge is due to a positive result. I hope life is peaceful and kind for you now.

The positive retest delay doesn't seem to be very well known... no doubt for very good reason. I certainly panicked and I couldn't even confirm it to be true.

Dartmoor - 3 weeks without a call??! He's a brave (or foolish?) man! Nice that he's out now though. I got the results about 10 minutes before a surprise facetime from DP. Lovely way to start the day!

Once again thank you all for the kind words and support.

KittyandTeal Tue 24-May-16 12:58:08

That's great news.

Often in theses circumstances the full karyotype will come back clear too, they just have to run it in case.

I would definitely keep the positive feeling.

Jodie242 Tue 24-May-16 17:44:14

Oh I'm glad your results have come back clear smile at the time the wait is just dreadful but when you get the call, and it's the news you were hoping for, it's totally worth it :D

DartmoorDoughnut Tue 24-May-16 19:39:25

Fab news AND FaceTime, what an awesome day!

YorkieDorkie Wed 25-May-16 10:02:15

Brilliant news smile

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