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Anyone else carrying a c cam baby?

(7 Posts)
Clairejessica123 Wed 24-Jun-15 18:51:16

Went to the specialist today who has confirmed baby has a c cam in his lower left lung lobe. Wondering if anyone else out there is also going through this?

KittyandTeal Sun 28-Jun-15 08:59:50

I'm sorry you're going through this and that no one has answered your post.

I have no experience of this diagnosis. Have you had any contact with arc? They are a wonderful charity that may well be able to be more helpful to chat to than people here. They will be able to find someone with the same or similar experience for you to chat with or email.

Clairejessica123 Sun 28-Jun-15 15:44:36

Thank you. I don't think it's very common but thankfully the outcome is looking more positive than first thought, I have found a couple of great Facebook groups which have been really helpful with understanding a bit more.

KittyandTeal Sun 28-Jun-15 15:47:15

I'm glad you've found some support smile

mrsbigz Thu 09-Jul-15 00:05:09

hello, sorry you're going through this worrying time. just wanted to share, in my last pregnancy my DS had the same diagnosis as your baby - discovered at the 20wk scan. we were referred to a specialist at the John Radcliffe in Oxford, where they monitored it. added complication for us was a risk of my delivering early (as had a previous prem baby). my waters went at 30wks, and he was delivered at 31wks via emergency section + due to the potential respiratory problems. he thankfully was able to breathe on his own and only needed minimal oxygen during his time in special care. we had a follow ct scan at the Radcliffe when he was 12wks old, and the results came back clear - the ccam had disappeared / righted itself. while I do believe there was a problem, I think sometimes our modern scans are so hi tech that they pick up things that sometimes, unnoticed, would sort themselves out! I hope this had given you some reassurance, is you have any questions please feel free to pm me x ps, my ds is now 3.5 and no issues whatsoever!

Clairejessica123 Fri 10-Jul-15 17:44:00

Thanks for sharing your story smile we have our next scan on Friday for measurements and we are being seen at the Rosie hospital on Cambridge. His ccam is quite large but his cvr is low so the team are hopeful.

Chottie Fri 10-Jul-15 17:51:25

Hello - I'm so sorry you are having to go through this worrying time.

Although I have no experience of c cam, I do have first hand experience of the Rosie. I cannot speak too highly of the support and care the Rosie Team and all the other teams there gave our DGC and his family. Wishing you well xx

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