Fetal MRI - any experience?(20 Posts)
This sounds just so hard and so sad. Has their DD been born? I think it is so tough, none of it is an exact science and whilst I suspect all of you are looking to do something, anything to help the situation, it may just be that it is terribly bad luck. I hope someone more knowledgable comes along with more practical advice.
Sorry for asking. I wasn't totally sure from your post. So sorry to hear this. My only experience, and I appreciate it is not the same, is having been referred for fetal scans twice, in two different pregnancies related to my health, for the same reason, but to different hospitals and specialists. The first one was very serious, very thorough and slightly pressimistic. The second was slightly scornful of the referral, had a very quick look and declared all ok. Thankfully both DDs ok but made me realise how medicine, despite the science behind it, can be influenced by personality.
So sorry about your niece. I've been through something similar and work in the medico-legal profession (although I'm a lawyer rather than a doctor). I can't say whether an MRI should have been offered but it is likely that they should have offered an amino and/or counselling. Your DSIL needs to get copies of all of her maternity notes and her daughters records and get some proper advice. I would suggest that she gets in touch with AVMA, they are a charity which deal with victims of medical negligence and should be able to point her in the right direction.
So sorry to hear this. A really heart breaking situation for your family.
I had a fetal MRI. It diagnosed corpus callosum present but thin and offered a centile range. I'm sorry. I know this is information you want but also know it's of no help.
I thank God everyday for our outcome and wish others had the same.
Ok, but hope not to offend...
At 20 week scan our anomaly was diagnosed, twice (sonographer then consultant, 2 different sonogram machines). The same a week later. I immediately said during the first 'checks' I wouldn't have the amnio, for me personally the risks were just too great. I worried that they wouldn't get a proper sample so we wouldn't know any more. I worried about the risk of miscarriage. And daft as it sounds I was worried the needle would jag my son.
In my case this wasn't really related to the mri, they suggested the mri as it's a different type of technology that provides different information.
So I didn't push for the MRI, does this help?
It was a hellish ordeal, worst time of my life.
Really sorry to hear about your niece.
I think only an investigation into the case could reveal whether there were indications for fetal MRI, and possibly why there were different conclusions on different scans, also whether all guidelines and recommendations for antenatal care were followed. Hospital might even be willing to do it without a formal complaint (so they can improve their practices), but if not, a formal complaint is not unreasonable, imo.
I think it is worth asking for, to get more clarity on what has happened and what may be needed to be done differently if they have another child, as well as help others to avoid similar situations.
My experience is somewhat different, with hospital's mistakes in postnatal care (luckily, overall outcome was good with no lasting consequences), but the hospital did internal review and changed some practices as the result, also started using our case for teaching. So I'd say it is worth asking to investigate, if they don't suggest that themselves.
I really want you to know you're all on my mind tonight, everyone on this thread and those who might bring it up in the future in an awful and desperate Google search.
To my shame, I spent my whole pregnancy hoping it had all been one constant, on going mistake. It wasn't but thankfully we got to wake up from our nightmare. I cannot fathom what a false all clear must do to someone.
I'm so sorry to hear about your niece.
I had a fetal MRI with my youngest son. It was indicated by scans which showed both fluid in the neck and blood in his belly and bowel. It was the blood in his case that made them push for it. I had also refused any invasive testing such as amnio etc and they wanted a better idea of what was happening. That his bowel was at least echogenic was clear on the scans. Sorry if that's not much help.
My heart aches for what your dear sister and brother are going through,and I'm thinking of you all.
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