Waiting for amnio results - so down :(

[Marma1ad3]

Hi, this is my first post here but I want to just offload a bit before I go more mad than I feel already.

My quad test gave us a 1:5 heart stopping ratio for a genetic problem (not sure about the specifics, I haven't seen any actual data). I got this on Monday afternoon. I was squeezed into a clinic on Tuesday lunchtime for my amnio which was brilliant but the wait since has been horrid.

I just called the fetal medicine team at the hospital and they said probably no results until Monday now. I don't know what the hell I'm going to do with myself all weekend :( I have a 2 year old and I just want o hide, which isn't fair on her.

I'm so scared of the results, we know what we want to do either way but we just need to know now.

Anyone got any advice for distraction? It's already been the longest week of my life :(

[Monten]

Hi Marma1ad3

So sorry you're going through this. I know what its like, I had a CVS on Tuesday and was really hoping for the results today but no luck.

The waiting is terrible. I was so resigned to the fact it was going to be awful news (if you look at the other thread you will see I had a lot of bad results) that I almost felt quite calm. Today I've been stupidly getting my hopes up that maybe the news will be good - I fear I am just setting myself up.

Anyway - 1 in 5 means 80% chance that everything is absolutely fine. Hold on to that thought. And at the end of the day, its just numbers.

No advice for distraction unfortunately - I can't concentrate on a single thing. Just be nice to yourself

[stinkypants]

Really feel for you. The only thing I can suggest is to keep as busy as you possibly can and have chatty people around who will drown the silence. I remember waiting 2 weeks to know if I had miscarried, several years ago now. I was beside myself. Knew it was highly likely though (and was devasting when finally confirmed but now have 2 dc and 3rd on way so the time and joyful things that followed have helped that part fade away).
I would keep the statistic in my mind and remember that, if I'm reading it right, that's 80% in your favour.
xxx

[lljkk]

Sorry, no advice for distraction. :(

[Marma1ad3]

Monten I'm sorry you are in the same position too :( utterly crap isn't it

[AnyCrunchyCarrotFucker]

I have been there and to be honest pretty much blocked that whole time out of my memory. Sorry you are going through this.

However, my amino came back clear after a stonkingly bad 1:3, so it can and does happen that it is just 'one of those things' and on the odds there is an 80% chance all is fine.

Good luck and fingers crossed for you x

[grobagsforever]

So sorry you are gping through this. I just went through it at Xmas with 1/15 odds of downs, waited 5 days for all clear. I read a lot, trashy novel s yo help me escape. The odds are still in your favour. Did you also have nuchal screen? Bloods alone aren't very reliable.

[Marma1ad3]

Urgh I'm not sure today could go much slower.

[lljkk]

What do you have planned for tomorrow?

[SaggyOldClothCatPuss]

I went through this a few months ago. It's HELL. All I can suggest is just do whatever you can to get through. I stayed home, wallowed in bed and watched black and white films. I spent a lot of time sobbing and a lot of time googling stuff that anyone in this position should NEVER google.
In really hope that you all get the results that you need.
Whatever happens, in a couple of months, this will all be a distant memory that you have lived through, dealt with and filed away in your mind under 'total shit times of my life'.
Fingers crossed all round. xx

[Jacksmania]

Just want to offer my support and send you massive (((((HUGS)))))). We had a false positive quad screen when I was pregnant with DS, amnio the next day, and the waiting was horrible. The hours just dragged while DH and I sat on the couch staring holes in the wall.
Are there any jobs need doing in your house that you could do and get done? Anything you've been putting off?

[grobagsforever]

How are you today OP?

[Marma1ad3]

Hiya, I actually got some sleep last night which is a start I guess although I already have butterflies in my tum about tomorrow :(

Going to take my LO to the park to feed the ducks today, get some fresh air. She's really annoying atm and I know it's because she feels/is aware something is up with mum and dad but I could do without it.

My bump has been really achey and sore the last 24 hours too and I could do without the reminder of being pregnant :(

[lljkk]

I want so much to say the right thing that will help you get thru this, but runs risk of being insensitive & trivialising if not the perfect thing you need to hear (sorry).

Just hang in there. It is only 48 more hours before you'll have some certainty.

[Marma1ad3]

Bugger, the rising panic is starting already :( I feel sick and short of breath :( I'm so frightened and anxious.

At the same time I need to know and don't want to know.

I want to say thank you to those who have posted, it means a lot. I've read lots of other threads with people in a similar position but I don't see many positive outcomes for such high odds :( I don't know what I'm dreading more, learning the results or telling people.

For very personal reasons we won't be going through with the pregnancy if it is a positive result (and another thank you for being able to post that here without fear of saying the wrong thing). I've already been in touch with ARC and will contact them again.

What do I tell my mum :(

[Jacksmania]

Would your mum not be understanding of your decision? Have you told her about the quad screen? If you haven't, and if she wouldn't be supportive, then could you just tell her, or find words to suggest that you miscarried? Or had what's called a missed miscarriage? If you've already told other people about your pregnancy, that could be the way forward. Your decision is no-one else's business, and you need no-one's judgment to make this difficult time even harder.

[Marma1ad3]

Thanks. No I don't think she would be supportive, she is quite religious (I'm very much not) and is quite judgemental too. I love her but I don't think she would understand. It feels shit for me to have to lie though, it's another thing that I will make sure my DD won't feel she has to lie to me that's for sure.

I think for work we are just going to say we lost the baby and leave it there, I'm not friends with anyone enough to say any more. They know I'm pregnant

Fucking hell this is so awful :( I wish I could get drunk tonight even!

[Jacksmania]

Oh :( - and if you ever needed a mum's support, now would be the time, wouldn't it. I am so sorry :(
Best just to tell her you had a MMC then, I think?

What about friends? Have you got anyone around you whom you'd feel comfortable telling? It's such a hot potato topic :(

It really is awful.

(((((((HUG)))))))

[SaggyOldClothCatPuss]

{{{{hug}}}}
It won't be long now. We are all here.
What are you doing tomorrow? Can I suggest staying near home? I waited in all day on results day, then had to go out in the late afternoon. I'd just got where I was going, about 10 miles from home and the call came in. I have no idea how I got home.
Don't give up hope yet. I know you find a lot of negative stuff online, but remember that people only post for support to deal with the shit stuff.
1 in 5 is still 4 positive stories for every 1 negative.
As for your mother, I had the same issue with some of my family. What worried me more than almost anything was knowing that I would be judged for terminating. I decided, if it was necessary then I would swear DP to secrecy and then tell everyone we had lost her.
Thankfully, it never became an issue, because it would have been a burden to carry, but I would have done it. It's just a shame that it even might have come to that.
Im not religious, so I won't say I'm praying for you, but I sincerely hope that this time tomorrow you are happy and relieved and settling down to enjoy rest of your pregnancy. xx

[Jacksmania]

((((((Saggy)))))) :(

[SaggyOldClothCatPuss]

I'm ok. Everything is good.

[Marma1ad3]

Thanks saggy, that is really helpful of you. Yes I think a big conversation (ha! I mean ANOTHER big conversation) with my OH looms about what we say and to who. I have told my 2 best friends, one would do the same, one wouldn't neither judge me at all. Why can't family be the same :(

[Jacksmania]

Well, friends are the family you choose, right? :)

Do you think your OH will have different ideas to you, as to what to say?

[ImASecretTwigletNibbler]

Will you get the results by letter or phone? If it's by letter then ask to pick it up direct from the hospital rather than waiting for the post. I did this with some scary results I was waiting for recently and it cut out a day or two...

[stickysausages]

So sorry you're going through this :(

Hope you get the result soon, and its good news.

If you get bad news, I agree that suggesting a miscarriage would be best, terrible your mum wouldn't be supportive though!

Thinking of you and your husband x

[Marma1ad3]

No they will call me and if I haven't heard by 3 I'm going to ring the and I don't care if they are as unhelpful as the woman was I spoke to on Friday.

My OH is great at times like this, and will help me with his family and what to say. It's my mum that I'm worried about :(