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waiting for Cvs results, scan risk of one in two feeling sick.

(44 Posts)
Aoifebelle Fri 24-May-13 10:36:03

On Wednesday I had a cvs following a 12 week scan that came back with a risk of one in two for a chromosomal disorder. All markers were bad. Nucal 4.9, hcg 1.6 MoM, PappAs 0.4 MoM, no nasal bone and other soft markers. Results of cvs are due today, and I feel sick. Basically even if chromosome are ok, very high chance that something else structural has gone wrong. We are heartbroken

We have pretty much decided to terminate if the results are confirmed to be as bad as we think. What I want is for things to move as quickly as possible. Any advice for how to help this happen.

Abra1d Fri 24-May-13 10:37:32

No advice but wanted you to know I am thinking of you. This must be very distressing.

FattyMcChubster Fri 24-May-13 10:40:46

Just wanted to say I'm thinking of you and here if you'd like a hand hold x

Asparagui Fri 24-May-13 11:18:51

No advice but thinking of you. I had a 1 in 10 risk and I remember the terrible fear and the awful waiting. I was lucky and all was OK but I found the ARC helpline invaluable for information. Could you contact them?

Mama1980 Fri 24-May-13 11:28:14

Am here for a virtual hand hold. I remember the waiting with ds2 after bad scans. X

Aoifebelle Fri 24-May-13 12:36:27

Just heard cvs results not due back until after five. Earliest possible I will get to see a consultant is Tuesday, if I am lucky. Because of bank holiday and half term reduced clinic for the next two weeks ( ironically was due to go on family holiday on Wednesday, would have announced pregnancy there, now prob won't be able to go and will be giving some very different news). I have no idea what next. It feels like I am having my finger nails removed very slowly one by one. It's just a matter of time before I will have nothing left to hang on with.

DewDr0p Fri 24-May-13 12:37:48

Holding your hand OP x

newbie6 Fri 24-May-13 13:24:46

Just wanted to say I'm thinking of you, ARC are apparently very good for support and information. X

Startail Fri 24-May-13 13:26:40

Handholding here too.

Aoifebelle Fri 24-May-13 13:40:05

Thanks, just spoke to arc they were fab, but can't help me unless I get a referral from the hospital, or I pay which isn't am option as I spunked all my money on a harmony test and cvs at the foetal medicine centre.

Asparagui Fri 24-May-13 16:46:37

Thinking of you as 5pm approaches. You sound very brave.

Might BPAS or Marie Stopes be able to act more quickly if that needs to happen? I have no idea but its all I could think of.

Aoifebelle Fri 24-May-13 17:15:31

Results back, not good, t21 with high likelihood of additional complications. Very unlikely pregnancy is viable. NHS came through in the end. Appointment on Tuesday, termination on Thursday, but all my symptoms have disappeared, feels just like what happened when I miscarried last year. Feel like I am in total robot mode. Now I need to tell my mum, she didn't know I was pregnant. We were due to go on holiday with my folks on Wednesday. I fear this may break her.

Abra1d Fri 24-May-13 17:26:35

I am so sorry. Do you think there's any chance you might actually be having a miscarriage now? I suppose that might make this a tiny, tiny bit more bearable. I hope you have lots of support, either way.

jmf294 Fri 24-May-13 17:30:31

I am so desperately sorry Aoife.
I was so hoping for good news for you.
Thinking of you and sending you hugs and I hope next week is a gentle and as peaceful an experience as possible. Xx

Mama1980 Fri 24-May-13 17:35:10

I'm so very sorry xxx

Pancakeflipper Fri 24-May-13 17:39:36

I am so sorry for you too xxxx

DewDr0p Fri 24-May-13 17:45:52

Oh Aoife I am so so sorry ((()))

Aoifebelle Fri 24-May-13 17:57:29

life sucks, but this forum is fucking amazing. The support I have had on here had been a real life line, particularly as all the women in my family have had completely uneventful pregnancies. They are lovely and really supportive, but they will never really understand. Thank you all xx

Startail Fri 24-May-13 18:22:39

I'm so sorry, sending you strength and best wishes. xx

FattyMcChubster Fri 24-May-13 19:26:27

Aoife, sending you prayers and strength to get through this. We're always here if you need to talk. thanks

mb2512cat Fri 24-May-13 20:14:55

Very sorry to hear your news. I have been through similar.



Asparagui Fri 24-May-13 22:39:20

I'm so sorry Aoife. Keep strong and I hope next week goes as smoothly as possible.

newbie6 Sat 25-May-13 01:28:48

I'm so sorry, thinking of you and your wee angel, take care xx

Abra1d Sat 25-May-13 12:05:46

How are you today, Aoife?

Aoifebelle Sat 25-May-13 12:22:06

Parents told, holiday cancelled, termination booked. Have no idea what to do with myself now.haven't left the house in days, not sure if I trust myself in public. Pregnancy symptoms have returned, which weirdly means I am managing to eat and sleep a bit. Dreading that lurch from pregnant into not pregnant. All the hard won and subtle symptoms just evaporate like they were never there, and your body just gets on with life. If only my head could follow suit

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