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to think that hospital and school should cater for dd

(43 Posts)
sarah293 Tue 07-Jul-09 18:17:32

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Milliways Tue 07-Jul-09 18:22:43

That's really tough! I agree, the hospital at least should be able to accommodate - although I can sympathise with the school kitchen.

Maybe you shouls ask for a benefits contribution to replace what you loose by not getting her free meals.

BTW - I love your DD's pictures - she is soooo cute

littleducks Tue 07-Jul-09 18:24:42

I think that the hosp should byt tbh school is stretching it a bit (sorry) if she could just have a versuion of what the other children have it would be ok, but indivual cooked meals just wouldnt be practical

I think that in special needs schools they do tend to be able to offer mmore specialised diets and you would therefore get free meals

Fruitbeard Tue 07-Jul-09 18:26:29

YANBU (especially with the hospital!), but is there really nothing she can have at school? If she's on a ketogenic diet, she could have salad leaves/green veg of the day with added olive oil or butter and either cheese or meat (I know you're veggie, Riven, but not sure if DD is or not?). My understanding of school meals is that they are supposed to provide some sort of salady alternative so a cheese salad/cheese & green veg with a slosh of oil or butter shouldn't be beyond their capability.

Forgive me if I'm remembering wrong, but does your DD have a feeding tube? Is the problem that they won't liquidise the food, or would they do it for you if it was a 'standard' school dinner (if that makes sense?) If the latter, I don't see why they can't accomodate you.

I'm not surprised you're knackered

Angstisme Tue 07-Jul-09 18:26:35

I don't understand why they can't cook her some veggies in butter, surely they are cooking the veg anyway ?

MummyDragon Tue 07-Jul-09 18:29:17

I agree with Milliways - can you get some sort of extra benefit to make up for the fact that DD isn't receiving her free school lunch? (hhm, I think I know the answer to that one already ..)

Absolutely pants that the hospital can't do it. Don't get me started on the NH"S" though. Just don't.

Sorry this is happening to you, Riven - seems you have so much on your plate already.

silverfrog Tue 07-Jul-09 18:30:59

agree that it is a PITA.

dd1's school cannot accomodate her dietary issues either (gf/cf), and they recently said that children eat school meals, or go home for lunch shock. so dd1 comes home.

we have a meeting on Thursday abotu ti, as it is Not On. She was doing fine when she could take in her own food, but they reckon that the children havig dofferent foods leads to issues with them all wanting each other's lunches hmm

so it is much better to just apply a blanket policay that means that dd1 has shite to eat every day (as they don't bother with a decent alternative for the gf kids) hmm hmm

MissSunny Tue 07-Jul-09 18:38:18

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mumzy Tue 07-Jul-09 18:51:04

I think YABU to think that the school meals service can cope with a ketogenic diet. Though medically prescribed they are incredibly complex diets and what the child eats during the rest of the day has to be calculated into the various allowances. However YANBU to feel hospitals should beable to provide a ketogenic diet do you have see a dietitian as they should beable to sort it out for you?

sarah293 Tue 07-Jul-09 19:30:45

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cheshirekitty Tue 07-Jul-09 19:50:40

Riven, have you sat and talked to a dietician? If the diet is prescribed it should be given by the hospital. It is like prescribing chemotherapy and then the hospital not having any. It's mad.

Mind you, I have seen some of the 'special diets' that are given out to patients!!! Some of the stuff on the diabetic trays are unbelievable.

sarah293 Tue 07-Jul-09 19:53:13

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sarah293 Tue 07-Jul-09 19:53:22

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IneedacleanerIamalazyslattern Tue 07-Jul-09 19:55:33

My mum is a dinner lady and she is 100% on your side.
She is relief cook for all the schools in her region and there is only 1 that there is a pupil at that cannot have modified meals to what is on offer and she was absolutely disgusted by the lack of support offered to this boy.
Lickily he is academy so she spproached the boy asked him what he could have and tool petty cash and went in her own time to buy food to cater exclusively for him for the week.

Actually half way through typing that my mum called and we were talking about your particular requirements and some of the things allowed on that diet and she says that you don't have a very good cook if they cannot/ will not cater for it. She sayd your dd may not have the most varied diet in the world if the school cater for it but everything on the lists she has seen for ketogenic are mostly store cupboard school meals things.
She suggests finding out who is the head of the catering for the schools in your area and finding out why the heck they cannot do it.

morningpaper Tue 07-Jul-09 19:57:45

Hospital food is usually cook-chill so they may not have patient kitchens on-site...

morningpaper Tue 07-Jul-09 19:58:55

You should take it up with PALS though

CMOTdibbler Tue 07-Jul-09 19:59:09

They should, but since they can't manage a simple special meal like gluten free in hospitals in this country, I'd never expect them to manage it.

I used to know a family where two of the girls had PKU and so a strictly controlled protein content diet - hospital that diagnosed them couldn't reliably cater for them !

cheshirekitty Tue 07-Jul-09 20:02:11

What would happen if Riven was unable to come to the hospital for a few days (say Riven was ill). Would your daughter just not be fed? I personally think it is disgusting. I work in a hospital, they used to have special kitchens (in the old days), especially in the childrens hospitals. I bet they have closed them due to cost cutting.

silverfrog Tue 07-Jul-09 20:09:56

MissSunny, no variations currently allowed hmm

No packed lunch, nothing.

I used to send dd1 in with a thermos for her lunch (she won't eat gf bread), but not allowed now.

It is an ASD school, and they were getting a lot of variations in the packed lunches - some of the children have pretty severe food issues, so some lunches were just choc, or crisps, etc (no judgement form me - if you have a child unable to eat most things, you give them what they can eat)

last term, the school had a think, and sent a lette rout saying they were having issues with the children having school lunches wanting what the other (non-school lunch) children were having (not surprising, as the school lunches are minging) and so they would have to stop the non-school lunches (rather than deal with the isssue. a cop out, really)

so dd1 has lunch at home. I don't work, so that is not an issue, but no way was I consiging her to the gf version of school lunches (she had them for 6 weeks, adn I still check the chart every day, as am building my case - so far, in nearly 2 terms of this new regime, there have been 6, yes 6 lunches that have not been jacket potato (dd1 will not eat potato) and ham. Not Good Enough.)

IneedacleanerIamalazyslattern Tue 07-Jul-09 20:40:56

My mum also said in her area they don'y have a choice they have to cater for special diets and sllergies there is no opt out for them.

sarah293 Wed 08-Jul-09 07:35:59

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IneedacleanerIamalazyslattern Wed 08-Jul-09 08:52:40

That whole situation is just disgraceful. angry
My mum is now totally raging on your behalf about the school meals thing by the way i'm telling you if she lived near you she would probably be cooking for your dd and delivering it to school.

sarah293 Wed 08-Jul-09 09:26:46

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PeachyTheRiverParrettHarlot Wed 08-Jul-09 09:44:58

How do you manage to qualify? we're on less and don't bloody council!!!

However....... the school kitchensmanage df for the boys, and offered gf / cf (but we wanted the eating disorder sorted first) so it can be done

I provide df butter, emergency desserts and squash (ds3wont touch water ), they bought special gravies (their mix had milk),and make batchres of special everything else

Head of school meals sorted it all for me via dietician in one morning meeting

PeachyTheRiverParrettHarlot Wed 08-Jul-09 09:45:21

And yes it is in their statements

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