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To ask if anyone has been/is on Roaccutane?

(66 Posts)
suchagoofball Wed 27-Feb-19 14:18:21

Hi all

I am starting Roaccutane today and am feeling rather nervous about it - I don't think I've ever been on a medication with so many serious possible side effects before - but I've been suffering from acne since I was 16 (I'm now rapidly approaching 33) and I've been on different medications/lotions since I was 17 with no effect so feel like this is something I have to try.

I'm trying to concentrate on the potential side effects that I can do something about, e.g. the dry skin/lips.

I've done some googling for products I can use to help combat the dryness but most of the recommendations are for expensive products and, frankly, I can't afford these at the moment (money is tight).

Does anyone have any recommendations for products that are a reasonable price?

TIA smile

Lucindille Wed 27-Feb-19 14:21:21

My daughter was on Roaccutane for a year when she was a teenager.

It worked wonders for her when nothing else had - her skin is completely clear now and it even seemed to get rid of most of the scarring. She’s now 25 and hasn’t had any major acne in almost 10 years.

She did have issues with dry lips, but just had to make sure she had a lipsalve on her at all times.

Also, when the summer comes try to spend as little time in the sun as possible because it makes your skin much more vulnerable to UV rays.

Bodear Wed 27-Feb-19 14:25:15

I’m on it and it’s honestly changed my life. I keep pots/ tubes of lip balm everywhere (desk/ car/ handbags/ bedside table/ etc) and find that Vaseline does the job.
Good luck!

Mari50 Wed 27-Feb-19 14:25:26

Yes. I took it when I was 34 for hormonal cystic acne after several courses of topical and systemic antibiotics that worked when I was taking them but the acne always returned. It was very effective, my skin has been clear since then.
Side effects were tolerable although I do have thinner skin now as a result, my décolletage definitely suffered. Would I take it again? -absolutely.
Is it a scary drug that requires a lot of thought prior to taking it- yes.

Bodear Wed 27-Feb-19 14:25:29

Oh and eye drops once or twice a day

desperatesux Wed 27-Feb-19 14:28:24

My friend is a consultant dermatologist and thinks it too is a wonder drug. Works v well most of the time and the side effects are overplayed. I have known people who have used it and the difference is miraculous but their skin was v v bad, think cystic acne

MrsMcW Wed 27-Feb-19 14:30:03

I was on it as a teenager. Worked miracles on my skin, but yes, watch out for very dry lips. I used Elizabeth Arden 8 hour lip salve as vaseline etc were hopeless, the 8 hour cream was the only thing that worked. It's pricey, but you only need a tiny bit so it lasts forever.

I used to get a lot of nosebleeds in cold weather too, from nasal passages drying out. Not a lot you can do about those, just make sure you always carry tissues.

Finally, please ask a friend or family member to keep an eye on you. Roaccutane is known for causing mood swings and my emotions went up and down like a rollercoaster - not helpful midway through my A levels!

Good luck. The benefits hugely outweigh the downsides, I have no regrets at all.

TwinkleTits70 Wed 27-Feb-19 14:34:57

Similar age to you when I had it. Definitely worth it, but it does, as you know, have major side effects. For me, not much helped with the dry skin, it was coming off in sheets. However another side effect of that is I now look a good ten years younger. Wear sunscreen daily (even if cloudy) and use a basic, non perfumed face cream to try to relieve the tightness.

Be prepared for joint pain too, it really does dry out everything.You may need to have some lube on standby for intercourse as well.

HollySwift Wed 27-Feb-19 14:45:03

I had 2 rounds of roaccutane in my teens. I needed a lot of Vaseline but no other side effects. It was incredible and although I still get period spots and have scars I’m so grateful for it. I had horrendous acne over my chest, back and face. All gone within a year!

Excited101 Wed 27-Feb-19 14:45:36

Yup! Brilliant stuff!

Curlyhairedbrummie Wed 27-Feb-19 14:46:00

I was on it in my mid twenties after suffering awful acne for years. I had tried everything the GP could offer and eventually was referred to dermatology.
I so wish I could have gone sooner as it was the best thing I ever did. I was on it for 3 months and literally after 2 weeks of taking it my skin was clear. And it has remained so ever since!
I suffered with dry skin but normal hand cream worked and I did have a few nose bleeds due to the dry skin in my nose, but nothing I couldn't manage.
There have been stories about people suffering with poor mental health while on it and also I had to do monthly pregnancy tests as apparently its extremely harmful do a developing feotus.
Good luck!

parietal Wed 27-Feb-19 14:46:19

i took it as a teenager. marvellous benefits and no noticeable side effects.

Magenta82 Wed 27-Feb-19 14:49:39

I took it about 20 years ago for Hidradenitis Suppurativa, it didn't help me but you would be taking it for a different condition so will probably have more luck.

The side effects were not an awful lot of fun. My skin was really dry and cracked, it bled, and a lot more of my hair fell out than was usual for me, I remember pulling clumps out of my hairbrush.

I also had really bad mood swings, although I was a teenager at the time so that may have played a factor.

Whatever you do make sure you use at least 2 reliable types of contraception, both before starting and for a long time after (I think it is a year or something) it can cause birth defects and lasts in your system for a long time.

U2HasTheEdge Wed 27-Feb-19 14:51:40

I am on It right now.

12th week I think.

It has not been as bad as I thought but still a bit of a pain.

My side effects are: Dry corner of eyes which scab. Patches of eczema over my body, dry scabby nose, itchy skin, thin skin that cuts easily. The lips are horrible at times . I also have been suffering with my back even more than usual. No one knows if it is the roaccutane, the statins I needed to take to go on it or if it is just a flare up of my normal back problems.

For my lips I use lots of different things. Lush ultra balm, Elizabeth Arden 8 hour cream (not worth the price), all different types of lip balms. Use a vaseline type product on top of any lip balm to seal it in. Moisturise very well. I use Cetaphill on my face, cleanser and moisturiser. E45 on my body and Hydromol ointment for night time. Never wax anything, I know somebody who did and took a whole strip of skin off her eyebrows.

My hair has never looked better! It never gets greasy and I only have to wash it due to it picking up smells.

The side effects are annoying but I wish I did it years ago. My acne was mild but persistent since I was a teen. My skin is looking the best it ever has.

AGHHHH Wed 27-Feb-19 15:05:10

I'm on it for the second time.

First time around the only side effects were dry lips and sensitive skin.

This time I have those side effects again but my dose is higher so I also feel lower in mood, my joints are stiff and it doesn't take much for me to wake up aching the day after. My vision is also slightly blurry at times, especially when tired or at night. A few annoying side effects and I can't wait to be finished but nothing awful so far, I'm nearly at the end!

AGHHHH Wed 27-Feb-19 15:07:03

Oh also it worked perfectly for me, all acne gone. Hopefully this time for more than a year ...

Mari50 Wed 27-Feb-19 15:25:17

My friend is a consultant dermatologist and thinks it too is a wonder drug. Works v well most of the time and the side effects are overplayed.
I’m not sure the two young men I have met through the course of my work who are blind as a result of taking roaccutane would agree.

QuirkyQuark Wed 27-Feb-19 15:26:11

I've been on it and I'd take it again if needed. My skin was unbelievably painful with cysts and boil type spots everywhere, it all went.

My liver had a couple of wobbles and my cholesterol went up, skin was paper thin as were my lips, I used original Carmex in a tube for them, the medicated smelling one. I have inflammatory arthritis and I definitely noticed an increase in joint pain but as I said above, I'd take it again, I keep getting little niggles so I imagine I'll need another round at some point in the future.

Girlinthegarden Wed 27-Feb-19 15:26:38

I was as a young woman living overseas. God, my skin was great. I didn't get dry skin but did burn from the tiniest bit of sun

CurbsideProphet Wed 27-Feb-19 15:28:58

I've taken it. My dermatologist recommended a much lower dose over a longer period, so I didn't experience any of the reported side effects. It was life changing, as I had terrible cystic acne at the time and was utterly miserable. I still get a couple of spots around my period, but they go very quickly.

Tucobenedicto Wed 27-Feb-19 16:00:56

I used this about 25 years ago..before I used it the doctor said that I would find a heavy increase in spots to start with...boy she wasn't wrong..every morning I woke up I was covered in spots ..it looked horrific...it did help me a bit but not as much as others are saying here...best of luck.

treenuts Wed 27-Feb-19 16:53:23

I took it twice. First time was mostly a breeze, dry lips and very dry skin (which my GP prescribed an emollient shower gel for, which really took the edge off).

A year later, as my skin still hadn't fully cleared up, I took it again. It was awful. The most terrible month of dry skin and lips, combined with unbearable aches in my joints every day and a fatigue I've never experienced before. I was basically bed-bound, barely able to move.

Overall, I think it's worth a shot, you never know until you try. If you do have horrible side effects though, consider whether it is worth it to you to continue.

MiGi777 Wed 27-Feb-19 17:12:09

I took it for 12 weeks in my 20s and it changed my life too. My skin has been brilliant ever since. I did have very dry skin with it. On my arms and lips especially. That was uncomfortable but I used E45 and Vaseline for my lips. It's worth the discomfort, you should feel really positive about this! I was so down for years over my skin and this is a miracle drug to me!! At the time they made a huge thing about me not getting pregnant while on it because it could seriously harm a baby. I don't know if that's still the case because I took this 15 years ago. Nothing negative to say about it!! 😃

MiGi777 Wed 27-Feb-19 17:14:10

Yes, you have to keep out of the sun too! I forgot about that bit!!!!

mightypinkdms Wed 27-Feb-19 17:19:28

Another success story here, started it late twenties I think... had acne from adolescence, and for me was a miracle. I do still get some spots, but honestly it’s been brilliant and wouldn’t hesitate to do it again if I had to. Nose was dry and bled, and no oily products allowed on skin - so all make up now oil free. Wish I had had the option sooner...

Mari50 Wed 27-Feb-19 18:10:52

The thing I loved most about roaccutane (aside from getting rid of my acne) was that my hair wasn’t greasy anymore. It was amazing not having to wash it daily, in fact I could leave it as long as I wanted and it never got greasy. It was heartbreaking when things went back to normal.

suchagoofball Wed 27-Feb-19 18:43:07

Thank you all so much for your responses! It's really good to hear so many think it was worth it even with the side effects!

*She did have issues with dry lips, but just had to make sure she had a lipsalve on her at all times.

Also, when the summer comes try to spend as little time in the sun as possible because it makes your skin much more vulnerable to UV rays.*

I've got a couple of lipsalves in but I'll pick up a couple more to make sure they're whether I could potentially need them!

The dermatologist did say about sun sensitivity - I'm extremely pale anyway so always wear high factor sunscreen in the summer but she advised to wear it whenever I go out, even if it doesn't look sunny, so will be doing so and covering up as much as possible.

* I keep pots/ tubes of lip balm everywhere (desk/ car/ handbags/ bedside table/ etc) and find that Vaseline does the job.
Good luck!*

Thank you! I am feeling really nervous at the moment but I've now been battling with it for half my life and I really want to be able to look in the mirror without feeling like I want to cry!

The dermatologist recommended Vaseline for the nose too so will definitely pick up a pot!

Oh and eye drops once or twice a day

The dermatologist also recommended eye drops so my DP picked up some for me so I'm ready to go!

Is it a scary drug that requires a lot of thought prior to taking it- yes.

I've definitely given it a lot of thought - when I was first referred to dermatology I had an appointment in November 2017 and the dermatologist prescribed me one other thing to try and the plan was that if that had no effect after three months, she'd put me on Roaccutane. As it happened, she left the department and the dermatologist I saw next referred me to endocrinology to ensure that it wasn't hormonal before finally agreeing to put me on Roaccutane - all in all, I've been thinking about it for over a year! I would have really liked it if something else had worked but I really don't feel like there's anywhere left to go now.

* used Elizabeth Arden 8 hour lip salve as vaseline etc were hopeless, the 8 hour cream was the only thing that worked. It's pricey, but you only need a tiny bit so it lasts forever.*

I have seen the Elizabeth Arden one mentioned on quite a few websites - it's, unfortunately, a bit out of my price range at the moment but if nothing else does the trick, I might have to splash out!

Finally, please ask a friend or family member to keep an eye on you. Roaccutane is known for causing mood swings and my emotions went up and down like a rollercoaster - not helpful midway through my A levels!

Oh no! That sounds like a complete nightmare when coupled with exams! Hope you got through your A levels okay!
I have made my DP aware of the symptoms and he is under strict orders to keep an eye on me!

Be prepared for joint pain too, it really does dry out everything

Yes, the dermatologist did say it could cause aches and pains. Did you use/take anything for the joint pain or was it bearable?

For my lips I use lots of different things. Lush ultra balm, Elizabeth Arden 8 hour cream (not worth the price), all different types of lip balms. Use a vaseline type product on top of any lip balm to seal it in. Moisturise very well. I use Cetaphill on my face, cleanser and moisturiser. E45 on my body and Hydromol ointment for night time.

That is really helpful, thank you!

It's worth the discomfort, you should feel really positive about this! I was so down for years over my skin and this is a miracle drug to me!! At the time they made a huge thing about me not getting pregnant while on it because it could seriously harm a baby. I don't know if that's still the case because I took this 15 years ago.

I am definitely excited about the prospect of being able to look in the mirror without feeling awful (at least not about my skin!) but I can't help but be a bit wary about the long list of possible (serious) side effects!

Not being pregnant is still a huge deal - I was warned about it multiple times (there is a very high risk the baby will be deformed if you get pregnant while taking it) and had to sign a form to say I've been told about the risks and agree to remain on contraception throughout.

MiGi777 Wed 27-Feb-19 19:24:15

It's going to be amazing! I hope you have the same experience as me because after years of feeling self concious and being really down over it I felt lovely! Let us know how it goes!!! 💐💐💐

suchagoofball Wed 27-Feb-19 20:38:34

Thank you! I'm looking forward to the results, just not the side effects! I will let you know how I get on.

LuckyMarmiteLover Wed 27-Feb-19 20:44:23

I took it but ended up with corneal ulcers which were horrendous. I ended up an inpatient in the eye hospital with my eyes taped shut whilst they healed. I still suffer with dry eyes 25 years later sad

Banhaha Wed 27-Feb-19 20:52:37

I used Eucerin Aquaphor balm on my lips at night when I was on it. Not the lip balm, the skin balm. Lasted ages through the night. Also put a dab up your nose if that starts to get dry to prevent nosebleeds. Cetaphil wash and moisturiser are so gentle. Drink lots of water and good luck smile

PookieDo Wed 27-Feb-19 20:55:50

Yes I’ve done it twice!
I did low dose this time and ended up on it for nearly 2 years!
Touch wood I am still acne free after I stopped a few months ago and my main side effect was I have been left with huge melasma patches

My other big issue was my scalp and hair. It was so dry and like a desert bush. I really struggled with having no hair grease/oil

Lymphy Wed 27-Feb-19 20:58:33

I’ve not had it, but I have met many women who come to our clinic for contraception due to taking roaccutane, for reasons I’m sure you know. Every single one of them has found it fantastic.

Alienspaceship Wed 27-Feb-19 20:59:56

It didn’t work for me.

problem1234567 Wed 27-Feb-19 21:02:34

I am on it at present, started it in the New Year so about 2 months now.
I'm on a low dose - 20mg per day.
I haven't really had the terrible side effects I've read about.
My skin is a bit drier than normal but it's the winter and I've had two colds in the recent weeks.
I bought Carmex and Eight Hour Cream for my lips which was recommended everywhere but I can't see any difference from my regular pots of blue Vaseline.
Likewise I bought fancy moisturizers but can't say they seem any more effective than my Nivea Soft.
One thing I've been impressed with and enjoyed using is Origins Intensive Mask which I've left on overnight layered on top of a facial oil.
It may be that some people tolerate the side effects more than others or it's just a case of the mg per day making the difference.
Not had any cysts (which was my issue all around the chin area) whilst on it.
However, know that you'll have to go every month for blood tests, quick chat with the consultant and the dreaded pregnancy test.So you'll have to be able to get out of work once a month.

Thecabbageassasin Wed 27-Feb-19 21:03:24

I took it in mid twenties as it looked like I wasn’t growing out of my teenage acne. This was after many other failed treatments.
Worked wonders.
Many years later I still don’t take for granted the feeling of having clear skin gives me.

TheLette Wed 27-Feb-19 21:25:22

Definitely worth it, it does the job. I was a student and luckily started taking the drug just before starting a backpacking trip to Central America which is incredibly humid. Initially had dry skin but the humidity soon sorted that out! So if you are booking anywhere for a holiday, my tip is to pick somewhere humid.

TheLovleyChebbyMcGee Wed 27-Feb-19 21:30:56

I did when I was about 15, now 37 and it did wonders for my skin!

But, several people have already mentioned this, use sunscreen. Doesn't have to be a pricey one, but make sure you use it even on cloudy days. I got burnt so badly it blistered across my cheeks and the skin has never quite recovered.

Molly333 Wed 27-Feb-19 21:38:02

My daughter is near the end of her treatment. Her skin is clear but when she went up to 60 mgrams she became very very anxious still is in fact, worrying but not normal worrying very abnormal thoughts . The consultant did a stress score and has repeated this then lowered the dose to 40 mg . I said to the consultant will this anxiety reduce and he said yes when the meds leave the system in 6 weeks ! . It has worried me and I have voiced this to the consultant who has been v good. My thoughts are be careful as the dose goes up but it has defi cleared the skin which was making her so low

Pickofthepops Wed 27-Feb-19 21:40:04

Took it in my late 20's when cystic acne on my neck made life hell, even after teenage acne & spots in 20's. sorted it for good for me. Horrible dry skin, lips. But worth it all. Persevere. Good luck x

Livingoncake Wed 27-Feb-19 21:49:20

I went on it when I was 19. It was a miracle cure. I remember i used products recommended by my dermatologist: Neutrogena Extra Gentle Cleanser for face, Dove sensitive bar for body. Unfortunately I can’t remember what moisturiser I used. Here in Australia, you can buy basic moisturisers by the litre from discount pharmacies, so presumably I used one of those. You don’t need to buy anything fancy or expensive. Just get plenty of sunscreen and a wide-brimmed hat when you’re planning on spending time outdoors - I once got sunburnt whilst on Roaccutane and it’s extremely painful.

suchagoofball Thu 28-Feb-19 21:24:59

I'm on a low dose - 20mg per day.

That's the dose I'm on - I was hoping that the low dose would mean the side effects wouldn't be quite so bad!

However, know that you'll have to go every month for blood tests, quick chat with the consultant and the dreaded pregnancy test.So you'll have to be able to get out of work once a month.

Yes, I was told about the blood tests etc long before I started taking it. Luckily I'm self employed so I only have to ask myself for permission to leave work!

So if you are booking anywhere for a holiday, my tip is to pick somewhere humid.

Sadly my finances do not stretch to a holiday at the moment but I will definitely bear that in mind if that changes!

But, several people have already mentioned this, use sunscreen.

I definitely will!

My thoughts are be careful as the dose goes up but it has defi cleared the skin which was making her so low

I will definitely bear that in mind - I'm starting on a low dose but will be careful if it gets higher.

You don’t need to buy anything fancy or expensive. Just get plenty of sunscreen and a wide-brimmed hat when you’re planning on spending time outdoors - I once got sunburnt whilst on Roaccutane and it’s extremely painful.

Very glad to hear it doesn't have to be expensive - pretty much all of the sites I found when I googled were recommending expensive products and I was getting worried!

I already have a wide brimmed hat and will slather myself in sunscreen - I'm very pale so have to do so normally anyway!

Thank you all so much for your views and suggestions - I will make a note of them all!

Hereiamitsme Thu 28-Feb-19 21:31:55

Another success story here! I took it a year ago, wish I’d done it years ago!
One thing to add to the above - I didn’t want to shell out of Elizabeth Arden either, but normal lip balms just didn’t cut it, even carmex, blistex...my Derm prescribed me “yellow soft paraffin” - honeslty amazing stuff for lips. Better than EA imoand very very cheap, pretty sure you can buy it online for less than £2. Good luck!

Sunkist12 Thu 28-Feb-19 21:34:54

There's a YouTuber called @Thataylaa and she documents her time on it last year with all the ups and downs, skin care and life style changes she had to make while on it. Check out her channel, it's super helpful and will give you a headsup on what's to come.

SalrycLuxx Thu 28-Feb-19 21:37:29

I had it as a teenager. Its a Wonder drug. It literally changed my life. The dry lips sucked, and you should avoid strong sunlight, but it’s worth it. Not had any skin Problem since!

U2HasTheEdge Thu 28-Feb-19 21:41:54

My eyes are driving me crazy today. Scabby in the corners and very sore and red. The eye drops aren't helping. Any Roaccutane users have any tips for this?

U2HasTheEdge Thu 28-Feb-19 21:43:32

Are you going to increase your dosage OP?

I did 20mg for the first month then went up to 60mg.

MrsBungle Thu 28-Feb-19 21:44:05

I took a course of roaccutabe about 20 years ago. Literally the only side effect I had was that I no longer needed to wash my hair every day when I was on it. My acne cleared yo and never came back bar the odd spot. Unfortunately my greasy hair did return! Not everyone has terrible side effects.

SaltedCaramelEverything Thu 28-Feb-19 21:52:31

I was on it OP also minimal side effects - just dry lips.

My dermatologist recommended cetaphil cleanser and moisturiser. They are not expensive - amazon has best prices. I still use them now.

Good luck!!

MollyYouInDangerGirl Thu 28-Feb-19 21:55:46

I'm 25 and am on it now. My side effects have been really dry skin and lips and headaches. The only things I've bought to combat the side effects are paracetamol and e45 cream which I constantly slather myself in!

I just think about how worth it it will be at the end, and the max length of time you can be on it 6 months so very short term in the grand scheme of things!

PierreBezukov Thu 28-Feb-19 21:58:54

I was on it in my 20s and it was fantastic - a miracle drug. It not only cleared up my skin permanently (now in my late 30s and I have lovely clear skin) but when I was on it I stopped having oily hair and didn't have to wash my hair every day! Vaseline got me through - didn't need anything more expensive.

Fazackerley Thu 28-Feb-19 21:59:05

My dd took it
It cleared her bad acne amazingly but the side effects were tough. After a year clear the spots started to.come back. She's on Yasmin pill and this had cleared them

Dd2 also had bad acne went straight to Yasmin her skin is beautiful no need for roaccitane

suchagoofball Fri 01-Mar-19 10:42:19

One thing to add to the above - I didn’t want to shell out of Elizabeth Arden either, but normal lip balms just didn’t cut it, even carmex, blistex...my Derm prescribed me “yellow soft paraffin” - honeslty amazing stuff for lips. Better than EA imoand very very cheap, pretty sure you can buy it online for less than £2. Good luck!

That's really good to know, thank you! I will take a look online!

There's a YouTuber called *@Thataylaa and she documents her time on it last year with all the ups and downs, skin care and life style changes she had to make while on it. Check out her channel, it's super helpful and will give you a headsup on what's to come.*

That's fantastic, I will take a look. Thanks for the info!

*Are you going to increase your dosage OP?

I did 20mg for the first month then went up to 60mg.*

I'm not sure - the dermatologist did say they'll start low and increase the dosage but it wasn't mentioned at the Roaccutane clinic. I assume it will depend on how I get on with the lower dose!

*My dermatologist recommended cetaphil cleanser and moisturiser. They are not expensive - amazon has best prices. I still use them now.

Good luck!!*

Thank you! I'll look into Cetaphil on Amazon.

I just think about how worth it it will be at the end, and the max length of time you can be on it 6 months so very short term in the grand scheme of things!

That's what I keep telling myself - 6 months isn't long and should fly by!

Ohnonotuagain Fri 01-Mar-19 10:50:54

DH was on it years ago. Cleared his skin but gave him almost constant nose bleeds, suffice to say he didn't stay on it.

RosesTulipsDaffodils Fri 01-Mar-19 11:07:58

I took it 20 years ago as late in my twenties, I'd had enough of moderate, unrelenting acne that hadn't subsided. Like mentioned above, I still appreciate how great healed skin feels. It has had a lifelong effect where I no longer had any acne.

I also recall how it felt -hard to describe but it was like every part of my body was dry. It was not too bad for me though -lots of lip balm and sunscreen.

yma123 Fri 01-Mar-19 14:06:02

I was on roaccutane when I was about 16 and it worked absolute wonders, my skin was so bad and I was on it for about 2 years and then stopped and since then my skin has been miles better, I obviously get a few breakouts now and again like everyone, but it's so much better! Just be careful to make sure you're on contraception, and there's a risk of it affecting your mental health, so watch out for that, although I personally never experienced that! The only side effect I really had was my skin being dry - my lips would crack and sometimes I'd wake up with dried blood in my nose because of the skin being so dry, but just make sure you have a decent lip balm and moisturiser with you and you'll be fine! It doesn't need to be anything expensive, I just used my normal face and body moisturisers and lip balm that I was using before I was on it, and that did the trick!

MollyYouInDangerGirl Fri 01-Mar-19 16:18:43

Just wanted to add to my comment from yesterday. I had a catch up appt today and they've upped my dose from 40mg to 60mg as I'm coping fine with the side effects.

She did say though that my skin does look quite dry and that my e45 cream isn't cutting it Haha, she did give me loads of free samples of la roche posay (both gentle cleansers and moisturisers) and a pot of cetraben which she recommended for my lips.

smile

Goodmum1234 Fri 01-Mar-19 17:52:46

I had 2 courses of it over 20 years ago and my skin has been great ever since. I get occasional spots but not as it used to be.

Never ever wax, have all that done before you begin treatment as it takes a layer of skin off. I did my eyebrows and it hurt!

Used e45 on my body and any moisturiser in my face. Can’t remember which lip balm but today I’d recommend burts bees as it stays put and lasts about a year.

Ensure you will not get pregnant under any circumstance.

I felt like my whole body was shedding all the bad stuff which felt really good, good luck

problem1234567 Fri 01-Mar-19 19:32:21

For those of you commenting on dosages I've been on 20mg for two months.
My understanding is that it doesn't matter how many mg you have per day as long as you have the 'required amount' at the end.
So let's say the desired amount is 12mg - you could have 3mg a day for 4 days, or 4mg a day for 3 days. Just making those numbers up but that's the idea.
So if you've concerns about going up to 40mg etc I'm pretty sure the derm would agree to keep you at a lower dose and just keep you on it for longer.
I also think the dosage they put you on/start you from varies depending on the type of acne you have. Eg I don't really get spots, or the all over the cheeks acne, I only ever got horrible deep under the skin cyst types, which perhaps is why she thought 20mg is fine for me.

prozacgirl Fri 01-Mar-19 19:42:50

You'll be amazed. The side effects are nothing compared to the incredible feeling of having clear dry skin. I can remember it well. If your dermatologist is starting you on a low dose I wouldn't overly worry. Stay out of the sun though. And use contraception.

MonicaGellerHyphenBing Fri 01-Mar-19 19:51:53

I was put on Roaccutane in my early 20s and it worked like a dream. I'm now 28 and have barely had a spot since.

I experienced very few effects, just very dry lips. I found Aquaphor Healing Ointment a godsend!

suchagoofball Fri 01-Mar-19 21:28:20

Just be careful to make sure you're on contraception, and there's a risk of it affecting your mental health, so watch out for that, although I personally never experienced that!

I had to sign a form stating that I would not stop using contraceptives while I'm on it (not that I would anyway!) and my DP is going to keep an extra close eye on me re mental health!

I just used my normal face and body moisturisers and lip balm that I was using before I was on it, and that did the trick!

That is very good to know!

She did say though that my skin does look quite dry and that my e45 cream isn't cutting it Haha, she did give me loads of free samples of la roche posay (both gentle cleansers and moisturisers) and a pot of cetraben which she recommended for my lips.

Free samples are always good!

Never ever wax, have all that done before you begin treatment as it takes a layer of skin off. I did my eyebrows and it hurt!

I was warned not to wax but I don't anyway as it brings me out in a rash!

I also think the dosage they put you on/start you from varies depending on the type of acne you have. Eg I don't really get spots, or the all over the cheeks acne, I only ever got horrible deep under the skin cyst types, which perhaps is why she thought 20mg is fine for me.

I was told they decide on the starting dose based on your weight so it will be however many mgs per kg (can't remember the numbers!)

* If your dermatologist is starting you on a low dose I wouldn't overly worry. *

I am hoping that as it's a low dose, the side effects won't be too bad!

QuirkyQuark Sat 02-Mar-19 09:27:15

The hospital I was under for it had a compulsory pregnancy test before they gave the prescription out and they only gave a month at a time so you have monthly pregnancy tests.

U2HasTheEdge Sat 02-Mar-19 10:58:31

My eyes are still really bad. No infection. I will see my dermatologist nurse Thursday so I can discuss it with her. I think if I had started using eye drops from day one they may not have got so bad.

BTW I am not on birth control. Husband had the snip years ago and we avoid fertile times/ use a condom.

I preferred to go up to a higher dose to get it over and done with quicker.
Actually I started on 30mg, not 20.

One thing you will likely experience at the start is a hot face. This should go. I still flush at times though. I went through a stage where I looked really red but that has died down and now I just have a nice colouring.

PookieDo Sun 03-Mar-19 15:59:14

I had to use Hycosan dry eye drops - they are about £10 in boots when I got dry eyes

suchagoofball Sun 03-Mar-19 19:46:47

The hospital I was under for it had a compulsory pregnancy test before they gave the prescription out and they only gave a month at a time so you have monthly pregnancy tests.

Yes, that is the same for me, plus I had to sign a form to confirm I understand the risks and that I will come off contraception.

My eyes are still really bad. No infection. I will see my dermatologist nurse Thursday so I can discuss it with her. I think if I had started using eye drops from day one they may not have got so bad.

I was advised to start using eye drops even if I don't feel like I need to, so have been doing so.

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