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AIBU?

Upset about MASSIVE mistake on medical record.

38 replies

Humptyfelldown · 19/07/2018 12:25

Firstly I know this will out me to my previous username if anyone remembers me (unlikely), and secondly I know this will seem extremely small to everyone else, but this is a huge fucking error to me.

I've been referred (again) as I can no longer cope with the pain from my ankle osteoarthritis, which has never really been diagnosed properly (i.e. never had a standing x-ray, extreme pain in other foot that they refuse to x-ray), it was caused by my ex breaking my leg 28 yrs ago apparently, but has got worse in the last few months to the point I can no longer walk at times.

Anyway that's not the problem. In the referral letter the GP has listed my entire medical history. Including one normal delivery and one emergency caesarean.

It then states I had an intrauterine death of a full-term baby and was going to be induced on the date of the death and the birth recorded that day . That was all they have on the file. I remember my GP at the time thought I had been induced, and was confused when I phoned her before I'd been induced!

What actually happened - My daughter was due to be delivered by caesearean, ironically the day was booked for the day after she died. Then when we discovered she'd died, the consultant decided it was better for me, to deliver vaginally, despite the fact I'd had a caesarean 16 months before, and the fact that she was transverse (her head was under my ribs and feet by one of my hips). The contractions would 'squeeze' her into position, I was assured, although I wanted a caesarean.

I was induced, and endured 35 hours of labour. It went on over a weekend and the consultants weren't there. The shitty midwife argued with the registrar about increasing the oxytocin; he wasn't happy, due to the increased risk of rupture (previous caesarean), but she did it anyway (baby was still transverse). I was vomiting by then.

I then felt something between my legs - the umbilical cord was out - baby still had its feet by hips, head under ribs. Registrar came in. Other doctors came in, I was rushed to theatre, my uterus had ruptured.

I wasn't put to sleep. It took ages to get the baby out. They had to do a T section, I started to feel ill, alarms went off, they declared a code red. They called the consultant in from home. My blood pressure was so low almost not registering, I was so thirsty.

Eventually I went to recovery. Lots of doctors with me, still having blood transfusions. They put a special blanket which they blew up with a hair dryer attachment thing, shitty midwife complained I didn't need it. She then made me sit up. I started bleeding so had to stitched up again.

I lost 3.5 litres of blood. Had damage to my ureter. At 6 week check -up consultant thought I'd been to sleep, and said I must have been as it was 'protocol'.

I cannot believe this is missing from my medical record. I've been diagnosed with PTSD after this, but only due to my daughter being stillborn, not the whole trauma of the surgery. The fear I was never going to see my other children again.

I'm being ridiculous really?

OP posts:
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ferntwist · 19/07/2018 12:29

So sorry this happened to you. I hope you’re okay. You’re not being U at all to expect your medical record to properly include what happened.

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Humptyfelldown · 19/07/2018 12:35

Thanks, I'm just at a loss at what to do. If ever there was a problem with the blood I was given they'd never know, as according to them I've never even had a blood transfusion (I had 8 pints and 2 of plasma).

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Handsoffmysweets · 19/07/2018 12:39

Jesus OP that is horrendous, I hope all involved hang their heads in shame. Flowers for you and I’m so sorry for your loss x x

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user1457017537 · 19/07/2018 12:44

To have what you went through minimised in this way by professionals is unforgivable. I am so sorry for your loss, how tragic

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RoomOfRequirement · 19/07/2018 12:46

Is the error in the referral letter only, or also your full medical records? In the referral letter it's understandable - kind of - because they're just an overview. Though of course should still be accurate! But with the major surgery, and all the paperwork required for transfusions, Iwould be absolutely flabbergasted if it wasn't in your actual medical record.

Flowers I'm sorry you went through that.

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psychomath · 19/07/2018 12:48

That sounds absolutely awful, I'm so sorry - and no, you're definitely not being ridiculous or unreasonable Flowers Do you like and trust your GP? If so maybe you could bring it up again at your next appointment, or get them to phone you if you're not due for one, as they can apparently help you to get your record changed if it's inaccurate. If you don't feel comfortable doing that then I'm sure there must be someone else you can discuss it with, but unfortunately I don't know who that would be as I'm not familiar enough with the system. Even aside from leaving out the physical and psychological issues that resulted from such a traumatic birth, it sounds like the record is factually wrong (as it states you were due to be induced when in fact you were due for a caesarian), so that alone should be grounds for having it reviewed.

The only other thing I would suggest is, are you sure this is your full medical history and not just a summary? I suppose it might be that the actual transcript of your medical record contains the details of all the procedures they carried out, and the letter crassly summarises them all as 'induced birth'. Still grossly insensitive but at least it would mean they had access to the proper information if it was needed.

Either way, I hope you can get it sorted soon Flowers

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Sleephead1 · 19/07/2018 12:51

Firstly so sorry about what happened to you how horrific. I work in a surgery only admin but you can request to see your medical records via the practice manafer to see what has and hasnt been recorded. Have the included all the rest of your medical conditions? I'm just wondering if they havnt recorded everything on the referral as it's not relevant to this particular referral? If it isn't recorded than that is awful and terribly upsetting. Sending my best wishes

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MrsPeacockDidIt · 19/07/2018 12:54

I'm so sorry you had to go through all of that. I too have had a full term stillbirth and that is awful enough as it is without going through all the medical trauma you also suffered.

With regards to the notes my first thought would be that it's just a short summary of major procedures as an aside as the referral is for something else entirely. I would be asking to see my full medical records to ensure that everything that happened has been recorded there. The blood transfusion surely has to be recorded correctly.

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Sleephead1 · 19/07/2018 12:56

I'm obviously not 100% sure of this as not clinical but I believe they can share information with other medical professionals with your consent but only what is relevant/ required. We did a very brief part of it on some training we did but was very basic for us as we obviously wouldn't be the one information sharing with other medical professionals. So it could just be a very brief summary snd didnt put any of the other things as they don't relate to the current problem you are having.

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TwoGinScentedTears · 19/07/2018 12:59

Good god, that's horrendous. You've been through so much.

Have you applied for your notes from the hospital? If you want to take this further, I'd start there.

I'm lost for words though and hope you find a way through all of this.

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Humptyfelldown · 19/07/2018 13:03

I'm not sure whether it's just a summary - they've included both births (and how) of my other two. My bipolar, eating disorders, emotional abuse by mother when young (I didn't know about), sexual abuse when young (I knew about, but only have vague memories), IBS, acid reflux, etc, etc. I looked at my records online it states EMCS but the date is when DD1 was born, nowhere does it mention the second one.

My husband thinks I'm being overdramatic.

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BlankTimes · 19/07/2018 13:03

You have GP records and you also have hospital records. They are not identical.
If you want your hospital records to check all the details of your treatment, you need to apply to the hospital you were treated at.
If you want your GP records, you have to apply at the GP surgery.

It's possible your GP has not got the detailed info from the hospital.

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OkMaybeNot · 19/07/2018 13:04

Surely what happened has to be on record somewhere, surely? On other notes?

I'd be looking into this sharpish.

I'm so sorry for your loss. What happened to you was unforgivable Flowers

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thornyhousewife · 19/07/2018 13:05

OP that was an horrendous experience you went through - I'm not at all surprised you feel the way you do.

I hope you're ok.

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heartsease68 · 19/07/2018 13:08

That is appalling and I really think you should make a complaint. It seems very convenient that it's not on your notes.

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SplishSplashSplosh · 19/07/2018 13:08

Flowers

I have no advice to offer but can only comment how sorry I am that you went through all of that. YADNBU.

Sending my best wishes.

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123bananas · 19/07/2018 13:10

Oh OP I am so sorry for your loss and how you were treated Flowers

It is not usual for a referral from a GP to list absolutely everything that happened to you because they should only share the minimum of data necessary (not sure why they mentioned it on the referral unless it is to do with previous surgery). Both your actual GP and hospital records will be much more extensive.

You can request a copy of your medical records for free under the new Data Protection Act (2018) from both the GP and the hospital to see what they say. It might be worth having someone with you when you read through them or a debrief with the hospital because it will likely be very triggering for you.

It is not a small thing, it is a horrific ordeal that should not be minimised in purely medical terms and a few sentences.

I had emergency surgery (emergency hysterectomy) whilst awake after my third birth and lost 7.5 litres, had multiple transfusions and had ptsd relating to the trauma of surgery. I would be angry too if everything I went through was summarised in just a few lines.

Sending you lots of unmumsnetty hugs x

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bluemascara · 19/07/2018 13:11

Jesus this is absolutely horrendous. You are not being unreasonable at all!!!!
You need to get this fixed / corrected for your own sake.

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Puzzledandpissedoff · 19/07/2018 13:11

they've included both births (and how) of my other two

I'm really sorry about all you've been through, but it seems downright odd to have included the births of these two and not the baby you sadly lost

I'd certainly query this with both the hospital and GP, but if there's any possibility that negligence might have been involved, I'd suggest you might want to prepare yourself for the possibility of notes having "gone missing"

Apologies for bringing this up at all, but it's on the basis of repeated personal experience Sad

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jazzyfizzles · 19/07/2018 13:13

That sounds absolutely horrific I'm so sorry you had to go through that. You have the right to request your maternity records up until 25 years after delivery, I would be interested to see what they had written in them, and the fine details of your delivery would likely not be put into the shared medical record accessed by your GP Thanks

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BackToTheFuschia7 · 19/07/2018 13:15

So sorry for what happened to you Flowers

You have the right to all your personal data. I’d recommend putting in a request at both the GP and the hospital to see exactly what has been recorded.

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beachysandy81 · 19/07/2018 13:21

So sorry you lost your baby and had to go through all that.

I would request to see your full medical records as this may be just a part of it. Did you ever put in a complaint about the birth?

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Humptyfelldown · 19/07/2018 13:30

BlankTimes That's what my husband said, and would make sense, except that the hospital informed the GP that my baby had died and I was being induced. They also informed them tabout the previous caesarean.

I don't know about complaining. I'm only really angry about the midwife, as she was the one who insisted on increasing the induction against advice, making me move, and (this is going to sound stupid) putting a bonnet on my daughter, with a ribbon tied under her chin. I'd brought clothes specifically to put on her, which I'd been assured several times, she'd been placed in. This bonnet wasn't one of them. The ribbon cut into her skin, which had started to macerate, meaning all photos of her, have skin missing on her neck.

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L0UISA · 19/07/2018 13:52

It doesn’t sounds stupid at all. She was your baby and they should have put on the clothes that you had chosen for her. I’m sorry that they cut her skin, that’s awful.

It’s such a small things you asked them to do - dress her as you wished - and they couldn’t even do that right. And it’s probably the only photo you have to remember her by. It really matters.

I promise you that not a single mum reading will think you are stupid to care about this.

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Yogagirl123 · 19/07/2018 13:55

So sorry OP Flowers I can completely understand why you want to put the medical records straight.

Was there any investigation into what happened to you? I know it won’t change the awful experience you had, but surely people should have to explain their actions.

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