DLA after remission

[user1478197457]

My child was diagnosed with Leukemia in Jan 2016. She was awarded DLA for 3 years which expire on April 2018. Last week she finished her 28 months treatment. Now she will have to go to hospital every month for review. Should I tell them to stop DLA or carry on until it expires. I have just came out of big test in my life and dont want to get any thing I am not entitled for. Plz advice.

[frasier]

It is expired isn’t it?

[steff13]

I assumed 2018 is a typo and OP means 2019. I'm not familiar with the benefit, but if she's entitled to it for another year, I guess I'd take it.

[Littlebluebird123]

I don't know much about this so maybe someone more knowledgeable will come along.
But if it was awarded until April 2019 (I'm assuming typo) then it's presumably because of the 28 month treatment and the fact of the regular checks as dd will still need time to recover. She's not going to be 100% for a while so this gives you a little leeway to continue care.
That would be my assumption.
But congrats on getting through the treatment! Brutal time. And I hope dd is fully on the mend now. Xxx

[Birdsgottafly]

"I have just came out of big test in my life and dont want to get any thing I am not entitled for"

Your not entitled to it, your DD is. It isn't a usual part of childhood to go to hospital monthly, or go through what she has done. She still has medical needs.

You would be very wrong to tell them to stop it.

[SusanneLinder]

Your DD will still suffer the after effects for some time, such as fatigue etc.Its not the condition, its how it affects her

[user1478197457]

Thanks for advice. type mistake. expire on april 19.

[AllyMcBeagle]

It's a significant change to the medical condition which needs to be reported:
www.gov.uk/report-benefits-change-circumstances

Whether it should be stopped/reduced/continue will depend on your daughter's care needs going forward. If she is likely to still suffer from eg fatigue then she might still be entitled, but you do need to report the change so that DWP can determine if they need to reassess.

[Birdsgottafly]

The change should be about how your DD's health is day to day and her care needs etc, if there is any. That is why Cancer patients still get it, after they are considered not to have it. Their body isn't yet fully healed and there can be relapses, if any infection is picked up. That is as well as the physical effects, often yet to appear, of the treatment.

It is more cost effective for people to hang on, than have to reclaim it. You haven't been awarded it because of the medical treatments, you get awarded it on Care Needs.

[jaseyraex]

My little sister had been in remission for four years and was still receiving dla. It depends on the care needed, not the treatment itself. All you need to do is notify them of any changes and they'll reassess but likelihood is she'll still be entitled to it for a while.

[TestingTestingWonTooFree]

It’s based on her increased care needs. Report the change in diagnosis but be clear about whether there’s been any change in her needs or not.

[Shednik]

Don't report it. Dla is so hard to get, they will use any excuse to take it away.
Wait until you have to renew.

[woodwaj]

You can resubmit before it runs out and you should with current information. If you are no longer entitled you won't continue to receive it. However don't presume you are no longer entitled without trying! DLA is for the additional things you do day to day compared to 'normal' circumstances. You may just receive a lower rate rather than it stop

[SusanneLinder]

As someone who deals with benefits daily, again unless there is a significant change in care needs-and I doubt that one week post treatment- you don't need to report it.
I know its a different benefit, but ESA still award for a year post chemo as it is likely that vast majority of people will still suffer effects.
Wait till review.

[chocnvino]

DLA is not based on diagnoses but on care needs. If she gets DLA, she must require daily help/care/support over and above that of a child without additional needs.

if she still needs the same level of care as during active treatment, then just let it run and renew when it is due. but if she doesn't need extra care, you must tell them (and it will probably stop). I think the DLA award letter explains it too what to do if there is a significant chance in care needs.

[Spacegirl21]

Did you renew your child’s DLA?