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Jaundice rebound...again

(2 Posts)
Iamnotacerealkiller Sun 11-Feb-18 17:13:38

Some of you may remember me from my post about my waters breaking early and the following labour. That post ended with me updating you all to say all had gone well other then our LO getting Jaundice.

We are now 9 days later and are still in the hospital after concurrent rebounds (5) following phototherapy. i have been staying with him every night on the ward and frankly it has all but broken me.

The sleep deprivation is one thing, getting used to looking after a new born and all the routine tests are fine. what really gets to me is that all the staff, wonderful as they are, are shit at managing expectations. we have been set for discharge twice (even to the point of having papers complete) before getting the final BiliRuban which showed an uptick in the jaundice.

three staff member have said something along the lines of 'i wont see you again as my next shift is on X date and you will be out by then'

Lots and lots of general 'you will be out soon'

Well FFS everytime he rebounds is fucking heartbreaking as we keep being told to be optimistic then he has to go back under the lights which he hates!!!!

Its getting to the point where i am afraid it is affecting my relationship with my son. i'm getting angry with him for not feeding, throwing up or for grousing at night (this is only in the deepest darkest hours of the night) i don't want to resent my child, it isn't fair on him he is trapped in this too. its so hard to see him in distress.

I would really appreciate hearing any stories you have about being in a similar situation with rebounding.

confusedlittleone Sun 11-Feb-18 17:20:44

I know this story well!! We spent over a month in hospital with jaundice originally and then in and out with other issues since.. it's completely ok to feel emotional about it! The staff are used it. thanksthanksfor you

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