DD2 (5 months) is being investigated for a genetic disorder that would massively increase the likelihood of her getting a childhood cancer. We are going to the hospital on Monday but I just can't see from all my reading about it and looking at her how the answer can be no. I don't even know how to get through until Monday, never mind get through until she's 10 and the risk decreases. I need to be sick really badly. I'm not quite sure how to keep breathing in and out, if that makes any sense. I would be really grateful for a hand hold. Anyone who's been in the same position - does it get easier?
I think the waiting is worse than an actual diagnosis. I think that you do eventually cope even if you hear the worst - because you have no choice but to adopt coping strategies. But at least you know what you are dealing with. When you are waiting for results your mind goes into overdrive and its an awful time.
I'm so very sorry you're going through this, how very awful. That feeling of worry and despair is agonising . I haven't been through a similar situation, but as an anxiety sufferer I'm unfortunately very familiar with that sick to your stomach, cloud of doom feeling. I'm sending you best wishes and a hand hold. Let us know how you get on
The waiting is horrendous. My ds was diagnosed with cancer at 16 months old. Hopefully you will get a clear result but either way once you know a diagnosis you can start planning and getting the relevant support. A big squeeze and handhold from me.
Thank you all so much. We are not out of the woods yet but, thank God, the geneticist we saw today was quite hopeful that the markers DD has might be explained away by other things - that she doesn't necessarily have the syndrome so we shouldn't panic yet. The genetic tests won't be back until January, but I am feeling more hopeful today than I have all week. Thank you all for the support. It really helped on Saturday, when I was having a very dark day. I don't know what will happen in January but today I am letting myself have a little bit of hope.