Am a regular but changed my name because this feels private.
In September I was referred by the orthopaedic team for an MRI on my exceptionally stiff lower back and they got my neck MRIed too as not much movement there either. MRI mid-October, which seemed impressively fast (yay NHS). I was phoned by that team to say they were referring to orthopaedics for a bulging disc in my lumbar spine and to neurology for a focal lobular cystic lesion at the top of my spine/base of my brain.
Obviously, I was not thrilled with this news. Googled focal lobular cystic lesion briefly, saw the word tumour a lot and backed away from the computer sharpish. I told myself that I wasn't going to worry unless they saw it as urgent enough to get me an appointment quickly.
I got the referral letter through from orthopaedics within a week or so and booked my appointment in nifty online system for only a couple of weeks later (yay NHS!).
That appointment was today. Before we even talked about the orthopaedics stuff the doctor sat me down and quizzed me about whether I was chasing my neurology referral. He was very insistent that I needed to make sure I was seen quickly. I wish I had realised at the time that he had just been looking at my MRIs and quizzed him, but that didn't occur to me until later...
I did a bit of a chase around the hospital and finally found someone who was able to tell me that my referral was definitely in the system as urgent and an appointment letter hadn't been lost in the post because there were simply no available appointments so they haven't been able to allocate me one yet (booo systematic destruction of NHS!).
My question is simply this - am I being unreasonable to wait? A friend suggested I contact the consultant's secretary and ask for a cancellation appointment. Phoning to request this and explaining that another specialist within the hospital had seen my MRI and pushed me to push has secured me the first available appointment. At the end of January. A cancellation appointment might come up sooner, or it might not.
I don't know whether I should pay to see a consultant privately more quickly, knowing that I probably can't afford to pay for another MRI or a biopsy privately. I'm a single parent, two young teens who worship me, one of whom is properly phobic about death/secret illness...
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To wait two more months for neurology appt for focal lobular cystic lesion on top of spine/base of brain?
15 replies
RiverStyx · 05/12/2017 22:48
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