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AIBU?

To think mil has handled dh's illness worse and handled it badly - Wibu to ask her to stay away for a bit?

15 replies

sippytwist · 27/07/2017 20:54

Dh has MS, as does his sister, who has had it for a lot longer and more severely.

This week dh had his worse attack to date. It has been quite scary and, imo, made a lot worse by the interventions of his family. When it became clear he was slipping into a bad attack, mil rang me demanding that I demand steroids on his behalf from the gp. I replied I didn't think it works like that - dh has never had steroids before so I didn't think I could ring and order them like it was AMAzon. She made me feel so bad I did ring, to be told, shock horror, it doesn't work like that and he would need to be seen.

Mil made it plain she didn't believe me and came up chuntering all day about how she had never heard of a gp not prescribing steroids. Sil had named a particular drug that has worked for her, but gp, not surprisingly imo, wouldn't just hand it out.

Today we have all gone to the hospital with him, and it has been endless moaning and swearing and complaining from mi - the doctors are all shit, everything we are told is 'ridiculous', 'they' (doctors) are all the same and don't care etc etc. It causing dh and I a lot more stress than we would have anyway - I have had to sort childcare on top of everything and dh is obviously the one actually ill, yet mil is making it all about her, while sil thinks she is the only one on the planet who knows anything about the disease. I think the doctor we saw today (yes we did have a long wait, but doubt that was someone's actual decision to make that happen) was great, and it is clear to anyone that dh has very different symptom from the ones sil has had, so a different drug is presumably in order.

I get that they are worried about him and that mil must feel awful to have two offspring with this shit disease, and I know they went through a lot getting sil diagnosed (25 years ago), but still - they are making an awful situation worse and I know dh feels the same.

WIBU to ask them, gently, to go home and wait to be asked before visiting again.

OP posts:
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hungrywalrus · 27/07/2017 20:58

Gently or not so gently. Your call, op. Sometimes it's better just not to tell people like that what's really going on as they just become another headache on top of everything else. I'm sure you'll find a solution that works for your family. Flowers to you and your DH. MS is a horrible illness.

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Outnotdown · 27/07/2017 20:59

That wouldn't be unreasonable at all, if you think you have enough patience left to do it gently. Sorry you and your husband are going through such a shit time. Just tell them he needs his rest and you'll call when he's up to a visit. Good luckFlowers

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Hassled · 27/07/2017 21:00

Oh blimey - yes, tell her to go home. You just don't need this extra stress. Hope your DH is OK.

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EggysMom · 27/07/2017 21:03

I'm unclear as to why MIL is this involved, presumably DH is an adult? Why is MIL going to the hospital with you - one way to reduce stress would be to stop her coming too.

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blacksax · 27/07/2017 21:05

MS presents differently in men and women as far as I'm aware, so what is suitable for one person might not be right for another. What is absolutely wrong for him at the moment is a bunch of awkward argumentative relatives thinking they know what's best for him.

Is there any way you might be able to speak to his consultant and ask him/her to intervene in some way, and tell them all to STFU?

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DJBaggySmalls · 27/07/2017 21:06

When someone is very ill you put them first, not yourself. I know its her son, but she should be supporting both of you. If she cant do that and is being a burden, explain you cant deal and send her home. The hospital will back you up.
I hope your DP finds a suitable treatment and you have some support Flowers

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GreenTulips · 27/07/2017 21:11

Yes - she shouldn't be there at all! Tell her to go home and get some peace - not sure how you can make any decisions if she's just filling the air with her opinions -

Stop giving her information to process

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Allthewaves · 27/07/2017 21:16

why isn't mil doing your childcare in this emergency?

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Yogagirl123 · 27/07/2017 21:16

I also have MS, sorry to hear of your DH is having a relapse. MIL needs to understand that stress is best avoided for people with MS. Has your DH got an MS Nurse specialist? mine can organise prescription for steroids to speed up recovery after a relapse. I have had steroids before to aid recovery yes it is a high dose I doubt a GP would prescribe without seeing the patient. Is your DH on a DMD? I know they don't stop relapses but they relapses may not be as frequent or severe? There is no need for guilt, there is no evidence to say that MS is thought to be passed on. No one in my family has/had MS, sometimes there are no reasons why, but as with anything in life, how you deal with it is key. I hope your DH is feeling better soon. All the best OP.

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NerrSnerr · 27/07/2017 21:23

Why are you all going up to the hospital? They don't need to be there. I wouldn't tell them when you're going next.

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Penfold007 · 27/07/2017 21:27

What does your DH want? I'd work form there.

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Roomster101 · 27/07/2017 21:42

Sorry to hear that your DH is having a relapse. Does your MIL understand that although steroids can speed up the recovery they won't make any difference to the end result? Perhaps if she did she wouldn't be so insistent that your GP should prescribe steroids immediately. I think she needs to be told (by your DH) to butt out. If she wants to help she could help with childcare.

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Roomster101 · 27/07/2017 21:43

I also think she shouldn't be going near the hospital..

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JaneEyre70 · 27/07/2017 21:48

She must be living with a tremendous amount of guilt, knowing both of her children have this awful disease, but I completely agree with other PPs that stress really doesn't help. I'd let the dust settle this time, and perhaps have a coffee and a chat to tell her how scared DH and you both were this time, and you appreciate that she was scared too but the comments and criticising the Doctors actually made him more stressed and you want to avoid that next time. If she doesn't take that on board, then I'd keep any medical information well out of any future conversation. I hope your DH is doing better Flowers.

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uokhunni · 27/07/2017 21:56

Hi OP - sorry to hear that your DH has MS. I do too and you need to push for a DMD now if his attacks are getting worse. Seems like a short course of high dose steroids would be beneficial so do get in touch with your MS nurse team.

I had 3 rounds of lemtrada and haven't had an attack in 8 years. Tysabri also gets rave reviews too.


Sorry that your MIL is interfering this way, MS is bad enough without this type of pressure (even tho I slightly agree with the steroid issue) feel free to send me a PM anytime.

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