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To be frantic with fear about PIP review?

(33 Posts)
disabilitysux Sun 09-Apr-17 16:19:55

I was awarded PIP for 3 years with a review after 2. It's coming up fast and I'm terrified. I survive because of PIP and the extra Housing Benefit I get to pay the rent. I work part time.

Just so scared today because I know they will want to take it away.

Cagliostro Sun 09-Apr-17 16:23:42

YANBU at all sad I have my first assessment soon and I am pretty sure I won't get it TBH.

Babyroobs Sun 09-Apr-17 16:24:34

If you still have difficulties with the same things you did 2 years ago then you should be fine. I think one of the descriptors has changed recently and it seems harder for people with mental health problems to get PIP.
Do you receive both components?
I have recently seen a few young people who have had DLA all their lives but have then been denied PIP.

Awwlookatmybabyspider Sun 09-Apr-17 16:28:27

I'm not going to tell you not to panic. That would be very hypothetical, as I'd be panicking myself. These people do not make life easier.
However all that said. You don't 'know' that they're going to stop your money. Do you have a strong support network behind you eg Doctors and other medics.
Also if you fail. There's nothing stopping you from appealing. With the support of a welfare advisor.
((((((((((((()))))))))))))). Massive hug.

disabilitysux Sun 09-Apr-17 16:45:52

Thank you.

I don't get the Mobility element.
My health has actually deteriorated over the last year, I have more issues and attend more specialists. However my mental health has become more stable ie I don't want to kill myself over my disability anymore.

I'm afraid that they will take that as proof I don't need PIP, take away my support, then my mental health will completely unravel again as I can't pay rent, food, etc.

I fucking will appeal it though! Just the lack of certainty about being able to survive is panicking me.

Sending hugs of solidarity to others in this bind.

disabilitysux Sun 09-Apr-17 16:48:40

Having one of those days where the amount of fighting needed to get anywhere at all seems very overwhelming.

Babyroobs Sun 09-Apr-17 16:52:43

Op . Do you get working tax credits? I think you only have to work 16 hours if you are in receipt of PIP and are on a low income.

PlayOnWurtz Sun 09-Apr-17 16:54:09

Don't panic. I had my review and was scared because of the dickheads scaremongering. Don't listen to it. They're just that, dickheads scaremongering. My award got increased at my review and mobility element added.

Nothing has changed other than the paperwork is now easier to complete in my experience

MrsJayy Sun 09-Apr-17 16:57:30

Ok dont get in a state they are not going to take it away from you. Just be honest but on your worst days not a better day it will be ok is there anybody who can go with you?

MrsJayy Sun 09-Apr-17 16:59:01

It is very overwhelming and intrusive but it will be alright flowers

manicinsomniac Sun 09-Apr-17 17:00:03

I can understand your panic. You do hear some awful stories.

However (in my limited experience at least) everyone I know with significant mental and/or physical disability have got what they needed at their review. The only reason for not going would be actual, genuine, measurable improvement in their health which is of course a good thing (this only applies to one person I know).

If you have got worse, not better, I really can't think that you'll have a problem. (also - do you have to admit how much better you are mentally? Of course you shouldn't have to lie but, if you're really anxious, then I don't see that it would hurt to?)

PlayOnWurtz Sun 09-Apr-17 17:00:24

Best advice I was given was to drop the daily brave face and tell it straight as it is. So I did. It hurt like hell to do that and made me blub like a baby but i would far rather they see exactly what it's like to be me than sit there saying all's well

MrsJayy Sun 09-Apr-17 17:05:44

Sorry you were so upset playonwurtz but that is exactly what people need to do oh and don't say I'mfine.

PlayOnWurtz Sun 09-Apr-17 17:06:14

That's what I'm advocating doing mrsjay

MrsJayy Sun 09-Apr-17 17:08:31

I was a complete wreck during my review and i slept for 2 hours when i got home.

disabilitysux Sun 09-Apr-17 17:17:13

I never let ANYONE in real life see how bad I am. My doctors all deal with separate bits of me so they never see a whole picture of everything together, if that makes sense. Although, I will be able to get my different consultants to write simple letters outlining my problems, I suppose.

I have a new psychiatrist, who has never seen me at my worst. I have been very honest, but when I'm in the appointment I'm not falling apart visibly like I used to with my old psychiatrist. I don't know how he will view my overall state.

If the decision is a 'No' from the review form would it be stopped immediately? Or would I get it until the end of the period it has been awarded to which is a year away?

I'm most frightened of an immediate stop, because then I will be up shit creek as Housing Benefit stops and my rent will go into arrears.

TestingTestingWonTooFree Sun 09-Apr-17 17:17:50

manicinsomniac Encouraging dishonesty is not going to help OP.

OP you don't need to panic, but don't be complacent. Try and get updated evidence from whoever manages your care. Even if it's a brief letter saying nothing has changed.

disabilitysux Sun 09-Apr-17 17:35:42

I would never be dishonest, I don't have the temperament for it it would cause my anxiety to soar.

IfyousaysoKT123 Sun 09-Apr-17 17:38:47

OP if they stop it it will be immediate - you do not get the rest of the award ( mine awarded til Dec 16, stopped in June 16 following April 16 assessment.) I absolutely do not want you to feel worse - I know exactly how you feel. For me the worst came true & I had to go all the way to Tribunal, where the judge actually apologised for the system & the "moving of the goalposts" that had caused me such huge distress. I certainly hadn't "got better" - that doesn't happen with my condition sadly. My advice would be to go to a community law centre & ask for support with the reassessment. They can support with form filling etc to make sure you put in the right stuff in the right way. I didn't do it early enough - I also thought "they won't take it away", but they did. Get someone to stand right beside you. I can't tell you how sick those DWP envelopes make me feel now. I'm happy for those of you that had no problems, just wish I hadn't either.

Babyroobs Sun 09-Apr-17 17:41:00

I think no matter how thoroughly you fill the form in, most of the decision goes on the face to face assessment.

gammaraystar Sun 09-Apr-17 17:55:01

Surely if you need it you will get it, and if you don't, how nice your condition has improved :-)

gammaraystar Sun 09-Apr-17 17:56:16

I say this as someone whose parent has Parkinsons and had their disability payments removed as the weren't seen to be bad enough.

Mulberry72 Sun 09-Apr-17 18:06:50

YANBU I've just sent my Review form back, my claim is until March 2018, I'm absolutely bricking myself. I had my assessment in March 2015 which was horrible and I cried through pretty much all of it, then 6 months later I went through the ESA assessment which was actually ok as the assessor was lovely and couldn't understand why I'd been sent for an assessment in the 1st place.

It's a very worrying time.

disabilitysux Sun 09-Apr-17 18:30:10

Thanks all.

Jesus fuck I can't believe if they take it away it's immediate. That has to be everyone's worst nightmare, in our situation. How on earth are you meant to jump suddenly into being ok? How do you pay rent while waiting for appeal or tribunal?

At least I know now, information is the only puny power we have in this situation.

disabilitysux Sun 09-Apr-17 18:32:46

Babyroobs, I think it is different with a review form. Sometimes they send you for another face to face interview, but sometimes not.

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