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Exercise-Induced Anaphylaxis allergy - anyone have experience of?

(10 Posts)
Newtobecomingamum Tue 07-Mar-17 13:27:04

I have mainly posted for traffic as have also posted in exercise.

AIBU that as soon as I get in a routine with work, children etc that I want to start exercising, I joking the gym, do one session and I have been diagnosed with this condition. I want to get for and lose the baby weight... It's so unfair. I feel really miserable.

Does anyone else have this? Are you still able to exercise?

Newtobecomingamum Tue 07-Mar-17 13:27:49

Apologies for the appalling auto-text!!

BarbarianMum Tue 07-Mar-17 13:32:43

I only know of one person who has this. In his case it is the result of an underlying gluten allergy. If he eats gluten and tv, all fine. Gluten + exercise = anaphylaxis, epipen and blue light to a&e.

It took a long time and numerous emergencies for this to be worked out. If you suspect something similar, try exercising first thing in the morning, before breakfast, and see what happens (proceed with caution obviously).

BarbarianMum Tue 07-Mar-17 13:33:15

...eats gluten and watches tv...

MatildaTheCat Tue 07-Mar-17 13:33:30

Sorry for your diagnosis it must be really scary and upsetting. No experience, I'm afraid but I read a novel about this condition recently called The Tidal Zone by Sarah Moss. It was from the perspective of parents whose child had been diagnosed. It was well written and a good read.

I hope you get some support and are able to get on with normal life.

RockNRollNerd Tue 07-Mar-17 13:47:32

Am on phone from work so have to be quick but go to Anaphylaxis Campaign they have a fact sheet which may help. They also have a helpline for members which Is v useful when I've called although I am dealing with food allergy.

Also may be worth posting on the allergies board as well

DesignedForLife Tue 07-Mar-17 14:46:15

Wow, I've never heard of this. I get exercise induced asthma if I do certain things. Are you able to do gentler exercises for the time being?

hollinhurst84 Tue 07-Mar-17 15:14:38

Have you been seen by a consultant or anyone? I have cholinergic urticaria which is hives triggered by sweat, heat, exercise, my HR increasing so if I'm stressed or angry
Not life threatening but I can swell and I get covered head to toe in incredibly itchy hives
I still exercise but I take 4 antihistamines a day

CigarsofthePharoahs Tue 07-Mar-17 16:24:43

I get exercise induced athsma which I control mostly by not doing any form of cardiovascular exercise.
The last time I did any form of proper cardio workout my athsma started, I took some salbutamol, carried on the exercise and then passed out. Lesson learned!
There are things you can do to increase your fitness that aren't high stress exercise, yoga, pilates, tai chi etc.

ROTFLBSST Tue 07-Mar-17 17:58:19

I had my first anaphylactic episode when I was 20 and oddly 1-2 hours after eating as I'm allergic to a by product of digestion (so I still don't actually know what I'm allergic to). About half of my episodes have been exercise induced, I've learnt that I can catch them with subutamol and anti-histamine if I get the first signs (trouble breathing/swollen lips/itchy palms).

As Barbarian has mentioned I do think it's likely to be an underlaying food allergy which is made into full blown anaphylaxis when thrown in with exercise. It is scary but you'll get better and better at recognising the feeling of its onset.

Perhaps try taking a food diary and food exclusion measures to work out if this could be a root cause for your trigger. Have they given you a prick test on your arm to trial you against common allergens?

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