I've NC as my baby had been diagnosed with this BUT I really want to raise awareness.
Infantile spasms are a really rare form infant epilepsy. They are considered to be catastrophic due to the developmental issues they can cause.
They are rarely seen by medical professionals who sometimes mistake them for reflux or normal Moro reflex.
The UK IS fb page group has bravely put together an amazing video of their children showing what to look out for if you fear you child has developed this.
Please watch and share so that early intervention is possible for these poor babies.
If you suspect IS please go to A&E with a video and say you suspect IS. Be prepared to be admitted for a few days and don't leave without an EEG.
m.youtube.com/watch?v=PoWjBspeoQM&sns=fb
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To raise awareness about Infantile Spasms
103 replies
NCforIS · 29/01/2017 21:56
OP posts:
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