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to ask if anyone has experience of a child not responding to sound

(12 Posts)
LittleSausageFingers Mon 21-Nov-16 19:23:48

I'm posting here for traffic, hope that's ok. DD (9 mo) doesn't respond to noise, be it voices, doorbell, dropping cutlery on a tiled floor, etc etc etc. Newborn hearing test was fine. I took her for an audiology assessment (visual reinforcement audiometry) today but they couldn't do the test because she didn't respond to any of the test sounds. They tried a couple of other things, including shouting behind her ears(!) and no response. Tried to repeat the test they do to newborns but she wouldn't tolerate something in her ear.

We're going back for an auditory brainstem response test next month, we're hoping she'll sleep through it (otherwise she'll have to be sedated for it at a later date).

Otherwise a happy, gorgeous little thing. She's really communicative non-verbally, copies gestures etc, but she doesn't babble (no mama, dada, baba). She gurgles, blows raspberries and laughs/cackles.

If anyone has any experience of this sort of thing, advice etc, I would really appreciate hearing about it. Thanks!

lostinthedarkplayground Mon 21-Nov-16 19:26:07

Post on the sn board? Better than AIBU for these sorts of things, probably.

EveOnline2016 Mon 21-Nov-16 19:28:43

Ds didn't and later found out it was a symptom of autism.

clare2307 Mon 21-Nov-16 19:30:57

Yes! My youngest (now 14 months) was/is exactly as described... She has other developmental issues but with regards to the hearing our audiology consultant is fairly certain it's glue ear, although can't be 100% due to being unable to see fully in her ear thanks to narrow ear canals but her eardrum readings were completely flat at all 3 appts over about the last 4/5 months. She has now been referred to ENT for grommets and while under GA they will do the brainstream test.

He told us that as she passed the hearing screening at birth, while not impossible, it's highly unlikely (unless genetic) that she has any actual hearing loss other than the loss caused by the glue hear.

We have started some baby signing with her to help her communicate. Just very basic ones to being with, like eating, drinking & sleep smile

HeyRoly Mon 21-Nov-16 19:31:02

What a worry for you.

What have they said about passing the newborn hearing test? Is it possible for a baby with a hearing impairment to be missed as a newborn, and get a false "pass" as it were?

HRarehoundingme Mon 21-Nov-16 19:33:03

Could it be glue ear? We found out dc2 was moderately deaf at 9 months due to glue ear. We had thought maybe the house was just too noisy but tests led us to glue ear.

BadKnee Mon 21-Nov-16 19:37:30

Yes DS had this - it was glue ear. Had grommets. OK now.

I am sorry though - it could be a number of things and all you can do is wait at the moment. Good luck OP

HRarehoundingme Mon 21-Nov-16 19:40:11

With dc2 it treated itself we had to go to 3 month check ups bit luckily his hearing was getting better by the 3rd so no invasive surgery/grommets etc

LittleSausageFingers Mon 21-Nov-16 19:47:48

Thanks very much for the replies. My DBro and I had glue ear as children, both had gromits. Apparently it doesn't run in families (that's what the audiologist said anyway) but I know it's very common.

It's extremely rare but possible to get a false pass on the newborn screening test, but something could happen since birth to affect the hearing.

I would bet my house that DD won't let someone stick electrodes on her head and put earphones on her when she's having a snooze, so i think she'll end up having to be sedated for the next test. We'll be waiting a while for the answer i think.

Appreciate the replies smile

Allthebestnamesareused Mon 21-Nov-16 19:52:46

Yes DS - exactly same - was glue ear - grommets sorted it out. Try not worry too much at this stage.

Sulis87 Mon 21-Nov-16 19:53:00

A friend's daughter had this. Also glue ear, caused by a dairy allergy.

TheSoapyFrog Mon 21-Nov-16 20:34:06

My two year old son doesn't respond to sound and it is because he is autistic. He's had all the hearing tests and he's fine. The only way I can get his attention is by singing the wheels on the bus.

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