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To stop my medication?

(4 Posts)
Hedgehog80 Fri 15-Apr-16 13:36:50

I have been unwell for about two years, fatigue, aches, cold all the time, brain fog, constipation and feeling generally terrible on a daily basis.

I was found to have an elevated TSH level and that plus my symptoms led my GP to diagnose under active thyroid I was told I'd need mediation and to see her again for another blood test then we would go ahead.

I then got a call saying one of the senior partners said actually Iam 'sub clinical' so they won't prescribe. They told me to wait a year and be retested?? I feel awful

I saw an endocrinologist privately who did more tests and it turns out I have Hashimotos. She wrote to GP and I started Levothyroxine.

The NHS cut off point for 'normal' is 5.0 currently on medication I am 4.8 and still feeling rubbish. I have to pay for all my prescriptions privately. AIBU to want to stop for a bit and let my TSH level go above 5.0? I know it'll make me feel even worse but I want to see an NHS endocrinologist and get my prescriptions?

cjt110 Fri 15-Apr-16 13:38:58

You have my sympathies Hedgehog as I have an underactive thyroid and a vague knowledge of Hamshimotos

I would just ask for regular blood tests. I know when I feel tired etc and feel my thyroid could be to bame, I can just ask my GP for a blood card. Perhaps ask for one every 2-3 months.

I wouldnt risk not taking your thyroxine as it can be dangerous.

Hedgehog80 Fri 15-Apr-16 13:42:46

The GP just say it's 'fine' as below 5.0 ......but I have symptoms and antibodies and have to pay to see a private doctor and get private prescriptions

They said unless it's over 5.0 they won't treat but I feel that if I could go a couple of weeks without then go to the GP it would definitely be over 5.0

Hedgehog80 Fri 15-Apr-16 13:43:39

The thought of not taking it and feeling worse is worrying though so I'll probably just keep going. It's just really frustrating

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