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AIBU to feel totally confused....

(18 Posts)
coffeetofunction Wed 17-Dec-14 18:55:41

I have been to the GP today & he indirectly suggest I might have MS.... I have been think the same myself for a number of weeks but now I don't know what to, what to think, what to say to my DH....or what to expect if I have got MS...hmm

CupidStuntSurvivor Wed 17-Dec-14 19:10:21

Are you being sent for further tests? If so, I'd just say that it's a possibility that they'd like to rule out.

CupidStuntSurvivor Wed 17-Dec-14 19:11:38

Sorry...that's the only help I can give. I've no experience of it myself.

I wish you well though and hope it proves to be something much less serious. thanks

watchingthedetectives Wed 17-Dec-14 19:15:50

What has the GP done ie referred you to a neurologist? Booked an MRI scan? or has it just been left up in the air?

What to expect varies hugely but you do need someone to assess you properly, make a diagnosis and get appropriate treatment started if it is MS.

Good luck

Choccybaby Wed 17-Dec-14 19:20:11

Don't panic!
A lot of people investigated for MS don't have it.

You'll probably be referred to a neurologist who will decide if further tests such as an MRI scan and lumbar puncture (needle to get a sample of fluid from your spine) are needed.

MS effects everyone differently so just because one person has a certain problem does not mean you will develop that (if you do have MS). Personally I would advise against googling it etc because of this.

ReadyToBreak Wed 17-Dec-14 19:20:57

I had this at the beginning of the year. I was booked in for a CT scan and had an appointment within 3 weeks to see a specialist.

They did loads of tests - balance, reflex, muscle strength and some others I couldn't work out what they were for. And went through history and symptoms.

Even though I didn't have the "right" reaction to one of the reflex tests (a foot one they did) I never got an MS diagnosis - thankfully.

Hope all goes well for you!

Choccybaby Wed 17-Dec-14 19:21:46

What symptoms do you have and did your GP examine you?

coffeetofunction Wed 17-Dec-14 19:53:49

I'm seeing a neurologist on 16th January. GP is doing blood tests for vitamin D, vitamin b12 & thyroid but he suggest reading up on MS so "I know what to expect"....

I have a tremor, bad in one arm but not as bad in other- getting gradually worse. I suffer with slurred speech, my balance isn't great & I get pins & needles in my tongue/mouth & neck.

I know nothing really about MS & my DH knows even less. I have 3 children, one is a new baby & one has additional needs... I'm scared at what my future might hold!!

RaptorInaPorkPieHat Wed 17-Dec-14 20:12:45

MS Society UK

The above web page has a forum Coffee which you might find useful

I hope you get a favourable diagnosis flowers

CrohnicChristmas Wed 17-Dec-14 20:13:33

Quick question- did all the symptoms start together?

coffeetofunction Wed 17-Dec-14 20:20:02

Chronic- no, I've had the tremor since I was a teenager, my balance has become noticeable about the same time my speech started slurring. Can't remember when the pins & needles started, maybe about 6-7 years ago around the time other started to notice tremor....if any of that makes sense...

coughdrops Wed 17-Dec-14 20:21:25

I have MS. I was diagnosed in 2010. It's scary when you hear it, but I can honestly say my life is fairly normal and I haven't progressed over the last few years. It is managed by medication and mostly I am well. It will be good to see a neurologist and get an MRI. Hopefully it will rule OUT MS, but if you do have it, you'll be able to discuss your treatment options. If you want to pm me, feel free x I am in Ireland though, so not much help ob how things work in UK

coughdrops Wed 17-Dec-14 20:22:18


CrohnicChristmas Wed 17-Dec-14 20:34:32

Yes that makes sense. I just wondered because I might have MS too- I only have pins and needles and a load of wooly 'symptoms' like fatigue and memory problems that might not be related, but I had an MRI and it showed lesions. But they probably happened at the same time, so it's not clear yet if it's MS or a one-off event like a virus.

If it turns out to be MS, there are drugs they can give you to help stop further relapses, and they can also give you drugs to treat the symptoms.

I did find it helpful to read up about MS, I have anxiety and feel that forewarned is forearmed. You need to decide for yourself whether googling will help you or not. My hospital's website has a section on MS run by the nurses with some reputable and not too threatening links on, might be worth checking up if yours does too.

coffeetofunction Wed 17-Dec-14 20:43:36

I've had episodes of fatigue, but only for a couple of days here & there. I put that down to been a busy mum but I will mention it to neurologist when I see him...

CrohnicChristmas Wed 17-Dec-14 20:47:51

Might be an idea to write everything down- all your symptoms and approx when they started. If anything in particular makes them worse/better. Any questions you have for them. That sort of thing.

coughdrops Wed 17-Dec-14 20:51:49

I'd second that. I had symptoms that I never acknowledged until after I got diagnosed. Things like extreme tiredness, numbness in my hand, which came and went and I didn't pass any odds on. Also everyone has different symptoms so it's handy to keep a note of them

HighwayDragon Wed 17-Dec-14 20:52:38

hello op <waves> I was dx'd may, it's fine mostly you've just got to get on withyour life. No sense crying aboutit because as yet thereis no cure, you either live with it and get on with it or you let it control every aspect of your life. I am a woman, a mother, a partner, a friend, iam not my diesese and it does not control me.

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