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To think there's something not quite right with my baby

(182 Posts)
ButteryJam Fri 23-Aug-13 16:15:58

HV, GP and DH all make me feel like I'm an over worrying hypochondriac mother hmm

My LO has been very very fussy right from the very start, very alert and a little bit colicky (but definitely not colic). Now she is 13 weeks and has the following:

- episodes of screaming in pain for up to two hours, and won't settle unless I give her calpol. This occurs in the morning too. But it's all very unpredictable
- excessive (sometimes up to 50) hiccups at least twice a day
- refuses feeding (even if feed time) when in the state of crying
- tends to only feed when either asleep or very sleepy
- naps are so short, sometimes just 10-20 min, and a very very sensitive sleeper (I have to keep the house phone off and literally tiptoe around her)
- has had a sniffly nose, watery eyes almost constantly
- coughing during feeds or after
- and just generally not very happy, though does have some very happy smiley moments too

I'm a first time mum, so please tell me, is this all completely normal? HV told me earlier on in the week to stop looking for what may be wrong but just accept I am very unlucky to have this type of a baby.

(Tongue and lip tie were removed around 10 weeks so its not that).

flatmum Fri 23-Aug-13 18:38:21

grrr makes me so angry the HVs and GPs are so useless with this. as I said earlier my ds3 was like your dd and is now on a dairy free diet (age 3). the first 6 months were really hard until we got him diagnosed and on the ranatidine which helped a fair bit. he was my third! you are doing brilliantly you just need to keep on at them to refer you to a paed. my ds eventually started losing lots of weight and dropping off the bottom of the charts (could never finish a feed) and I still couldn't get them to do anything. they were talking about "maybe" referring him for "failure to thrive" until one weekend when he was about 5 and a half months it all came to a head. he was in so much pain and screamed for hours we took him to the out of hours clinic at the hospital. they took one look at him (skin and bones) and sent us through to children's a&e. There we were really lucky as the doctor on duty was still training and was going to specialise in paediatrics. she took one look at him and the symptoms and said "this baby has got silent reflex" and prescribed gaviscon. we saw the paed on the Monday who gave him ranatidine and it all got rapidly better from there. He also persuaded me to stop trying to bf and put him on dairy free formula.

I think it was all really caused by his underlying dairy intolerance. but it still annoys me now all those weeks of pain and upset when noone helped us. I feel bad that he was in pain all that time, but he is the happiest toddler now, I promise you.

monicalewinski Fri 23-Aug-13 18:42:59

Agree with just about everyone else - reflux, reflux, reflux! Both my boys had it and were exactly like your original post. Mine were prescribed ranitidine and also powder gaviscon which we put in their bottles (to make the feed heavier).

With my eldest all the doctors etc I saw said colic / just an unsettled baby, then one hv mentioned reflux which I'd never heard of; with my youngest I went to the doctor and told him what I thought it was (ready for another battle) and he agreed straight away.

Go back to the doctor, film your baby when at its worst and show it to the doctor. Good luck and keep going, it does get better honestly!

loklak Fri 23-Aug-13 19:02:04

It really sounds like silent reflux. My DS had one and my paediatrician told me the coughing thing and sniffly nose were symptoms.
Does she also sound like she's constantly clearing her throat?
Does she sleep better when she is upright (like in a sling for example?)
Does she often stick her tongue out?
Is she sometimes "chewing" her tongue?

I know what you feel like, it was such a relief when I finally got the right medecine...

ButteryJam Fri 23-Aug-13 19:04:40

Thanks so much everyone!

I just spoke to my GP, who after explaining everything said it sounded like colic! She then went onto say it will settle by 3 months, I then interjected and corrected her saying she is already 3 months. Anyhow she has agreed to do a referral but refused to prescribe gaviscon. I'm going to try another GP on Tuesday.

I do have some infant gaviscon sachets but I'm slightly reluctant to try them without being prescribed and a little worried she may get constipated. Shall I try them or wait till Tuesday?

Pobblewhohasnotoes Fri 23-Aug-13 19:04:58

Sounds like reflux to me too. My DS has reflux and is on ranitidine. Took ages to get it as some GP's will just fob you off with 'oh but they'll grow out of it' Yes, at a year old they might! DS is 18 months..

ButteryJam Fri 23-Aug-13 19:05:29

Infant gaviscon sachets are from a friend - probably got two.

ButteryJam Fri 23-Aug-13 19:08:42

loklak, she definitely sleeps better upright, in fact when she is unsettled she will scream and scream if I put her in any other position.

With the tongue, she had recently been sticking it out quite a bit, but that might be because she had her tongue tie released pretty recently.

JacqueslePeacock Fri 23-Aug-13 19:11:21

If you are cutting out dairy already, do give cutting out soy a try as well for a few days (not too hard really - although you have to read labels quite carefully). I had replaced all my cows' milk with soy milk, but the proteins are quite similar, so it was making poor DS worse and worse. After two days of cutting out both, he was like a new baby.

MisselthwaiteManor Fri 23-Aug-13 19:12:35

Gaviscon didn't help us, it's purpose is to thicken the milk in the stomach to help it stay down but it didn't take away the pain of the acid, it's not like adult gaviscon. If your baby isn't being sick with the reflux then I would just wait until you see the GP

MisselthwaiteManor Fri 23-Aug-13 19:14:45

Ranitidine is a life changer, don't leave the room until they prescribe it! After one day on it I was able to lay DD on her back and she was happy. We were sleeping sitting up holding her until that point.

LillyofWinchester Fri 23-Aug-13 19:17:03

Just to add, if you are trying to eliminate dairy you may need to wait another week or so to see a difference, also eliminate soya while you're at it as often the two are linked. And make sure you check the ingredients list as like another poster said, it's in everything.

Here's a link...

Trust your instincts, I'm sorry you're not getting more support from your GP, I hope you get to the bottom of it soon.

marriedinwhiteisback Fri 23-Aug-13 19:20:10

Well done. You have followed your instincts and advice on this thread. HV and GP, in spite of referral don't sound great. Not sure I's give the gaviscon from a friend (dose/weight/how dd will cope when it runs out). Did you ask how long the referral will take?

You could always pop to a and e over the weekend and express your concerns explaining it's a bank holiday and you can't get back to year GP over the referral until Tuesday and you can't bear to see your dd in pain any longer. You never know they might even call down a paed who may well get you into the clinic sooner and porescribe in the meantime.

You sound like a lovely mummy. Just remember that the early days are a tiny part of motherhood ad your dd won't remember them. She's going to remember her favourite dinner, first day at school, trips to the park, becoming a brownie - all stuff you will play a big part in and be loved and remembered for.

Good luck xxx

thebody Fri 23-Aug-13 19:29:56

ah lovely Marriedinwhiteisback.

good luck op.

StrawberryMojito Fri 23-Aug-13 19:30:29

Ok, I'm going to go against the majority...

I could have written your post when my DS was you age, I took him to the doctor numerous times, convinced his crying (screaming), hiccuping, refusing to settle, awful sleep etc were symptomatic of something serious. Some checks were done but nothing diagnosed and guess what, he grew out of it.

He still actually is quite hiccup-prone but mainly when he's laughed too much. Whilst, I think his digestive system matured a bit and helped matters, I think he was just a difficult baby...some are, fact.

I found he became a much better sleeper when I was able to put him on his front (when he could roll freely) and he slept with us (not our choice) until he was 9 months old. He is can still be 'difficult' but is robustly healthy and equally wonderful. He is 22 months now.

I'm not a doctor so I'm not saying your baby definitely hasn't got any issues but maybe trust the GP, hv and your DH.

marriedinwhiteisback Fri 23-Aug-13 19:39:11

Maybe strawberry*. But you had year baby checked out. Hopefully the OP's baby will be checked out and specialist paeds will tell her there's no problem but as long as there might be a problem the OP needs to get it checked out for her dd's sake.

marriedinwhiteisback Fri 23-Aug-13 19:42:42

And FWIW my did was a difficult, miserable, fractious baby who didn't sleep. But and this is a big but: she never coughed, she never seemed in pain, she never screamed in a distressed way (mor a needy way), etc. She was a difficult baby (I had a child already to compare with) but I never ever thought she was physically suffering.

heather1 Fri 23-Aug-13 19:53:06

Buttery you sound like a lovely mum who loves her baby very much. It's hard when health professionals who are" experts" dispute what you know but you know your child better than anyone in the world and are their advocate.
Everyone, even my mum, said your ds is fine but I knew something wasn't right and he was diagnosed w reflux at his 8 month check. Definitely try another Gp. Often if you baby is thriving and gaining weight the doctors and hv aren't too worried but then they aren't responsible for a little person who is in discomfort.

StrawberryMojito Fri 23-Aug-13 20:00:09

Married, I offered my opinion because my DS did have the same symptoms as the OPs baby.

Of course she should get her baby checked out if she wants, I'm just a non-medically trained stranger on the Internet.

stopthinkingsomuch Fri 23-Aug-13 20:00:13

Mum of three here and silent relfluxers. We didn't need meds but had to follow certain things with each baby. Loose clothing, no dairy in my diet, raised bed/cot. No jigging when winding, car seats and certain pushchairs didn't help so had to be careful. The big one that helped was raising up the sleeping area. Hope you find some help for your bubba and congrats.

I'm sticking with the reflux theory. My Dt1, who is one of three children so I'm not a hysterical first time mother, has finally been diagnosed with reflux, soya, dairy and egg intolerance at 15 months. Yes, you read that right. 15 months. Atypical symptoms which included frequent feeding, very, very poor sleep, vomiting but latterly only associated with coughing, crying or mealtimes... He was on gaviscon at two weeks old, it didn't help, our attention was then focused on Dt2 who also had reflux and cows milk protein intolerance and very miserable (both bf babies). Suddenly, at 11 months, we realised Dt2 had settled, was sleeping etc, Dt1 was exactly the same.

I was fobbed off for months by bf support workers and hv telling me it was colic. I don't believe in colic, I really don't. Only when Dt2 got cows milk at 6 months did we realise as he was so much worse- yet he never had diarrhoea he got constipated. Both have always banged weight on no problem. Now I believe Dt1's hellish sleep is partly as we are still figuring out if he has other intolerances, and partly habit as he's 16.5 months now. He literally has never slept more than 2 hours solidly until this month. that is not normal?!

I think there's something else to it and am glad you have a paeds referral. I'm hoping others stories show they can be so different, and not fitting all the symptoms. We didn't realize for months having one refluxy, intolerant twin fgs!

Keep on trucking, it will improve.

hettienne Fri 23-Aug-13 20:02:14

Babies with reflux probably will grow out of it, but that doesn't mean it isn't painful and distressing for them in the mean time! With an older child or adult we wouldn't expect them to put up with something painful just because it isn't dangerous and it might only last a few months.

Oh, but my 16.5 month old is now on maximum doses of ranitidine, domperidone, dairy, soya and egg free diet, and he's a different child.

ScariestFairyByFar Fri 23-Aug-13 20:18:32

Don't know if this has been said but it runny nose can be a sign of dairy / wheat intolerance

Thepursuitofhappiness Fri 23-Aug-13 20:22:49

Sounds like reflux!

I expect gaviscon won't help, that's generally to keep milk down not for pain. You should ask for ranitidine to be prescribed for pain (Zantac). It is very weight sensitive so may need to play around with the dose (gp would prob try the minimum dose but there is a large range). Ranitidine can be prescribed by a gp while the paediatrician appointment comes through (which can take weeks....) so don't let them fob you off.

CreatureRetorts Fri 23-Aug-13 20:24:57

Your GP sounds crap.

Took me four GP appointments with different GPs to get them to take me seriously. (ds had silent reflux)

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