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To expect not to be told to stop breastfeeding in order to take a drug that has been classified as SAFE for breastfeeding

(216 Posts)

I have a rheum appt coming up and am psyching myself up for it. I have psoriatic arthritis and need to start DMARDs asap, however consultant refuses to prescribe them while I am breastfeeding. The paperwork I was given by the hospital says sulfasalazine is safe for BF, directly contradicting the consultant!

DS2 is 15m and on one feed a day now. I'm half tempted to say I've stopped, I won't as I don't tell lies to HCPs, but IABU to think the consultant is BU? I went in last time saying "but it says its safe" and was told I was wrong hmm

And, what do I do? If it were a GP, I could get a second opinion easily, yes? How do I do that with an NHS specialist?

JacqueslePeacock Fri 26-Jul-13 21:34:35

Well done. Great news.

Isabeller Fri 26-Jul-13 20:05:39

So delighted! Really hope you start feeling better soon xx Is

SoniaGluck Fri 26-Jul-13 15:56:25

Just caught up with this, OP. Glad it worked out for you. smile

kelpeed Fri 26-Jul-13 15:40:10

Message withdrawn at poster's request.

kelpeed Fri 26-Jul-13 15:39:49

Message withdrawn at poster's request.

kelpeed Fri 26-Jul-13 15:39:31

Message withdrawn at poster's request.

SirBoobAlot Fri 26-Jul-13 13:26:52

Hurrah smile That;s brilliant news. Hope the medication helps, and well done for standing your ground smile

ICBINEG Fri 26-Jul-13 13:24:53

nice one!

neunundneunzigluftballons Fri 26-Jul-13 13:04:46

Delighted to read that and I believe that even getting the specialist onto thepharmacist and Wendy will help him in the future with other b f patients.

Back from the hospital and need to say another, even bigger THANK YOU to everyone who helped!! grin

Between you guys, the local lactation consultant, and Wendy the pharmacist, we won! Woop woop!!

BaronessBomburst Wed 24-Jul-13 19:02:55

Maybe. But probably not. grin

tiktok Wed 24-Jul-13 15:25:33

Buttercat seems to have disappeared....maybe to do some thinking and reading smile

ICBINEG Wed 24-Jul-13 14:40:34

Just thought I would paraphrase the buttercat U-turn in case people missed it.

buttercat Don't take the drug even though it is listed as safe for BF because what if its wrong and there is a small risk...what if in the future someone finds a new risk?!?! You don't need to keep BFing you can switch to formula or cows milk.

Us: But there are actual known proven risks to giving formula and cows milk contains many drugs with at least as little or less certainty about safety as the drug in question, and it is also possible to be seriously allergic to cows milk.

<here is comes...brace yourself U-TURN>

buttercat yeah but the risk of anaphylaxis is tiny....only very few kids are that allergic to cows milk. Yeah there are risks to formula but its been really well scrutinised....oh and anyway I don't believe the research coz it doesn't suit me.

So in conclusion, there is no level of risk associated with BFing that buttercat finds acceptable (even in the case of fictional risks), but essentially any risk associated with formula or cows milk is fine...because it is small....

What is the cause of this blatant double think? Well it's obvious innit. buttercat feels that formula/cows milk is the default nutrition for a toddler and BM is some deviant variation...hence you just have to put up with risks inherent in cows milk, and should avoid incurring the 'unecessary' risks of BM.

Meanwhile back in reality cows milk is the deviation, BM is the default nutrition for a toddler and switching to cows milk is the risky alternative....

BaronessBomburst Wed 24-Jul-13 12:10:28

MrButtercat "Also used formula later as using ones common sense it's a far healthier and safer food than the vast maj of foods fed to toddlers."

Nearly spat my coffee out laughing at this! Clearly things like apples, bananas and chickpeas just don't make the grade.

5madthings Wed 24-Jul-13 00:31:35

Ahh but it it would be informed consent and so no reasonable grounds to sue on...

Seriously the misinformation surrounding bfeeding is astounding at times sad

tiktok Tue 23-Jul-13 21:19:03

Please give an example of any case where a mother has sued her doctor for prescribing a safe drug to use when breastfeeding when the mother has been fully aware and able to choose, and chooses to continue, zatya.

This just does not happen.

zatyaballerina Tue 23-Jul-13 20:33:18

'who' never needed to be exposed to it.

zatyaballerina Tue 23-Jul-13 20:32:26

He's entitled to not want to take the risk with your toddlers health, it may later turn out to be dangerous and it will be on his conscience if it does. Not to mention the potential lawsuits if a drug he prescribes to a woman harms her child to never needed to be exposed to it in the first place.

VinegarDrinker Tue 23-Jul-13 20:32:14

But cow's milk and BM are "amino acid based". That's what both me and kelpeed were pointing out. More accurate to stick to calling them hypoallergenic imho.

Anyway it has diddly squat to do with the OP's issue so I am bowing out now.

maja00 Tue 23-Jul-13 20:27:25

I don't think "amino-acid" based suggests a superior product - it suggests something artificially created, or stripped down to the bare essentials. Most people would baulk at having to feed their baby an amino-acid based milk rather than a cow's milk (or even soya) based milk.

kelpeed Tue 23-Jul-13 20:19:45

Message withdrawn at poster's request.

SirBoobAlot Tue 23-Jul-13 20:12:50

Buttercat, do you work for Nestle?

theidsalright Tue 23-Jul-13 20:02:19

Sorry, maybe this has already been said (I can't read all the shit stirring nonsense from the no life brigade) but just to say

You are entitled to a second opinion in the NHS

maja00 Tue 23-Jul-13 19:25:25

kelpeed, amino acid based formula is for babies who are allergic to cow's milk/soya milk. The OP isn't giving her baby hypoallergenic milk.

StayAwayFromTheEdge Tue 23-Jul-13 19:09:07

The info from the manufacturer is to use with caution as it is present in small amounts in breastmilk.

Probably fine to use, but there are no definite answers. Your consultant should be able to justify his decision though.

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